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I am a returning member not really a newie. I can't remember my old account details it has been so long. Anyhoo I am looking for anyone in a similar position for chat coz I am quietly going nuts here in the middle of the night. To make it simple I will explain my position in a series of bullets...........
I am 47, female and in the uk
I had a spinal fusion when I was 17 for congenital spondylolisthesis ( spelling?) which was generally pretty successful. Some nerve pain sciatica and lower back pain but I had a pretty good life. Took codeine for pain but didn't need to visit docs much.
Migraine on and off over the years but again not worthy of the doc.
Wasn't meant to have kids but hey stuff happens....................................
Enter my daughter when I was 23. Easy but exceptionally painful birth. Thought it was normal coz I had never done it before!
Life carried on and when I was 40 I had what I will describe as a relapse for simplicities sake.
Lots of MRI CT DEXA scans x rays physio acupuncture councelling blah blah
Turns out I am osteoparotic, and have spondyloptosis, I probably broke my back having my daughter and had broken it again! Nerve pain sciatica all the usual.
Neuro wouldn't/ couldn't work on it sent me to a pain clinic and said have a nice day!
Pain guy did injections and prescribed oxycontin, celebrex and amytriptoline and things for gastric probs constipation and calcium for osteoporosis
Trickled along nicely for a few years. .........
Got breakthrough pain and doc gave me cocodamol for the gaps............all good
Migraine got a bit worse but on the whole I could live with it doc gave me immigran up the nose thingys which sometimes helped
Enter more migraine which has got steadily worse to the point where I can have 2 a week back to back!!!!!
So in my wisdom after the mother of all migraines on dec 1st I stopped my meds because I need to know if they are responsible and I cannot have another one like that. All of them cold turkey!!!!!Doc has no idea until I see him on Monday. DO NOT TRY THIS AT HOME KIDS!
So as I am sure you are all aware I am not only doing withdrawal big time. I have developed all my old symptoms and a few surprising new ones. I have always been warned about cauda equina and I fear that is developing and has been masked by the drugs. Which is why I am going to see the doc.
So after all of that boring stuff is there anyone out there who has developed the migraines? Got any or all of the other probs or is going through withdrawal and wants a pen pall to help them through the wee small hours coz I am going nuts here on my own. xxx