I have had 3 back surgeries now. First was to mend a ruptured disc near the tail bone. 3 weeks after surgery was in a car accident so had to have it redone as it reruptured. The 3 surgery occurred 1 yr later when 2 levels collapsed and I ended up with a fusion, titanium cages and screws. It was a horrible surgery with a lot of blood loss, and I died and was revived because I would stop breathing. Little did we know at that time I had severe sleep apnea from the narcotics needed to control the pain.
1 month after this surgery I ruptured another disc and dr wanted to do surgery again. I declined. Since then ( 8 yrs ago) I have developed 12 ruptured and or collapsed disc & severe scoliosis, bone spurs, arthritis, degenerative disc disease, and a list of more that I don't remember. Dr wants to put a rod down half my spine and has told me I can never be fixed only helped. Not want I wanted to hear but I understand why. He said this will more then likely go all the way up my spine in time.
Now I am having severe pain that goes into the vaginal area accompanied with pain in the buttocks and inner thighs. It becomes severe if I stand or sit too long , walk up and down steps a lot or am up doing house work for any length of time. I get severe pain down both legs with driving, and or prolonged sitting.
I have also developed severe pain in my neck, shoulders and knees. I had to have foot surgery 2 years ago in which the dr did not do it right, so I limp from the pain. That has thrown my walk off and increases back pain.
The last surgery also damaged the lymph nodes behind my knees so I also have developed Lymphedema. As a result I have to sleep with my feet and legs elevated on 3 pillows every night to keep swelling down and it also helps the shooting pain I get from my back when I lie down. Therefore I can only sleep in one position now for the past 8 years. I awake a lot through the night from pain, and sleep apnea so never feel rested even though I use a CPAP machine.
Other then that, I have been diagnosed with fibromyalgia for last 30 years, Interstitial cystitis and irritable bowel and severe joint pain in my hips, knees, neck, shoulders, and fingers which dr is not sure why I am having this.
Other then treating the pain, I have elected not to do anything else, mostly because I cannot afford to now since I went through a divorce and my income dropped drastically. I am having a hard time working as I struggle with memory issues and pain.
I need help but don't know where to turn or what to do first. I am mostly concerned about the pain in the vaginal area, because I know I can loose bowel and or bladder functions any time now as the nerves to that area are being compressed. How serious is this pain and is it connected to the nerves to the bowel and bladder?
Can you comment of this and also where does someone with so many issues start? I am thinking about moving which will require all new doctors which scares me because they send you to so many to be evaluated and they always treat me as if I am there for drugs. I want off drugs!!
Tiered of pain in Ohio