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Relief to talk to others

Hi All,

I am 29 years old, and I have suffered with chronic back pain for 8 years.

I have no diagnosis - the closest that anyone has come is degenerative disc disease, but health professionals agree to disagree.  I have had 4 MRIs, 9 xrays, 12 rounds of physio, 2 consultant rheumatologists, 3 acupuncturists, 1 laser acupuncturist, 3 chiropractors, 4 osteopaths, and 1 medical herbalist.

What I do have is a huge amount of pain.  Sometimes it is so debilitating that in order to turn over in bed I have to use the headboard to lever myself over.  Sometimes it is so painful that I cannot breathe. 

There is no point to this post really, except that this is the first time in my life I have ever been able to speak to a group of people who also suffer from chronic pain - either in person or over the internet.  And the relief to know that there are other people who feel the way I do is astonishing.

I am not yet 30, but sometimes I walk like I am 90.  I have given up on the NHS, because every time I ask to see a pain management specialist, I am told I have to start the process again.  I am not willing to waste my time, the doctor's time and the taxpayer's money on YET ANOTHER xray, MRI or round of physio.  I used to work for the NHS, so it breaks my heart that I have no faith in them in this, the most important health issue of my life thus far.

I think that, realistically, this post is expressing relief that I can be open and honest about the amount of pain I suffer, without either a) worrying my family and b) making people believe that I am exaggerating or making it up - as I have been told numerous times, "you are too young to have a back problem" - like that is supposed to make me think "ah yes, you are right, I am too young, and therefore I am miraculously healed"!!
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Comments

  • Sheri76Sheri76 Michigan Posts: 646
    Sorry you have to go through so much, hope you can find some relief soon, and some answers.

    Sounds like some possible arthritis amidst other issues. Hopefully, an open minded Dr will be able to figure it out for you soon.

    After my fusion surgery I had to use a king size satin pillowcase to lay on in bed to help ease the turn/roll over when laying down.

    The last few months I've been using a smooth, possibly polyester, quilted like, beach roll out mat. It came with a circular pillow that is detachable by buttons. I find the mat helps immensely with the ease of rolling over. Without it I struggle way too much, causing muscle strain, and a lot of popping/cracking.  The beach mat is the length of twin size bed, maybe half as wide. The mat stays in place much better than a satin pillowcase. I bought mine at a garage sale like new, but I see Penny's carry them.  


  • LizLiz Posts: 9,745
    welcome eris348 

    please click on the link for useful information

    Liz, 

    Veritas-Health Forum Moderator

    Spinal stenosis since 1995
    Lumber decompression surgery S1 L5-L3[1996]
    Cervical stenosis, so far avoided surgery
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  • daboodaboo Georgia, USAPosts: 17
    Hi Eris348!
    I am really new here too, although I read a LOT on these boards before I decides to have fusion surgery last month. I have just started posting, but am finding the people here are great :) so welcome! I do hope you can find some relief. Back and neck pain are no joke, and yes you are young, but back and neck isues do not discriminate ;) 
  • SooveritSooverit Finger Lakes region of NYPosts: 460
    Ugh! I hate the comment, "you are too young for this." What's that supposed to mean? I'm 40 years old! I have a herniated disc and si joint problems. Is that the same kind of comment as, "you are too old for this shit" (when someone is engaged in shenanigans they should have outgrown)? That's how it feels to hear that...as though you have done something naughty! Rant over, lol.

    I'm so sorry to hear about what you are experiencing. I know it's especially tough to not have a diagnosis. I went through that for a year, while the whole time, my problem was very clearly visible on my MRI, but had just been overlooked. What a relief to finally have found the problem. 

    I also know how disheartening it is when you lose faith in providers. My trust in medical providers is so low now :(

    Are your back pains in one particular area, or just widespread? Have they thrown any possible diagnoses out there? Do you have anything to help with pain?

    I hope you find the answers soon. Chronic pain really squeezes the life out of you. Especially when those around you don't understand.

    Take care,
    Sara 


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