I am so pleased to have found this site. Looking at some of the intros I can see that many of you have been through the mill and deal with so many huge problems on a daily basis.
My problems are slightly different. For over two years I told my GP about the strange almost indescribable tingling that would wake me in the early hours of every morning. It was really unpleasant and made me squirm and wriggle disturbing my husband too. During the day I wouldn't notice it. However my spine cracks constantly (painlessly)and I have arthritis in both hands. I was tired and depressed, I didn't want to eat and had lost over 2 stones in weight. Finally one of the practice GPs referred me to a physio assessor who found that my reflexes were brisk and that I had limited neck movement. As I have also been treated for breast cancer she said she would arrange an MRI scan. She then rang me to say that she had the results of the scan and had referred me on to a neuro surgeon.
I attended the NS appointment. I walked into his room and he showed me the scan pictures on his computer. As a lay person I saw what looked like heart shapes all the way
along my spine. He said it was spinal stenosis and that it was widespread and that surgery wasn't an option. He referred me on to a pain clinic where I was given a letter to take to my GP suggesting I start on Pregabalin.
I take the drug now. I go back to the pain clinic in March
and that is it. I feel abandoned as a lost cause. My right hand and foot often go cold and my whole spine aches if I stand or bend for too long. The tingling still happens and my hands often feel numb. I have to lie flat in bed because if I use pillows I wake up unable to breathe properly.I have had no 'official' explanation. What I know I have found out myself on line. All I can see is progression to a wheelchair and then .....?
I was just looking to share experiences and maybe come across people with similar issues who know a bit more about this than I do.