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Hi-I'm new to the Forum my name is Jan

spunky21sspunky21 Posts: 161
edited 06/11/2012 - 8:26 AM in New Member Introductions
Hi everyone! :H
I am so happy I finally found a support system. I suffer from DDD, spinal stenosis, 9 months post op for anterior cervical fusion C5-6, C6-7. I have not spoken more than a whisper since the surgery. Have vocal cord damage to my rt. vocal cord.
Can no longer work after 29yrs 11mos. Hit my head at work and after all those years I found out who my true friend are. Pretty much no-one. I have a very supportive husband who is also disabled with a heart condition so I feel extremely guilty because he is now taking care of me. Finding it more difficult to walk everyday. I try to keep a positive attitude but I'm sure you all know its so hard sometimes.
I have nerve damage to both sides of my lower back and my left leg and left arm and hand. However, after seeing a truly unkind surgeon yesterday I was told there is no such thing as nerve damage. Gets very depressing. Anyway that is my story and I am glad to be part of your group. <:P
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Comments

  • :) hi and welcome to the forum! :H we are here to offer you support and answer what questions we can. please have a look around the different forums and make yourself at home. it is so great to find a place where others are suffering as you are. it must be very difficult with both you and your husband disabled. ~X( good luck as you search for pain relief. pay no attention to the unkind doctor. :T they are around unfortunately and must be looked at as in crisis themselves. i look forward to seeing you around the forums. Jenny :)
  • Jenny,
    thank you so much for your warm welcome. Right now I am doing exactly as you said. Looking around the forums and finding out for sure I am not in this alone. So many going through the same exact symptoms and pain issues. I think I found a great support group.
  • :) spunky21, hi! well where are you that you are up this time of night? i am sure your pain must make it difficult to sleep at times. i am glad you are finding that you are are alone. that can makes us feel so much better. Jenny :)
  • Welcome and I hope the old saying that a sorrow shared is a sorrow halved, is true for pain as well!

    You'll find all kinds of doctors in the world-but there are goods ones as well and you must find one. I know how hard that may be if you live in a small town. I had to drive 2 hours away from my home to find one I trust. Find yourself another one, one who specialized in botched jobs.

    Have you been to a pain clinic? Are you proactive in your own healthcare? The first doctor I saw told me up front that he can tell whos just looking for pain meds at the first meeting-so he's obviously passing judgement on people by sight! I did not go back to him even though he did not treat me that way. I just knew he was not the surgeon for me.

    But we have a duty too, to be completly honest and proactive in own health care because some doctors already judge us before they even look at our MRIs! It should be a crime that so many true pain sufferers are being judged by doctors because of the rampant drug abuse by those who use it recreationally, but that is what we are figting against. Next time have your husband with you and see if you get the same treatment. Write down everything a doctor/surgeon says to you too, you might need it down the road.

    Find a doctor who will believe you and who learned in school-that yes, nerve damage does exists! Have him say that to someone who is a parapegic!

    Please read my post about my cervial operation-without fusion however, but it will give you an idea of what a good operation might entail.

    Good luck and I hope your voice comes back-they say it often does in time and it can take up to a year! Hang in there-you are alive and there is always hope.
  • I am so sorry to hear of your difficulty. I have also recently become disabled and my husband has been disabled for about 9 years now so I know what you are going through. The doc that told you that nerves can't be damaged is a moron and should be immediately dismissed. You have found a great forum with lots of understanding and support. I will look forward to seeing you around the forum.
  • I have been a member one day and have gotten more support and information in one day than in many months.
    I do have a pain mgmt dr and he is wonderful. He knows the pain I am in and spends as much time as I need to discuss my problems. However, when the tests show something he of course refers me to specialists. The last surgeon I saw yesterday was the one who told me no such thing as nerve damage. My husband was with me and I think he nearly came out of his chair and wanted to speak his mind to the dr but he didn't. Some surgeons are very arrogant. The surgeon who did my Cervical fusion was the nicest dr ever but unfortunately the outcome was not the best. To be honest, I am at a point where I don't ever want another surgery again. I'm sure many of you feel the same.
    Thanks again for your support
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