Hi, I am 21 years old. My whole life I have experienced the feeling of neck instability and mildly dull pain in my neck. About 4 years ago I went to my Doctor with severe neck pain who told me I was just stressed about college, which I could not continue because I cannot sit over books to read, write, etc. A year later I was in a minor car accident and had an x-ray done of my cervical spine and was diagnosed with Os Odontoideum. The ER Doctor told me I would require a surgery. Upon going back to my regular Doctor they said there was nothing wrong and I could continue with all regular activities, including horseback riding.
Within the past couple months the pain has again become so severe. I cannot sit or stand without literally holding my head up using my hands, let me tell you how hard that works when elbows are not allowed on the table!, or if I rest my head against something. Whenever I move my head I can hear almost like a crunching. My hands and legs are always going numb. My new Doctor has never heard of Os Odontoideum and sent me to a spine specialist, who also has never heard of it.
Does anyone have any similar experiences or any advice about how to talk to my Doctor about it? I cannot seem to find a Doctor who knows what this is, is this condition really that rare? I guess I am just sick of being in pain and am looking for some help.
Thank you for all your time and help.