Pain 4 years after scoliosis surgery?

Pain 4 years after scoliosis surgery?

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Anonymous (not verified)
Title: Member
Pain 4 years after scoliosis surgery?

Hi everybody, my name is Kelly and I am 24 years old. In 1999 I had surgery to correct scoliosis, the surgery went fine but in 2004 I started having terrible back pain. As the years passed I also developed widespread body pain, migraines, TMJ, major fatigue, anxiety, depression and brain fog. I have went to many doctors and have been told everything from you have fibormyalgia to the pain is coming from your muscles trying to form around the rods in your back. I have also tried many different medication, physical therapy and message therapy and nothing seems to work. I was wondering if anyone has had this surgery and has felt this way? Thanks for your help!

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PinkElephantTrainer (not verified)
Title: Member
Hi Kelly, i thought that

Surprise Hi Kelly, i thought that after they did scoli surgery then all would be okay for folks. i was just too chicken to let them do me. hope they find a solution to your pain soon.
good luck ya hear

moon (not verified)
Title: Member
Thanks for your reply

Thanks for your reply PinkElephantTrainer! Are you really an elephant trainer, I have always wanted to be a zoo keeper but since I have so many back problems I know that I would never be able to do it Sad .
A lot of people come out of the surgery better than ever and I was for great for four years but for reason I have been having problems since 2004. I wish the doctors could help me more they kind of act like I don't have a problem, I think because I am so young.

PinkElephantTrainer (not verified)
Title: Member
Pink elephants...

the only pink elephants i get here are after a good drinking binge, specially if PM involved...the training is just to get the darned thing to bring me home.
elephant training is heavy on the lifting at feed times. hope the spine stops playing up for you.

jdt101
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Last seen: 4 months 5 days ago
Title: Member
Joined: 07/11/2008 - 9:56pm
Pain 4 years after scoliosis surgery?

Hi Kelly,

I had surgery in 2002 to correct my scoliosis and I was 47 years old. I have good days & bad days, mostly good. The first fusion failed & I had to go back in 3 months later to have it corrected and my recovery was 9 months. In the last year or so I have discovered yoga and it has helped tremendously. There are different levels & there is even a yoga specifically for scoliosis. If I were to give you any advice it would be to see another orthopedic surgeon who specializes in spinal deformities and surgery. I don't know where you live, but, my doctor was originally affiliated with the **edited** and then moved to **edited** & opened his own clinic there - it is the**edited**. He is a world renowned surgeon & has 19 medical patents for fusion instrumentation. **edited**is in practice with him. They both belong to the Scoliosis Research Society.
Good luck to you!!! Smile the **edited**

Doctors name and contact details removed by forum Moderator (paulgla). We do not permit publishing specific doctor's or institution names and contact details

moon (not verified)
Title: Member
Thanks so much jdt101 for

Thanks so much jdt101 for your help! I think I might try and go see a new orthopedic doctor, I just hope I can find a good one. Thanks so much again for your help.

mrs.rsr (not verified)
Title: Member
Hi Kelly...

My name is Cyndi, and I have had three back surgeries due to scoliosis. I had one when I was 15, one when I was 17, and then one when I was 27. I am now 31 years old. I was diagnosed with scoliosis at the age of 8 when my mom noticed a large hump on my upper right back. When x rays were done we found I had a large "backwards S" shape for a spine. At 15 I had a Harrington rod put in, and then at age 17 I had to have it removed due to a pinching pain in the upper left side of my back. By the time I was 26 I had given birth to 4 beautiful children (all two years apart). After I had my last child I would be in severe lower back pain on my left side. When I would try to carry my little girl on my hip I would be in tremendous pain. I finally decided to go to a really good spinal surgeon, and they did a bone scan of my whole body. She decided that the best treatment for me was to have another back surgery to fuse my upper spine and to place a small bone stimulator in my back. A bone stimulator consist of a small battery pack and a couple wires leading off of it touching the bone graphs, and it would send little electrical shocks, therefore stimulating the bones to grow. (I could not feel those shocks, in case you were wondering) When the doctor came and saw me a few days after surgery she said she was amazed that I could even walk before surgery because when she cut through my soft tissues in my back, the middle of my spine was very unstable. I am now wondering if the surgery even did any good because I still suffer with alot of pain there. Now, when I was younger I was told my my doctor that there was no problem with me having children, which I didn't really have any complications at all. Recently, though, I did read that when a woman has scoliosis and gets pregnant, the pregnancy hormones can affect her spine. I, of course, new that in pregnancy a woman's body prepares it for child birth by softening the pelvic bones, but at the same time can soften all bones in her body including the spine! I am assuming that maybe that is what happened to me to cause me to have to have surgery again like that. My doctor did tell me that eventually I will have to have another surgery.

I understand where you are coming from with all the other problems in your body. I have major migraines all the time too. Along with constant pain in both my feet, pain and stiffness in my hands (without too much swelling), blurriness in my left eye, and lots of "stomach" problems. This past October and Novemeber all the way through till recently things have gone down hill for me. I will be calling a new orthopedic surgeon this coming week to see what they can do for me. I had alot of blood work done about 4 months ago, and they said everything was normal. I will continue to see my doctor till them find what is going on with me. I just wanted you to know that you are not alone in what you are going through. If you would like to contact me and talk more my email is . I hope you can get the help that you need. Best wishes.

kimcmrn (not verified)
Title: Member
i am in the same boat

Hi Kelly,

I am Kim I had fusion surgery for scoliosis in 2001 and in 2004 started having pain above and below my fusions. I am like you, nothing seems to really help. PT, message, accupuncture, nerve blocks....Nobody has given me a direct answer and I keep getting told I am on a lot of pain meds to be hurting the way I am. If you want to PM that would be great. I am so frustrated right now. I know how you feel.

vivavegas
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Last seen: 3 years 11 months ago
Title: Member
Joined: 08/24/2008 - 5:49am
Do any of u scoloisis souffers get this???

Hi huys i have scoloisis and im having alot of numbness into the feet and legs well it changes from being all warm like on fire to totally coldness and numbness and the muscles go weak.have any of yous noticed anything with the ribcage muscle going all weak and flabby sometimes........but then again i had bmp put in my lumbar spine[mistake with referrals i had 2 bad discs and they ended up going in there and fusing me from l4 to s1 im only fused at the transverse processes i have no metalwork in and i still have my discs..i too am currently trying to see a scoloisis surgeon privately because of all this mixup.......do you guys get pain in ur knees and do they crunch alot.mine do but i was just wondering that because its probably been with me being out of alignment and all these years of overcompensating............are any of yous fused to s1 like from top to bottom?...........wishing you a painfree day and lot and lots of hugs!!!

wbrigode (not verified)
Title: Member
fused

I am fused from top to bottom. My pain from before is gone, and now there is new pain. I don't have pain in m legs.It's been almost 9 months and it continues to get better, very slowly!

10 years since ... (not verified)
Title: Member
Am the same

Freakily Kelly we have the same name and appear to be roughly the same age, I had to read your first post twice to make sure it wasn't me that wrote it!

I had my operation 10 years ago (I was 64degrees curved before my operation, thankfully I only had one op) and I suffer from the pinching feelings, muscle spasims, I have stomach problems too. I am now getting a lot of lower back pain which is weird because my curve and the rods etc are all upper and middle.

I am currently trying to get pregnant with my husband but I am scared of the kind of pain I may be in and what may happen to my back in the long term.

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