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New to the site but Not New to the PAIN!

Hello everyone! I guess this is where I must post first??

Glad to see I am not the only one with these issues. I am 33 years old, and have had CHRONIC lower back pain, numb feet, legs, intense lower back pain, very tight and painful erector muscles, spasms, and unable to walk or stand up or move twice a year for the last 5 years. Every day its normally just crazy pain and numbness by end of day, and tight back just waking up and going to work and coming home. On days I do not work I have my three daughters to be with and theres no rest time from there  lol.

My back first went wrong when I was 17 years old. I have been running 3k-5k-half marathons since I was 9 years old at this point, and ran all year long. I was in a race about 20meters left in my 800m race when the guy I was going at it for 1st place went and elbowed me down and how I landed twisted my body to where my knees bent sides to my body so I was shaped like a C. After this I could not walk for the weekend and had two herniated discs. Did not do much running after that, after my PT went on I was not able  to even run a lap! Horrible time, as I had two full term scholarships that I was not able to sign as I could not run anymore. So stopped running and just got into bad stuff. Slacked off and did not care anymore after this time, so I moved to a bigger city and just started partying after high school. I worked odd jobs to where I did not lift much or do crazy stuff, but after years went on I wanted to get back into shape, so 2009 came along and I got into the gym, started easy and was ok. No pain no hurting, but then I got into heavier lifting and crazy stuff. Along comes 2011 and my back goes out as I was doing smith squat at my local gym. I fell right on down and could not walk or get up. This crazy intense pain was rushing up and down my body. I had no insurance so just had to live it as is. I could not walk to work or sit down it was so painful. I had to have my brother who lived with me at this time to help me up and out of bed and to my car each day. Each time it was same pain and unability to walk when my back goes out. So fast forward to 2015, I finally get insurance and I get it looked it. L4/L5 and L5/S1 ruptured discs as well annular tears on both. 

Still in chronic pain all year now the past two years, pain never goes away. And this year its been more and more pain non stop. I just got my MRIs done and need to setup my appt to see my Pain Management Dr where my Dr sent me to. At first they said they wanted to try injections based on the Xrays, yet he even stated those are nothing to go off of, but he wanted to do that first. I told the Dr I wanted to wait until the MRIs got done first. The more I look into it, I would rather do a surgery of a Fusion type rather than a cutting off the disc pinching the nerve, as wouldn't that just make the disc smaller and weaker? I have tried therapy and stretching yet to only more pain. I have tried inflammatory medicines, disc decompression as well, nothing worked just pain pain pain. Has anyone else been in my shoes? Do I have a say with the Drs, or is it what they say goes? Is my thinking the wrong way? 

Thanks everyone glad to find this site. 
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Comments

  • Hi RinallyClan

    I usually read new threads on the main forum but decided to take a look under new members tonight.

    If you don't get many responses on here, maybe try posting another message under 'Start a new discussion'.  Some people respond or read if the title links to their problem area, so a link to this could make more people click on your message.

    I can relate to your pain and had many years struggling with pain while trying to work as a single parent and coming home to children with all their needs.  Would not change that for the world as I love them so much, but it is SO draining when all you want to do is lay down and get away from pain!

    My children are now 23 and 26 and my beautiful daughter (inside and out), will be my carer for 2 weeks after my next surgery.  This one will be a double level fusion L4 -S1. I guess my input for her years ago has taught her to look out for others and help them when it is needed.  I have a partner but my daughter will be helping with my personal care and has knowledge, so she will do without prompting which makes all the difference when I am medicated and in pain.

    You asked about having say or if the Doctors control this.  Most surgeons/consultants/doctors will diagnose, talk you through your problems and how they would address that.  This can take many paths and sometimes different views from different ones.  Personally I would listen carefully to what the surgeon suggests and if not sure, I would question his/her reasons behind that suggestion.  They are the experts and do procedures every day and see the outcomes so use that knowledge to gain knowledge.

    Your diagnosis from MRI scans will be based on more in depth knowledge from images that show the discs, whereas the x-ray shows bone.  It will be clearer on nerve entrapment and any spinal canal involvement.  Only your surgeon can advise on this and the best path forward.

    However, if you feel the diagnosis is wrong or you are not happy based on your symptoms, you can get a second opinion at any time.  I had a situation where one surgeon said I needed disc replacement of my C5/6 and double level lumbar fusion.  He had to refer me as he was lumbar specialist.  The referral took me to a surgeon that had clearly made his decision before seeing me and said he wouldn't operate.  I now have a surgeon that took one look at my scans images and immediately said I needed fusion.  He said I can make you better but cannot cure this, which I knew anyway.  He is a surgeon that performs very complex surgeries so he didn't find my advanced problems a challenge!

    You may find it useful to use the whole site here to research and by searching under different headings you may find old posts that may help you.

    Have you had your MRI?

    Good luck with your appointments and keep us posted on your developments
    AJ


    AJGormit

    ---------------------------------------------------------------

    L5/S1 herniation Apr 2013
    nerve root injections Oct 2013
    L5/S1 discectomy Jan 2014
    L5/S1 nerve roo &, facet joint injections & edpidural Jan 2015
    L5/S1 revised discectomy, L4/L5 discectomy & Wallis Inswing Stabilisation L4/L5 May 1st 2015
    L4-S1 TLIF with decompression June 2017
  • Hi Aj, thank you for responding back, I thought I did post that way and started a thread under the Chronic Back Pain but i guess it didnt go through or a mod said I had to do it another way, I dont know how that goes I read and its confusing. 

    I did get an MRI and the Dr I just talked with today was Pain Mang. and he said he just thinks I need 3 incjections every two weeks and that will make me have no pain. I am not that severe, just a lot arthritis in lower back on S1 and my L5/S1 disc is ruptured and thats it. I went back and forth with him today but he was set on as he kept trying to just finish the call and tell me about the prosedure. Thats about it. I kept telling him will It take the disc away from presing on the nerves int he long run, will it give my disc space it needs as it is half of Normal size? What do you think about my L4/:5 disc, that is herniated also. He said yes it is but not severe, and the disc wont heal, or space wont be made, hopefuly in time it will resorb it self and not press on nerves. I said well I want it fixed, back to somewhat normal, not just pain. Again though he was set on what he wanted to do. 

    My friend told me to go get a second opinion at his place where he went to. So I will do that just to see what they say. 

    But I would rather have it corrected and rely on ME to make my muscles better and stronger, rather than just take away pain and have it keep going as is later on. IDK just my thinkings. 

    Thanks Vince
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  • Hi again
    Sorry to hear you are not happy with the outcome of your appointment.

    I remember having a similar conversation when told they would try injections.  I immediately said I was not happy with treating pain and not dealing with the underlying cause.  I was in tremendous pain at the time and had nerve related issues, so was very worried it would just mask the pain and I would cause more damage to my nerve.

    Unfortunately, I was told that was the pathway of treatment in the NHS and it was either that or they discharged from their list!!!  Not the best thing to hear, so with gritted teeth I signed the consent form and went ahead.  They didn't work for me, but I have read many posts on here on other people get relief from pain.

    It sounds as if you are going for a second opinion so it will be interesting to see what another consultant will say about nerve compression/damage and going forward.

    Good luck with that

    Re other posts.  I understand new members first posts are checked and sometimes the moderators have a lot to get through as hundreds of new members can join in a month!  I think my first post took over 24 hours to appear.  There may have been something in your first post that did not adhere to forum rules so may have been edited or not posted - not totally sure on that one.  However, I would try again but make sure you work to forum rules to prevent any problems.  If you still have a problem, maybe send a polite message to a moderator to find out what the problem is.

    AJ
    AJGormit

    ---------------------------------------------------------------

    L5/S1 herniation Apr 2013
    nerve root injections Oct 2013
    L5/S1 discectomy Jan 2014
    L5/S1 nerve roo &, facet joint injections & edpidural Jan 2015
    L5/S1 revised discectomy, L4/L5 discectomy & Wallis Inswing Stabilisation L4/L5 May 1st 2015
    L4-S1 TLIF with decompression June 2017
  • SavageSavage United StatesPosts: 7,385
    hello rinallyclan !
    please click on link for helpful information!
    Sue
    Honorary Spine-Health Moderator
    -------------------------------------------------------------------------------------------------------------------------
    Please read my medical history at: Medical History

  • I must not be understanding the issues to my posts, why do I keep receiving links to click on? 

    Yes we have scheduled my first injection next week, so will see how it goes and go from there. As you said its the path we must take, sucks but guess we have to do what they say. Thanks again for the reply. 
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  • jimandjrjimandjr Dallas TXPosts: 745
    "why do I keep receiving links to click on? "

    Had to laugh on that one. Good luck with your injection. 
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