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11 yr old w/ DDD, Stenosis, Bulging discs, Hemangioma

AnonymousUserAAnonymousUser Posts: 49,622
edited 06/11/2012 - 7:28 AM in Degenerative Disc Disease

My 11 yr old son was just diagnosed ( MRI ) with stenosis, DDD, bulging discs ( L4-L5 and L5-S1), and intraosseous hemangioma on the S3

he has severe back pain, numbness just above his left hip, and urinary incontinence. Going to see the Neuro again next week for further diagnosis and treatment ( hopefully).

I have had 2 back surgeries and still suffer from back and sciatica pain daily. will have my 2nd epidural shot tomorrow. My father, aunt and grandfather also had the same problems. It does run in families.

I regress...

This is really about my son. He has been having back pain for almost 2 years now ( meaning his problems began when he was 9 years old ). It has been extremely difficult to get his PCP to believe it could be anything other than a muscle pain. He told us that these kind of things just don't happen to children. I think the worst part of all of this is the lack of treatment for pain regarding children. Motrin and Tylenol do not help and as of today, not one doctor has been willing to address his pain. Perhaps they do not believe his pain level could be high... but he has told me that when you press his lower back, pain jumps to a 8-9 on a 1-10 scale and with activity his pain level is around a 6 or higher.

I am writing this to let others know that it CAN happen to kids.

I do have one question, does anyone have a Hemangioma and if so, how did the doctor confirm it was benign and not something else. On my son's MRI report it was stated that the lesion "appeared" benign. How do you know for sure?


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Comments

  • I want to cry for him, I guess this makes me lucky to not have real bad pain till I was 28.
  • Having just had two surgeries in January for the same problems - fusion and ADR - I am so sorry your son is sufferin like this. It's been a long, weary road for me and I am 41 so I cannot imagine what it must be like for him. I hope he gets some treatment soon x
  • He is Just a baby and I am very sympathetic with him. A child should not have to go through such a thing. I will pray for God to heal this child.Best Of luck.

    I thought I was young to have no injury. 27 year old female w/5 cervical discs pr0trusions. 2 steriod injections and no relief with very conservative medicine.
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