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Started Lyrica on Monday night....WOW

AnonymousUserAAnonymousUser Posts: 49,731
edited 06/11/2012 - 8:25 AM in Chronic Pain
Well, I was started on Lyrica, 75mg 2 times a day. The first night I started having charlie horses and a few new pains I hadn't experienced before. The next day....look out, I had energy, wasn't in near as much pain and was in a good mood for the first time in months. My 12 year old even commented and said that I should stick with them because I wasn't grouchy now. :))( When I told the nurse how well it was working other than a couple of new little pains she let the doc know. I also had to let her know that my hubby was layed-off of work this morning and we would be losing our valuable insurance so whatever we needed to get done it should be ASAP. She called in a RX for 160 mg of Lyrica and raised my thyroid meds from 175mcg to 200mcg, because my thyroid level that should be between .45-4.67 was 39.91 :O which is extrememly hypothyroid.

She also ordered a sleep apnea link, which I know that I have serious sleep apnea and narcolepsy which I was diagnosed with about 4 or 5 years ago. I was also told that I definately need to get the lumbar region double fused but chances are it won't happen before the insurance runs out, after that it is a pre-existing conditions :''( which means it won't happen because I cannot afford it. It's going to be rough for a while but at least she gave me something that will help for the pain. I doubt I will be able to work yet. I also have to worry about my son because he is having some serious problems...Has anyone ever heard of what could cause bruised fingertips and bleeding at the cuticle by touch, that's just a couple of his many symptoms. Sorry, I guess I shouldn't ask about his symptoms in this forum. Oh by the way most of my blood work came back fine. Still wondering what is going on. :?
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Comments

  • Thats great that you are doing well on the lyrica already. I have recently started taking it as well but find I am soooo tired taking it. My dosage is 75 mg 2x day, as well, to be gradually increased if I tolerate it well. I cant imagine taking more! Im not sure how expensive it is because the dr. gave me a bunch of samples to try. :)))
  • My copay on the stuff is $38.00 so I think it is rather pricey. I too was given samples to start. I am kind of worried about the side effects that I read about in the pain med forum....weight gain, memory lapses, increased vertigo. We will see once I increase the dose, that's when everyone says the side effects were worse. We shall see.

    By the way I am also suppose to continue taking the Lortab 7.5 with them for a few days and then see how much I can cut the Lortab out. Who knows.
  • Hi
    I have been on lyrica (2 50mg six times a day)now for a year, and as like you it has given me more energy than I ever had. The only side effect was that more energy gave me insomnia. But this is a small price to pay.

    Good Luck! Hope it works for you.
  • I am happy to hear all of you are doing well on Lyrica.
    My Doctor insisted that I try it but I had a very, very bad reaction to it. My vision was blurred, I stumbled around and was falling and i could hardly talk. I would try to get up and would fall back into the chair. It scared me to death!! I threw the rest of them out!!
    I must confess that I do have problems with medicines not just Lyrica.
    Hugsssssssss >:D<
    Patsy w
  • I too had great success with Lyrica. But when I changed ins companys, they wouldn't cover it, and it was $150.00 a month. So back to neurontin, which is cheap, but doesn't work as well. And Michael is right, you are eligible for COBRA. You definitley need to look into it. If it has already been established you need the surgery, you need to get it for at least a few months, to cover your surgery. You don't want things getting worse because of lack of ins. Good luck.

    Maggie
  • Hello everyone!

    I've had burning nerve pain non-stop for 6 years. I can handle regular pain, but not that horrible burning sensation.

    Anyway, yesterday I went to a pain clinic for the first time (I had to find it myself on the Internet and ask my doctor to refer me.)

    I was prescribed 75mg 2 times a day. I took the first dose before bedtime and woke up this morning with NO burning at all! I feel fine so far...not tired or woozy.

    The drug is expensive ($130 per month) and I have no health plan because I am self-employed. But if this drug continues to do the trick, I'm worth it! :)

    My only question (which I will ask the doctor next week) is: does a person develop a tolerance for Lyrica and require higher doses as time goes by or will it work indefinitely?

    Would love to hear more experiences from you folks.

    Thanks for being here!

    Karen
  • Hi,
    As I am having another surgery and worred about the status of my job, my Mom recently told me about a new law that was passed where a company is now responsible for paying for at least part of your cobra expense for up to 6 months if a worker is laid off. I am sorry that I dont have all the details and I am not sure if this is in every state etc. but definitely worth looking into.
    Hope this helps.. Good Luck!
    Heather~
  • i was on lyrica and yes it was good for nerve pain ..but!! but!! i gained 3 stone in 3 months and that's a lot of weight ..and the worst was yet to come ..one day i woke and could not pee ..my body was full of fluid i could hardly breath! very scary ..of to the ED and the doctor took me of them .i spent all weekend peeing! and luckley i lost all the fluid but i a m still about 2 stone over weight and that was 2 years ago ..you have been warned!!
    STRAKER
  • do fine with the Lyrica. There are common side effects it seems alot of people have. I have been taking it since Sept '07, I took Neurontin before surgery & tried it again after being on Lyrica because I was up to a lg dose & it's expensive $300.00 the Neurontin was no comparison.

    I can say the loopy side effects are pretty much gone and thankfully I didn't have many. I still have concentration and short term memory issues which is probably the Lyrica combined with other stuff. Alot of people have swelling sometimes it resolves if you notice it around your ankles just call your doc if it starts to get worse. I've written on the boards a couple times the Lyrica is mandatory for me, my leg is just insanely painful without it and was tight and stiff. My mom in law loved it but couldn't take it, she did give it a fair shot though.

    pixie why can't they consolidate those doses? 6 times a day is an unusual order, just wondering? I have read that studies show there was no difference in improved symptoms between 450mg per day and 600mg per day. I only mention it because if you pay for it or lose insurance then have to pay you might ask your doc what his experience is with it. They make 75mg tabs, not sure if there are 100mg tabs but there are 150mg tabs which may make your life easier not having to take pills so often.

    katoo when you stopped the Lyrica did you stop other meds too? just wondering. Also I believe the taper part is for folks who take it for seizures. My PM doc said it can be stopped but every doc is different so definitely ask your prescribing doc.

    tawny I'm sure your son has had many tests but maybe a hematologist might be another avenue to explore if he hasn't seen one already. This is a specialist and some are in cancer clinics so don't freak out when you go looking for 1 it doesn't mean it's cancer, they also specialize in blood disorders.

    well here's to a relatively pain free day everyone!!!
  • whilst taking gabapentin/lyrica i did a car deal and ended up loosing 3k on a deal ..i never loose out on car deals ..i sold my lovely hyundai tucson for 3 k lower than i should !! all down to gabapentin frying my brain..i have now bought another tucson but its not a good as the one i sold!!
    STRAKER
  • I've been on the same dose for 2 years, but now I have become tolerant to it and will need an increase soon. It seems that a person can become tolerant to Lyrica, but I wouldn't worry too much about it as long as it helps and I am not a doctor, so I can't tell you the exact answer! Good luck! I hope it continues to help you!
  • Hi Tawny,
    I just wanted to say that if your husband finds a new job right away or if your employment offers insurance and you aren't on it yet,all you need is a letter from your current insurance showing credible insurance(meaning you were covered for the past year by an insurance company)then anything you are currently being treated for will not be considered a pre-existing condition.And like somebody else said,COBRA pmts beat paying the full cost of any treatment.What does your husband do for a living?I am in Northern Nevada and the mines are hiring...usually start out at around $18/hr with great benefit pkg.Just a thought. Take care,don't let the stress getcha....Sagehen
  • Kattoo, I have taken Lyrica for a long, long time. I have started and stopped cold turkey as much a 800mg a day. Yes 800mg's.! Other then maybe some depression I don't think the sickness you discribed was caused by Lyrica.
    Now, going from perc's to tram thats another story. How soon did you stop the tram after the lyrica? I ask because I stopped oxy's after my second surgery and stopping Tram was 10X worse for me. That stuff kicked my A*(*)(*)=?

    Tawny, Lyrica works great for many if you have nerve pain. Yes, for many it makes you gain weight. Yes, it will give you a buzz the first few times taking. However. If you continue to take the feelings will go away unless you continue to increase your dose.
    The problem is many like the feeling. So be careful!
    If you do take and gain weight try asking for a really low dose of Topamax also! that will help control the weight and help with the nerve related pain.
    I know some people don't like to hear it but that was the solution to control my weight while I take Lyrica. Since I gained avg. 5 lbs. a week and can't exercise because of my back injury.
    You just have to be careful of how many and how much brain meds you take.
    Hope this helps and I hope you all feel better!




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