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Failed everything so far

Kimmer33KKimmer33 Posts: 1
edited 01/12/2015 - 6:05 AM in Chronic Pain
I am a 50 year old woman who in 2012 was on a flight from Haiti to the US when my back first started spasming. I did nothing out of the ordinary (no heavy lifting, no running, etc.) except be squished in the middle seat of an airplane for many hours. I saw my PCP about it and they did an XRay, but of course nothing "significant" showed-up. The spasms were getting more frequent and worse in pain, so I persisted with my PCP and he ordered a MRI. These are the results for the lumbar spine: "There is straightening of the lumbar spine with loss of the normal lordotic curvature. There is no evidence of acute fracture. There is anterior traction spurring noted throughout the lumbar spine. The intervertebral disc spaces appear maintained. Impression: Mild degenerative disc disease." These are the results for the thoracic spine: "There is mild scoliosis of the thoracolumbar spine. There is no evidence of acute fracture. There is anterior traction spurring noted throughout the lumbar spine. The intervertebral disc spaces appear maintained. Impression: Mild scoliosis." and finally these are the results of the sacrum and coccyx: "There is mild sclerosis demonstrated along the left sacroiliac joint. There is no evidence of acute fracture or dislocation. There is no fusion of the sacroiliac joints. Impression: Mild osteoarthrosis." I have seen at least two "spine specialists" who claim there is nothing "wrong" with my back/spine, and the pain I am feeling should not be associated with these findings. I'd like to see them live one day in this body! So, we went into masking the pain (somewhat) with drugs. I've run the gammit on muscle relaxers, pain patches and pills, and have only found temporary relief with Lorazepam. My current doctor does not like me taking it though, as it is an addictive drug. My doctors back in Oregon in 2012-2013 suggested surgery, but for what they didn't exactly know. I was not up for opening up my back to explore. My doctor's "action plan" at this moment is to ignore me and dole out drugs for the rest of my life. I am looking for a good doctor who will listen to me and look at all these things and get to the root of the problem. My Oregon doctors said I had Fibromyalgia, but I disagree. I have tried chiropractic, steroid injections, physical therapy (the therapist told me I was regressing instead of improving!), water aerobics, acupuncture, massage, stretching, walking and I'm sure I'm forgetting a thing or two. I am at the point now where I can basically do nothing due to my back going into spasm. I've had to call 911 before when this has happened because I can barely breathe, let alone move when it happens. I am on the couch with ice and downing drugs as I speak. Please, there has to be help out there for me.


  • LizLiz Posts: 9,579

    Liz, Spine-health Moderator

    Spinal stenosis since 1995
    Lumber decompression surgery S1 L5-L3[1996]
    Cervical stenosis, so far avoided surgery
  • PlumbTuckeredOutPlumbTuckeredOut Philadelphia, PAPosts: 325
    Those treatments you've tried are mostly for bone issues and inflammation yet you describe "spasm" which, to me, says muscle. It would be a long and arduous task to explain how I found this out about my own body and how it helped but for years I was experiencing spasms- not along my back but all over. Later I discovered that my body was not absorbing certain nutrients like calcium, magnesium, and potassium. Once I got treatment for my body's inability to absorb those nutrients most of my spasms disappeared.

    Because initially the spasms were not consistently in the same place I couldn't go to any certain doctor and most were just overwhelmed with the weird things my body did (I had severe undiagnosed Celiac disease until I was 42 years old. This caused so many issues not consistent with Celiac it was crazy but considering my body was unable to absorb so many things it was no wonder I had so many issues going on I felt like I needed mission control!)

    People can find relief from severe spasms by upping their potassium intake, drinking tonic water (which contains quinine), and adding magnesium. You may want to ask your PCP to run a full blood panel to see if there are any missing nutrients..... it's easier than surgery!

    Two roads diverged in a wood, and I took the one less traveled by...... (Robert Frost)
    I still don't know if I should have taken the one that said, "Caution! Dead End" (Me)
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