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Very Scared, frustrated, Need Advise Please

AnonymousUserAAnonymousUser Posts: 49,671
Hello everyone. I've been reading these boards for a very long time now. Trying to find what other people suffering do to cope and find answers. I am a 38 yr old woman who used to be so happy and vibrant, along with very active. About 4-5 years ago I was sitting at work, and could not get up out of my chair. My left leg was alomost "dead", it just wouldn't hold my body wirght up. ( i weigh 115 lbs). Went directly to my Primary Dr., and she sent me for Lumbar MRI, which didn't show anything. Many drs later, I have not found anyone to help me, and the pain is soooo bad. It started in my left hip and groin. Now it is my entire left leg. Mostly in my inner upper thigh region, very deep in buttock, runs down back & sometimes front of thigh. Pain travels up left side of back. I now get these strange electric shock-like pain out of nowhere to the left of my spine, but it's more in the thoraic area I think. Recent lumbar MRI(12/08): straightening of lumbar lordotic curvature, mild diffuse posterior bulge w/bilateral facet hypertrophic changes @ L4-L5 & L5-S1 levels. This never showed up previously. I'm going for arthogram/mri left hip 3/25. I had a total hysterectomy in 9/06, thinking it was female problems. I cannot live this life anymore. I no longer walk normally, cannot dance, ride a bike, nothing. I don't know what to do or where to go anymore. Percocet 10mg does not help, last dr. told me my pain is from the percocet? If I have one good hour a day, that's alot. Drving has become excruciating. Very painful getting out of car, and up from sitting position. Sorry to rant, have a lot more to say, still. I need help, advise, anything please would be appreciated. thank you so much in advance. Tracy


  • Darn it. I lost the previous post.

    Anyway, Tracy...

    I can totally relate to being in pain 24/7 and not being able to enjoy your life as you would like. Please press on to find out the options for you. I know that it can get frustrating. I have had the same pain over 1 1/2 years and finally had to get surgery for L5S1. Before that I was not taken seriously (except for my internist). I just got a lot physical therapy, ibuprofen, later--injections, ton of strong pain medications, chiropractic...

    I also have the burning pain in my leg except my pain starts in right buttocks and radiates down to my ankle. Sometimes the pain behind my knee hurts the most. Before the microdiscectomy, my foot felt cold. I guess it was from the numbness. I still have the tingling/numbness at night. And before the surgery, the pain felt like someone was taking an ice pick and jabbing in my buttocks.

    Just wanted to share my story to let you know that you are not alone. And most people do receive relief from various treatments, even if it is surgery.
  • I completely understand the pain you're feeling...I don't know how to explain it to someone who's never felt it, but it is agonizing, and scary. Have your Docs started you on ESIs or anything? I had five lumbar ESIs, and although a couple of them helped for a short time, they didn't do the trick. Or maybe an ESI in the facet joint could work. I guess what I'm asking is have they given you any sort of plan besides drugs? I was also very active and loved life before my injury. It's hard to reconcile yourself to this new sort of person, isn't it? A lot of my identity was wrapped up in being this super active, cycling, kayaking Grandma and mother of three. I even went to Alaska last summer for a 2 week kayak trip,unguided with my brother...it was fabulous! Now, I just look at my boat, bike, bowflex, the park where I used to ride and I want to cry. Sometimes I do. I've learned to appreciate other things, though and once I stopped taking Lyrica I got rid of a huge amount of depression. Keep pressing on, don't lose hope, and vent all you need to here! You're with a group who understands.
  • Thank you, Nancy. The reason I joined was because everyone here seems so understanding. I'm trying to keep my chin up. Sometimes, I just fall apart. Thanks again. Your words of encouragement help!
  • Welcome to the board.

    Are you seeing a spinal specialist? Sometimes people let their PCP or family doctor order the testing, and just go by the radiologist's report. I couldn't tell from your post if you are seeing a spinal specialist, or not.
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