Welcome, Friend!

It looks like you're new here. If you want to get involved, click one of these buttons!

advertisement

Quick Start Forum Video Tutorial

    Forum-Tutorial-Screenshot
Protect anonymity
We strongly suggest that members do not include their email addresses. Once that is published , your email address is available to anyone on the internet , including hackers.

Notice
All discussions and comments that contain an external URL will be automatically moved to the spam queue. No external URL pointing to a medical web site is permitted. Forum rules also indicate that you need prior moderator approval. If you are going to post an external URL, contact one of the moderators to get their approval.
There are no medical professionals on this forum side of the site. Therefore, no one is capable or permitted to provide any type of medical advice.
This includes any analysis, interpretation, or advice based on any diagnostic test

The main site has all the formal medical articles and videos for you to research on.
advertisement

How do I broach the subject of medication changes?

advertisement
2

Comments


  • dilauro said:

    The headache/migraine specialist doctor is for real!   My daughter had to see one about 20 years ago for daily headaches and constant migraines.  She was admitted to a hospital  for a week to observe/monitor/tread the headaches.  On her floor there were many other patients in the same boat.

    They  gave her so many different medications that she had difficulties getting through each day in high school.

    Finally, an orthopedic doctor diagnosised her problem to being that she was constantly subluxing her shoulder.  She could  dislocate her should turning in bed!  When they treated her for that, those daily headaches stopped.

    Thanks Ron! Actually hearing that someone else has had to see a headache doctor is a little more comforting. However, I am so sorry to learn your daughter ever had to deal with anything like that! Just glad somebody helped her. 

    In all honesty I was begining to think, I was just getting pushed off on yet another doctor, like passing the buck. I really appreciate you sharing that info with me. 

    Hope you have a great weekend. 
  • MunkzillaMMunkzilla NYPosts: 208
    edited 10/07/2016 - 10:56 PM

    Kimmy72 said:

    Wow, Ron.  I'm sorry that your daughter had to go through that!!! 

    Munkzilla--I don't know what to say except I'm sorry for what you are going through.  I know you know my story, and I don't know if this also rings true for you, but I think the feeling of being "cast aside" and invalidated does nothing but add emotional pain to the physical issues. 

    Hope you find some relief soon... 

    Oh Kimmy, I feel for you! Your story is one of the stories here that keeps me from just giving up. You have been through so much and still find the strength to keep pushing forward and not taking no for an answer. 

    Yes indeed, that "cast aside" feeling is very damaging. I often debate in my head at night while up wracked with pain, "is it just me these doctors do not want to deal with? Or is it the complexity of the issue and the hassel of workers comp? Maybe it is fear from CDC guidelines and DEA pressure." The more of us I see pushed away and the buck passed on, the more I truly wonder about the treatment of patients in the time of insurance rules and government meddling in medicine. 

    I hope you find much needed relief Kimmy. I kid you not when I say that when I get really down, I think to myself " Kimmy with the doc dismissal and metal allergies, Aaron with his CRPS, William the poetic spiney, Ron with more surgeries than one person should ever have to go through;  and now memerainbolt with that whole pain pump bed rest mess all keep moving forward, so can I. " 

    All of the people here have been so wonderful. 

    I apologize for my late night frustrated vent session earlier in this thread. 

    Oh, my ganglion block happened this morning. My arm is down to a constant 4 which at this point I accept as tolerable. It is not on fire at the moment. Last time it only lasted 2 days. Hopefully I get more time this round. If not, no more the pain doc said. There is no point if I can only get 2 days of relief. Heck, 2 days is better than no days! 
  • advertisement
  • I hope the relief last longer for you, too, Munkzilla!!!!  I honestly don't think an apology is necessary for a rant--sheesh, I'd be ranting too if the sheets even hurt!!   Thank you so very much for sending the healing mojo my way!

    Isn't it amazing what we come to accept as "tolerable pain levels" when we've been in pain for soooo long?   
    Kimmy72, Spine-health Moderator
    Firm believer in PMA!
  • itsautonomicitsautonomic LouisianaPosts: 2,561
    Munk,  did the headaches start the same time as the arm ? I ask because CRPS targets the central portion of the CNS and really bad ( not caused by structural issues) migraines can be centrally activated.
    Do your due dilegence, trust you know your body and question everything if it does not fit. Advocate for yourself and you will be suprised what will be revealed trusting your body and instinct.
  • itsautonomicitsautonomic LouisianaPosts: 2,561
    edited 10/08/2016 - 5:07 PM
    Yes indeed, that "cast aside" feeling is very damaging. I often debate in my head at night while up wracked with pain, "is it just me these doctors do not want to deal with?

    Be very careful with this thought process Munk, I ended up trying to commit suicide due to the same thinking , but prior to diagnosis and just starting to believe I might just be crazy to be in so much pain.  You know what you have now and you know the research on it and where it ranks in terms of pain levels.  You have to believe in what you feel and if the doctors are making you feel this way with something known across disciplines to be as painful as CRPS something is not right.  I know its much more complicated when factoring in workers comp.  Just from a fellow sufferer who will not hide what the doctors who did not believe him and uncontrolled pain led me to attempt trying to help another from going down that road. It becomes a loop if the pain continues to increase.  Its something that can really get out of control faster than you can imagine.
     In industry we call it the swiss cheese effect, if you can picture 10 slices of swiss cheese lined up in a row with holes in all of them, but 99.9 percent of the time those holes do not line up, but that one time they do can have devastating results.  Uncontrolled pain, doctors not believing or taking seriously, family issues, work issues, social issues (all the things pain can do) and every once in a while they all line up and pass right through your defenses.  You may be stronger than I at that moment , but just wanted to make sure you notice if that thinking increases and keeps you awake at night or becomes a loop you cannot stop especially when pain increases.  Best wishes
    Do your due dilegence, trust you know your body and question everything if it does not fit. Advocate for yourself and you will be suprised what will be revealed trusting your body and instinct.
  • advertisement
  • Kimmy72KKimmy72 Posts: 2,107
    edited 10/08/2016 - 5:40 PM
    I so agree with Aaron--it's not just you, Munkzilla.  But if you let those feelings snowball, the results can be, well, what Aaron so openly and honestly shared with you.  I still have tons more "fight" in me, and I know you do, too.

    Do you think you'll be getting back to some of those awesome philosophical writings now that your pain levels are (at least temporarily) more manageable?  You have a fantastic mind, and I'm sure I'm not the only one who feels you would benefit from thinking about those things that interest and inspire you!!
    Kimmy72, Spine-health Moderator
    Firm believer in PMA!
  • Thank you so much Aaron, I do get spells where my thinking goes down bad roads. Like you said not having doctors believe you is a big part. Before my official diagnosis my spine surgeon said he "was having a hard time thinking I was actually in as much pain as I claimed! " He then sent me to the shoulder doctor who said very honestly "I cannot help you. This is far beyond frozen shoulder. I am worried I may make it worse. I think you have Complex Regional Pain Syndrome after looking at all your records and examining you. You need pain management. Don't worry you are NOT crazy!" 

    After that, I had a scared out of control racing head for a little while. That is when I posted about it here and spoke to my pain doc. Once I started to understand it, I guess I almost accepted it. I do still have questions about treatments etc... But I am not in that hopeless dark place all the time. So yes, that loop can be very dangerous, I am trying to keep my cheese holes from lining up by finding positive things to shift the holes over a bit. I truly thank you for sharing your experiences with me. Seeing somebody else coping with this has talked me in off the ledge. 

    Oh and yes, the migraines kicked in the same time as the arm! 

    Kimmy, funny you should mention it. I had an idea hit me a few days ago, and started to write a philosophical satire novel about food of all things! I work on it about 35 minutes at a clip as I cannot handle much typing time at my laptop. I get bad spasms. But, it is something, and a good step I think. Who knows maybe it will be the next best seller on the NY Times list. 

    Best to you! Thank you so much for all the advice you both have given. 
  • Ooooo...I'm unapologetically epicurious....what's it gonna cost me for an autographed copy??  :)
    Kimmy72, Spine-health Moderator
    Firm believer in PMA!
  • itsautonomicitsautonomic LouisianaPosts: 2,561
    No problem, I always think sharing our darkest times let's others know they are not alone.
    I am not a man who really believes in medical coincidences so I would approach the migraines as somehow linked until otherwise proved different.  Be a stretch to think they were completely separate being as they started at same time.  Just my opinion though
    Do your due dilegence, trust you know your body and question everything if it does not fit. Advocate for yourself and you will be suprised what will be revealed trusting your body and instinct.
  • I will research that more Aaron, I too do not believe in coincidences when it comes to medical issues. The odds of my arm goung haywire and the headaches beginning are about nil! Honestly I never thought about it until you mentioned it. Also the ganglion blocks while short lived help my arm and the migraines disappear until it wears off. The headache is the first thing to return then the burning returns in my arm about an hour later. This has occured twice now. 

    Kimmy, you can have an autographed copy for just being you!  :)
advertisement
Sign In or Register to comment.