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SCS question - need help

AnonymousUserAAnonymousUser Posts: 49,900
edited 06/11/2012 - 8:25 AM in Back Surgery and Neck Surgery
Hi all... I'm hoping maybe someone out there can possibly answer me or direct me....

I have suffered for 11 years with back pain in my flank area after I had a nephrostomy tube placed due to being pregnant with my daughter and her position shut off my kidney. Apparently I suffered nerve damage from this and since then have had the pain in my back and been using drug thereapy to keep my pain in control.

I have gone to countless doctors, seen accupunture specialists, chiropractors and pain managmement specialists. I finally was turned on to the concept of a SPC, and went to the Cleveland Clinic and they determined I was a good candidate for it. I had the trial SPS and had positive results with it.

I just had my surgery for the final/permanent SCS, and during the surgery I felt tremendous pain in my lower left leg. It feels like nerve pain, as I know the difference from the nerve damage I have and doesn't feel like the pain in my back from the surgery. It runs along the shin bone and done into my arch... definately is not a "muscle" pain or spasm.....I'm not sure what to do or what could be causing it?

The doctors also don't seem to know what it is and say they have never heard of anyone with problems like mine. Whats more bothersome is how they seem to want to blow it off and just want me to see if it goes away and don't think it is the leads or surgery itself causing this new pain.... it seems like way too much of a coincidence that

Any one ever experience any complications from SCS or the leads? Could a lead have damaged a nerve or be pinching it? Any thoughts or info would be great... Sorry for the long post....
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Comments

  • Hi and welcome to Spine Health. Did this start when they turned the unit on or before? I have learned that when it comes to our bodies and weird reactions to surgeries and treatments, that anything is possible.

    I have a cervical spine SCS and one thing that happens, is if the leads are set up to crosstalk in a specific manner, it causes horrible pain in my shoulders and neck. The stimulation still comes up and can be adjusted, but the amplitude it takes in comparison to the standard lead configuration is 3 to 1.

    One thing that happened is that as soon as I had my SCS implanted, everyone wanted to take a "wait and see" attitude towards the cause of my painful condition. As if having the SCS would do something that it can't, and magically cure my problem. Just prior to the implant, I was referred to a very highly revered neurosurgeon who runs a fellowship with other neurosurgeons, neurologists, orthopedic surgeons ... I was psyched. Well one week prior to the appointment to see this group of docs, I had the implant. Basically they did a great evaluation, but said come back in 6 months, let's see what the SCS does.

    So hang in there and don't give up. If you are experiencing pain like that, stay at it until someone listens.

    Best of luck,

    "C"
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