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Social Security case review nightmare

I've been on SSDI over 10 years and I've had a few short form reviews before. This year I received a huge packet requesting more detailed information along with functional capacity questions. I've sent them everything and am still waiting to hear whether I'll be found eligible for ongoing benefits. I can't help but to be frightened in the case that I'm no longer deemed disabled. One of the criteria is that your condition has either stayed the same or gotten worse since you first were awarded. Mine is the latter; my spinal problems have deteriorated and I had to have an scs implanted. I figure they see that as a last resort measure meaning that I'm not expected to recover from the pain and disability. I know there's an overhaul of the system that was initiated by Senator Coburn last year. The 2016/17 regulations are an absolute must read that affects everyone on SSDI..it's truly disconcerting. Anyhow, if I lose my SSDI, I will be left destitute with no medical insurance. The state pays my Medicare premium, medicare supplement plan premium, and prescription costs. I have medicaid but it is different from the traditional coverage, but no SSI. Just in case I must prepare myself for the worst case scenario if things don't go my way. I have overwhelming medical evidence supporting my spinal conditions. I can't work in my present condition and I don't know what I'd do. Is anyone going through the same thing? Any advice is greatly appreciated, thanks.
Ol' Spiney..Micro-D L4-L5, TLIF L4-S1 -post op central HNP L4-S1,stenosis, retrolisthesis, EF, facet arthropathy, lumbar& cervical DDD. FBSS- Medtronic pain pump & SCS
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Comments

  • hi I signed up because I saw your post.

    nearly all reviews pass in the end (99%) and if you are still disabled you have nothing to worry about.

    if you are not working, still disabled, and in regular treatment, that is all that is needed.

    did you get a short form recently (in the last 6 months?)

    5% of short forms are randomly selected for follow up long forms. it doesn't mean anything.
  • Thanks KitCat, I appreciate it. Yes, I meet those three criteria but this time I received a bunch of functional capacity paperwork. It cost me almost $20 to fax the whole thing to Social Security. They are still waiting on more medical records since I had surgery recently. The waiting is driving me mad though. I've gone to the pain specialist every month for the last 10 years..I have mountains of supporting medical evidence but won't breathe a sigh of relief til this is over lol. 
    Ol' Spiney..Micro-D L4-L5, TLIF L4-S1 -post op central HNP L4-S1,stenosis, retrolisthesis, EF, facet arthropathy, lumbar& cervical DDD. FBSS- Medtronic pain pump & SCS
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  • Hi there I also got those papers, yes it took some time but they came back and all is good. It's scary to think about loosing those much needed benefits but like others said it's so rare you would unless your situation had changed. Good luck hun. 
    Live, love, laugh, it could always be worse.
  • Thanks, I'm so glad your case was found favorable and you get to stay on. They are still waiting for recent medical records since I had surgery again. If that doesn't convince SSA, then I don't know what will. How long did your case review last? I'm going on 3 months now. 
    Ol' Spiney..Micro-D L4-L5, TLIF L4-S1 -post op central HNP L4-S1,stenosis, retrolisthesis, EF, facet arthropathy, lumbar& cervical DDD. FBSS- Medtronic pain pump & SCS
  • I was just wondering how things turned out. I am in a few groups on Facebook for people with conditions that cause chronic pain and several have started getting these reviews. I hope it turned out in your favor.
    Fused L2-3 to S1 and at C5-6. I have a central herniation @ T11-12 and multiple bulging discs in my thoracic. I also have fibromyalgia and suspected arachnoiditis, awaiting my results of a recent MRI.
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  •  I finally heard my determination..I was determined to be disabled per Social Security guidelines and my case will be reviewed again in 3 years. I'm so relieved. It brought a lot of anxiety over these last few months waiting to see what would happen. My problems have deteriorated steadily since last year and so has the ability to get around. Thanks for asking for an update on my case review. 
    Ol' Spiney..Micro-D L4-L5, TLIF L4-S1 -post op central HNP L4-S1,stenosis, retrolisthesis, EF, facet arthropathy, lumbar& cervical DDD. FBSS- Medtronic pain pump & SCS
  • memerainboltmemerainbolt IndianaPosts: 6,484
    Meydey, finally!!! That's great news!! I am so happy for you. I know how hard you have had to fight this when you shouldn't have.
    I can't express enough to people about your medical records. That is your personal history, get a printout every time you go to a doctor for your own files. And I know you've done that!!
    This is going to help you in more ways than one.
    Again, finally!!
    Sandra
    Veritas-Health Forum Moderator
    ---------------------------------------------------------------
    Please read my  Medical History
  •  Thanks Memerainbolt. I can breathe easy..for now. I know it's tougher for people to get disability now and I'm glad I went through it earlier. Even so, I'll still sleep with one eye open lol. 
    Ol' Spiney..Micro-D L4-L5, TLIF L4-S1 -post op central HNP L4-S1,stenosis, retrolisthesis, EF, facet arthropathy, lumbar& cervical DDD. FBSS- Medtronic pain pump & SCS
  • I know so many people on SSDI that are questionable. One guy I work with got on the gravy train and he's better off than I am.
    Diagnosis: Thoracic facet syndrome & cervical and thoracic radiculopathy from car accident trauma.
  •  I wouldn't be so quick to call it a "gravy train". True, some cases are dubious but the process is long and arduous, and Social Security usually weeds out questionable claimants. It's gotten tougher now with the new, stricter regulations to cut down fraud and abuse. Case reviews are done randomly and periodically to ensure people that are not considered disabled are no longer entitled to benefits. It's a lifeline for those who really need it, but by no means is it easy living. 
    Ol' Spiney..Micro-D L4-L5, TLIF L4-S1 -post op central HNP L4-S1,stenosis, retrolisthesis, EF, facet arthropathy, lumbar& cervical DDD. FBSS- Medtronic pain pump & SCS
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