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New Member with need of advise!!

AnonymousUserAAnonymousUser Posts: 49,671
edited 06/11/2012 - 8:28 AM in New Member Introductions
I am so glad I found you all! I am 45, I have had 10 surgeries, first 6 were abdominal-hysterectomy to scar tissue. The next 4 started in 2005. L5-S1 literally blew on the tennis court. They did emergency surgery and removed the disk. I lost all feeling in right side until surgery was done. After surgery, I felt everything, but right foot, and right back calf. For a yr after 2005, severe pain in lower back, finally convinced someone it was "real" they went in and found a piece of the disk sitting on a nerve, they did a fusion l5-S1. Felt some improvement, for a yr. Still no feeling in 3 toes, heel, right back calf. Severe pain kicked in. Started with pain management. Put me on percocet, skelaxin, nerointon, cymbalta, ambien.

2006-loosing feeling in right arm, balance was off, knew something was wrong-pleaded to get x ray, or MRI. After MRI, they sent me directly to my surgeon. Three ruptured disks, C4,5,6 a wk later did 2 level fusion. Felt better, got some feeling in foot back. Arm pain went away.

2007 Emergency surgery, Full blockage of the small intestines from scar tissue from previous surgeries.

Today, 3/3/2009, Found out fusion in the neck did not take, why 3 yrs later, I am not sure. I went to all my appts after the surgery. Left arm is extremely painful, cannot lift, left hand is numb. Strength in right hand is very weak. I am starting to drop things. Still strong lower back pain. I am seeing chirop, acupuncture, PT, pain management, having another epidural, taking methadone 30mg (found this works on severe back pain w/o side effects) Two percocet for "breakthrough" pain, cymbolta, topamax. Arm, neck, back about an 8 on pain scale. They want me to go for surgery to "redo" the fusion. I DO NOT want to have another surgery!!! Any ideas?? Suggestions? New medications?

Thank you,


  • hi and welcome to the forum! :H we are here to offer you support and answer what questions we can. i am sorry you have been through so much!! :| i have had several surgeries for fibroids and scarring and know how painful that can be. i have no helpful suggestions for you but i do hope being around others suffering as you are will bring you some comfort. :D good luck as you seek pain relief! Jenny :)
  • I couldn't say whether you need surgery but if there's severe compression or maybe get a 2nd opinion or EMG saying you need to get more surgery. I'm sorry you've had a rough go of it and maybe this one will be the last? Best wishes. Charry
    DDD of lumbar spine with sciatica to left hip,leg and foot. L4-L5 posterior disc bulge with prominent facets, L5-S1 prominent facets with a posterior osteocartilaginous bar. Mild bilateral foraminal narrowing c-spine c4-c7 RN
  • I am so sorry to hear of your dilemma and I can definitely relate. I have not had even close to the amount of surgeries that you have and am very reluctant to let anyone near my back in fear of making things worse. I wish that I had an answer for you but I did want to welcome you and let you know that you will find lots of support and understanding here. Good luck and please keep us posted.
  • I also had a failed fusion in the neck and had a revision done. It was a long recup time, 2 years, to feel better. Surgeon still does not say that I am fused, I go back in April. Last fall I took my dog to the vet and my vet had the same thing happen to him only he did not have the revision and said he is doing fine. I guess it is a choice you have to make. My surgeon did tell me without the revision I would always be in pain mgmt. Well, I do have permenant nerve damage so will always be on some type of med's but I am not in pain mgmt thanks to a wonderful PCP.

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