I'm sort of new to this site, I've only posted a few times. But, I would really like to ask you all for your advice and info about your experiences. I'm not asking for any medical advice; I know the "rules" about that; [( I just need some ideas about how to procede.
In September, I had a PLIF L4-S1. I had this surgery after 2+ years of pain in my left hip area, along with pain/numbness which "traveled" down the lateral portion of my left leg, into my 3 smallest toes.
I did fine for a couple of months post op, although I kept having what I called a sense of "heaviness" in my hip area of my back, esp. on the left side. Then, about a month ago, I started having severe, excruciating pain in my left butt cheek. The OS told me it it was b/c that was the area of the bone graft harvest site. He gave me Neurontin and told me to continue my Soma, Pecocet, and Celebrex. The pain has continued. Now I have excruciating additional pain in my hip area, the exact same place I had it prior to surgery, only it is much worse. Before surgery, I could at least stand up for a little while and walk through a grocery store. Now I cannot walk to my mailbox & back without extreme pain. I also have the numbness & pain in my leg again.
The OS sent me for a myelogram & CT scan. The doctor there told me I have a "pinched nerve." I felt so relieved that something had been found to be causing the pain that I didn't question him any further about it. But, when I saw the OS the next day, he told me he doesn't see anything on the films nor in the report that would explain the pain I am having. However, the report that I have a copy of says something about a "vacuum disc phenomenon" (whatever the heck that is!) "at L4-5 and L5-S1." It also says "right posterior bulging/disc osteophye compltex L5-S1, left posterior buling disc L3-L4 associated with prominent left posteriolateral fat" (does that mean I have a lot of fat there?), "small left posterior protruding herniation L1-2 without neural compression", and "left convexity lower lumber scoliotic deformity."
One part of the report further reads "There is asymmetric decreased filling of the right S1 nerver root sheath. Best appreciated on the reconstructions, right posterior disc bulging/osteophyte complex is present. This is in conjunction with the medial aspect of the L5-S1 facet may slightly compress the S1 nerve root."
OK, my OS says he doesn't think ANY of that is causing my pain! However, I am now in much more pain than I was prior to surgery! I cannot sit very long or stand up very long or walk very far without excruciating pain. I have to sleep in a recliner, b/c the bed is just agony. I am now taking Oxycontin 40 mg 2x a day, plus Soma 4x a day, and Neurontin 300 mg 4x a day. NONE of it helps! It just zonks me out.
I am tired of either hurting or being asleep. The OS wants me to go for an ESI at L3-L4.....but I don't really want to do it, as all of the ESI's I had before did NOTHING to relieve any of my pre-op pain, which was no where near the post-op pain intensity.
Does anyone have any ideas or a similar experience? I just want to stop hurting and to be able to do all the things I had surgery to be able to do! ~X(
Your input is greatly appreciated!!