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Hello from Oregon Newbie looking for support
Im new to the site and wanted to say hello and introduce myself. Im not someone that would normally post things online or join a group but i've reached a place in my life that Im needing to reach out and find support. However small that may be. When you feel alone and hopeless you have to do whatever you can to turn things around. I 've been living this back deal for many years now and just when I thought I had made peace with it. It took over with a vengeance.
A little background... had my first surgery at 23yr. Lamectomy L5-S1. No idea why it happened. 10yrs later Surgery 2, Microdisectomy L5-S1 I injured it lifting a box. That didn't work so Surgery 3, 1yr later Fusion L5-S. A couple yrs later had a Spinal Cord Stimulator implanted then a yr after that it was removed along with all the fusion hardware. I then adjusted my life to live "disabled" with chronic low back/leg/hip pain. Worked part time here and there when i could. I came to peace with what I couldn't do anymore. I thought ok this is as bad as its going to get, I can do this, I can stay positive and live in pain.
BUT then about 6 months ago in a brief lapse of judgment I went to pick up a large basket of clothes and turned weird. And just like that what I thought I was at peace with has become unbearable. Its not just my low back now, my entire spine and neck are enraged. Im in more pain than ive ever experienced and ive experience some pain. Not only pain but my left arm and shoulder are weak, shaky. Im dizzy all the time, headache. I haven't had more than 2hrs of sleep at a time. My chest even hurts. I cant tolerate oral opioid medications and so far cant get the insurance to approve a patch or something other than a bottle of oxy (which makes me sick) and strong Ibuprofen. So far ive only seen my pcp and its taken him 5 different referrals to get an appt with a specialist to be evaluated. Again, insurance issues. Im now 6 months waiting but finally got a dr to take me but my first appt isnt until mid July. Im not sure where the strength is going to come from to deal with the pain that much longer. I made another appt with my pcp to beg for some kind of help before then. I just dont know how to do this anymore. Im right back at square one but even worse.
I feel so defeated.... thx for listening but most of all thank you for posting and sharing. Reading your stories this last week has gotten me through alot of rough sleepless nights.