Well, lets start out and give my background. I was on the old forum, but I guess I should break it down again. I am a 27yo male, and have had back problems since 1999.
In May 2007 I had an L4/L5 laminecomy for a 7mm herniation. I had major radicopathy (sp?) down my left leg, to say the least it was pretty horrible. After my surgery I felt pretty good, the pain was almost completely gone but I would occasionally get shooting pains, burning and stiffness.
After about 6 months I started to get back to my old self again. The pain came back to its old intesity, but not in a constant manner...it came and went as it pleased. My Nuerologist gave me Lyrica, took it for about 2 or three weeks and didnt like how I felt. I was gaining a little weight and I always felt like I was drunk. It did very little for the nerve pain. In May of 2008 I got another ESI to L4/L5, this helped a bit. But the pain I was in was still there, and was getting worse. My Neurologist told me straight out "There is nothing I can do for you, you have DDD and there is nothing else I can do. Come back in 6 months." H :T AHAHAH Eff that. Such a great doc huh, sorry your in pain gimme money please!
I found a new Neurologist and he immediatly sent me for a Thorasic MRI, to see if there was anything pushing on my nerves above the Lumbar that could be causing the pain, numbness, tingling, and minor weakness I have been having. Well, wouldnt you know the first MRI after seeing this Neuro for 3 weeks came back with a diagnosis of Syringomyelia (SM). I cannot recall what levels the syrnix is located, but it is almost my entire Thorasic. He said it is small compared to what it could be, but is in the 3mm range.
As it turns out, the more I research this problem the more scared I become. This disorder only effects maybe 300,000 people in the US, so there is very little reserach that has been done, and very few specialists who know about it. I was lucky enough that my new doc knew what it was.
I had another MRI of the Thorasic last week to make sure it wasnt an anomoly. But, due to the pain I have been in, and the new aches and pains that keep popping up, I feel that was an accurate diag. I have constant pressure in my middle back, and I have thought of it just as muscle tightness from the surgery and my body compensating for balance issues. Well,come to find out the pains I have relate 100% to SM. The syrnix, CSF filled cyst, in my spinal canal is filling with fluid and pressing against my spine. Thus, causing the presssure or tight feeling, and I assume is the cause of the lower extremety pain also.
I go to see the Neurologist tomorrow morning, but I am really worried. I have nothing for pain, he put me on Cymbalta. It has helped my outlook on the situation, because honestly I have been really depressed the past 8 months or so. Although, it doesnt help at all with nerve pain or anything he said it would. I really would like something for the pain because tylenol all the time just isnt good for the liver, and it doesnt help much anyway.
I was hoping there were others on here that have been diagnosed with SM and they could give me some insight and help. I really am scared, because this condition can lead to paralisis, and that is something I would really like head off.
Any help or suggestions would be much appreciated.