I saw my neurosurgeon Friday and brought with me a ct/myelogram that I had had done about a month ago. It said in the report... "clumped nerves, possibly Arachnoiditis." I also brought an MRI that I had done in October. That said, "There's an abnormal signal on the S1 nerve root that highlights intensely." My neurosurgeon had told me a couple months ago (after seeing the MRI originally) that maybe after 6 months, he would have to wrap that nerve. (He was referring to the S1 nerve root.) There was nothing else on either test I had done.
Well, to my surprise, on Friday, when I asked him about this (nerve wrapping), he said he never said that. He then asked me where I heard that from and said that there is no such thing. My mouth dropped. The fact that he had said this back in Oct. or Nov. about wrapping my nerve got me searching the net for more info. I found things about Duragen, fat grafting, etc. I spent a lot of time searching and learning about the outcomes of these procedures only to hear that my doctor never said anything. Talk about humiliating! I'm so afraid that he will tell my family doctor that I'm imagining things or that I just want another surgery (which is crazy - who has time or money for more surgery)!
Anyway, I'm hoping for a 3rd opinion now from another doctor, since 2 have said they can't help me. At least the 2nd opinion doctor said I DID have scar tissue causing me pain. But he said he couldn't help. So..... onward.
I'm in physical therapy, which made me worse for awhile, but now I'm back to normal (normal pain, that is). And, yes, it's making me stronger, but the leg pain persists.
Anyone ever have a doctor say something like this to them? I know I didn't imagine what he said about wrapping my nerve. It actually made me a little nervous since I'd never heard of it before.
Any comments welcome!!