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does you pain wake you ??

strakerstraker Posts: 2,066
edited 06/11/2012 - 8:29 AM in Sleep Problems
for the last 4 years i am only been able to sleep for 3 hours max .due to my back ache waking me up .i have to get out of bed and move {i normally come down stairs and have more pain killers and a cup of tea them try to go back to sleep on my recliner or sometime i will return to my bed.it starts by first i get hot then my legs are all over the place my wife tells me that i start moaning ! then my hands are rubbing at my lower back then i wake in awful pain .its a horrible way to sleep i have never had a full nights sleep since ....well i carnt remember! anyone else like this ??
STRAKER
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1

Comments

  • All the time, even after taking a Norco and muscle relaxer together. I wake up on average of 4 times a night and try my best not to disturb my poor husband. I always have to turn on my lamp because I refuse to take meds in the dark. The worst thing is laying around in pain in the dark, trying to fall back asleep. I'm too lazy to get up and go in the living room and watch tv. This is a daily, I mean nightly ritual.
  • usually around 3-4am, with a stumble across the hall to gp potty for added fun! :^o ...then it's back to bed, take another pill, channal surf, (oh the joys of late nite cable... #o )and try to get a couple more hours of sleep before waking the kids up for school :''( 8} #:S ...the joys of being spiney i guess :D
  • dilaurodilauro ConnecticutPosts: 9,587
    Straker, I think you will find this pretty common with people have been dealing with chronic pain for a while.
    Sleep is so important and can be a great ally when it comes to help deal with spinal problems.
    Most nights I get a few good hours of sleep, then wake up mainly because my arms and hands go name, my restless leg syndrome has me dancing all over the bed.
    So many nights I wait to real late to go into bed, and hopefully I will get 2-3 hours of sleep. Get up, go into the TV room, sit in a recliner and watch TV and use my computer
    The nights I get over 6 hours straight sleep is using because of uing ambin.
    Ron DiLauro Spine-Health System Administrator
    I am not a medical professional. I comment on personal experiences
    You can email me at: rdilauro@veritashealth.com
  • Hello,

    I am sorry to hear about everyone's sleep problems. I am about 10 weeks post op and seem to be in the same boat. I have to admit that my problem has more to do with falling asleep rather than staying asleep. I cannot seem to sleep during the night and like many of you my mind continues to wander. As I am sure you know, lack of sleep escalates pain levels and makes it very difficult to heal. Failure to sleep at night can be a lonely and depressing journey.

    I think it is important to stay occupied even if it is with the television or computer. Maybe reading a book, stretching, or even going for a walk might help - I have done all of these things. Any sleep specialist will tell you that laying in bed for more than 30 to 60 minutes without falling asleep warrants getting up and trying to "consume" oneself with some other activity until perhaps you can sleep. Of course, I realize that this is easier said than done and I don't trivialize others pain conditions that make this near impossible.

    I have an appointment with my PCP soon and wanted to discuss any meds that may help in my falling asleep. Dilauro already mentioned Ambien as have others I have met. Any other suggestions or success stories in this area?

    Best Regards,

    Josh
  • j.howiejj.howie Brentwood, Ca., USAPosts: 1,793
    If my meds are changed. Or if I'm some place other than my own home.
    At home it is more consistent with sleeping patterns. I go to bed late and can usually sleep 6 or 7 hrs. And that's not enough for me. So I take a nap in my 0 gravity recliner In the mid to late afternoon.
    If I am woke up from pain and I've got less than 5 hrs. I'll take a pain pill and try to go back to sleep.
    But with out a doubt sleep deprivation will cause many problems, so if I get shorted I will take a Ambien the next night.
    When I'm out of town, Ambien is almost a must!
    Good luck, Jim
    Click my name to see my Medical history
    You get what you get, not what you deserve......I stole that from Susan (rip)
    Today is yours to embrace........ for tomorrow, who knows what might be starring you in the face!
  • Even on meds, I wake up when I roll over in bed. My wife told me I groan every time I roll over also, wasn't aware of that. On bad sciatica nights that will wake me up also. Ron has it right when he says he is dancing all over the bed!
  • you jay! my wife has a running commentary for me in the mornings of just how much moaning i do before i wake ! its a shame that we carnt even escape from our pain through sleep .tonight {Sunday} i am going to try sleeping with my acticare on low ..lets see if this gets me more than 3 hours ..if not i will be posting again at about 4 am !
    STRAKER
  • dilaurodilauro ConnecticutPosts: 9,587
    I think after looking at the past 10 years or so, I have to say that it is generally nerve pain that wakes me up. It could come in the from of Restless Leg Syndrome, or just in the tingling numbness different parts of the body sorta of take on.
    Two, well three solutions:
    1- Get up and walk and walk and walk until you are tired to go back to bed
    2- Take whatever medications you normally take for Nerve problems or RLS.
    3- The Gambler. Hands around a snifter of Henessey XO or even better a vintage old port that England has stashed away.
    Ron DiLauro Spine-Health System Administrator
    I am not a medical professional. I comment on personal experiences
    You can email me at: rdilauro@veritashealth.com
  • I take serax(oxazepam) 30 mg and it makes me sleep for up to 12 hours sometimes. zopiclone also worked for me. This oxazepam put me to sleep in my chair twice and ended up on the floor. I should know better one hour after I'm asleep. It makes me snore though but sometimes it's worth the pill. I also have vivid dreams at times. Good luck and hope you can get some decent sleep. I used to go to work on 3 hours of sleep. No wonder my back gave out on me. Take care. Charry
    DDD of lumbar spine with sciatica to left hip,leg and foot. L4-L5 posterior disc bulge with prominent facets, L5-S1 prominent facets with a posterior osteocartilaginous bar. Mild bilateral foraminal narrowing c-spine c4-c7 RN
  • May the day when everyone is able to sleep through the night hopefully comes soon. I had days like that after surgery - felt painful and tired but can't sleep. I would walk to the kitchen, around the house, and up and down the stairs. Heck, I could just jump on the treadmill and walk. I'd drink a cup of hot water or warm milk, walked till 3 a.m., and then wiped myself dry, then head back to sleep or exhausted out at the recliner. No meds helped me at all.
  • i got woken up at 4 50 am with leg pain and back ache even with pain killers and acticare and sleeper .i am back on my recliner ..again ..!! i just hope that i will get some sleep on here
    STRAKER
  • j.howiejj.howie Brentwood, Ca., USAPosts: 1,793
    And other sleep aids won't work if you're using them every night, like anything else you build a tolerance to them and they become ineffective.
    But they are meant to put you in a sleep mode. Not meant to be a long acting pain reliever. And it's pain that wakes us up once we do get to sleep.
    So by trial and error we need to find a long.....acting pain reliever that won't keep us up. We are all different and react differently to long acting pain relievers.
    And that is the horse Before the cart. Finding a long acting pain reliever that wont keep us up. And allow us controlled pain relief through the nite.
    Good luck, Jim
    Click my name to see my Medical history
    You get what you get, not what you deserve......I stole that from Susan (rip)
    Today is yours to embrace........ for tomorrow, who knows what might be starring you in the face!
  • its down to 2 hours now then i am up with a numb leg a burning foot aching hip and evil back ache ..is this it>> ?? it sucks!!!!!!!!!
    STRAKER
  • But are you making sure that you are properly hydrated? I cannot sleep more than an hour or two before my legs wake me up if I am not properly hydrated. If I hydrate well, especially before bedtime, I can get a few hours of decent sleep, get up and use the bathroom, walk off the current pain and then go back to sleep for another couple of hours.

    It really makes a huge difference.

    "C"
  • 6 pints of water a day and i dont drink alcohol
    STRAKER
  • i have just been woken by such horrific back ache its taken nearly a full days pain killers to get it under control {and the worst thing is i have rang the emergency doctor and all they said was chronic pain was not an emergency and just take your pain killers then go and see your own doctor in the morning{i only went last week and he already knows the situation!}so much for the caring {NHS!!} i know that i wake in pain every night but its evil this morning {i did go for a swim a few hour ago maybe that flared it up} than god for pain killers!
    STRAKER
  • So sorry to hear your pain is stil very bad. Have you heard anymore on your upcoming appointments?
    Kelly
    APROUD CANADIANveteranButNOTa doctor, my thoughts are my own
  • no ..nothing yet ..long gone are the days where the doctor rang the hospital and arranged for you to be seen ASAP now its all taken from the doctors hands all he can do is write a referral and the girls in the office send it to the hospital and then it ends up on the desk of some none medical trained to sort it out and give it to the neurosurgeon with the shortest list then the surgeon will look at the referral and then decide when or if he want to see me if he decides that he dose not fancy looking at me it goes back into the system and i will be passed around ;like a lap dancer at a stag party until someone if forced to take me on ..this could take up to 6 months!!!!!!!!!!!!!!!!!!!! its madness i rang the hospital concered the other day ..and because the man that did my last operation has left i have gone into the world of none urgent cases and as i have already had 2 operations and countless painful producers on my back and i am still in pain the surgeons are reluctant to take me on ..its just not right ..if i had loads of money i could be seen next week and operated on the week later but that would cost somewhere in the region of 30 thousand pounds {my last back operation cost 25 thousand pounds payed for from the NHS in the past i have spent thousands having private consultations and MRI scans but even if i did have a few thousand spare ..unless i could afford a full operation the surgeons are reluctant to go part private .so its all or wait for ever! the system is overloaded and is failing .and its coming to the USA good luck
    STRAKER
  • i have just been woken by pain in the legs and back {i have been in bed for 50 minutes!! and i have been having horrible dreams ..so i carnt even escape my pain through sleep ..its just not fair !!!
    STRAKER
  • Hi Straker... have to say I'm in the same boat.Sleep till 3am them the nerve pain inboth buttocks is making sleep impossible.I top up my oxynorm 3-4 times a night now ad KI'm on 1200mg gabapentim 3 times a day and 30mg amytriptilene on top of my oxycontin.I'm now at the end of my rope and am hping my neurosurgeon can give me some answers when I see him at the en d of the month.My pain at night is 8-9 /10 .Had 6 admissions to hospital now since start of august.Nead a bigger house for a recliner- now thats expensive!lol
    Karen
  • Hi Straker... have to say I'm in the same boat.Sleep till 3am them the nerve pain inboth buttocks is making sleep impossible.I top up my oxynorm 3-4 times a night now ad KI'm on 1200mg gabapentim 3 times a day and 30mg amytriptilene on top of my oxycontin.I'm now at the end of my rope and am hping my neurosurgeon can give me some answers when I see him at the en d of the month.My pain at night is 8-9 /10 .Had 6 admissions to hospital now since start of august.Nead a bigger house for a recliner- now thats expensive!lol
    Karen
  • sorry that you are in a bad way after your operation .have you tried a memory foam topper for you bed? it may help you sleep a bit better also sleep with a pillow in between your knees
    STRAKER
  • Hi Straker, sorry for you and Karen- It grates on me at times too.

    I have had some pain migrating to my knee, sometimes terrible swelling and then the next day it is gone. Wierd stuff.

    The pain that goes with this has nothing to do with my back, as far as I know, so its a little frustrating. T

    This has been the stuff that wakes me at night, acute stuff and the back is kind of in the background, but still boethersome.

    If I try to let it go, it receeds, but there are times that it is in my face - like a truant child, demanding attention and I dont want to give it that much thought. The more I fight it the more it screams. If I focus all of my attention on it, the pain, I have founf that it may stop screaming at me. If it lowers a bit, I continue to pay attention and this has in the past disapated the pain, so it drops its loud voice. It does not always work, but it does enough for me to keep trying it!

    Hope you got some rest - C45
  • Sleeping sucks! Catch 22, I wake up from 1-3am everynight. Lay there awake from the pain or take pain med's and lay there wired! Hope it gets better I have to go back to work soon.
  • Ever since my back injury I have struggled with night time. I wake up numerous times during the night b/c I hurt so much. I usually take one muscle relaxer and a pain pill before I go to sleep but after 4 hours or so, I'm up and in pain again. I refuse to take more pain meds at night just b/c I don't like to. I'm wondering if a med. for sleeping might help me out? I have 3 yr old twin girls so it's not possible for me to sleep in, or get 8 hours of sleep either, so I guess that's where my problem lies. What do yall think?
  • Oh my, I remember my daughter at that age.- maybe a little older. Mt back was killing me and I laid down on the couch, to rest, I fell asleep. Well, she grabbed an apple out of the fridge and went out to the nieghbours house and sold the apple to them. It was a sweet elderly couple. A bunch lived around us at the time. I never knew that she did it, until a couple weeks later when the nieghbour told me about it.

    It scared me! And I was not on meds.

    I use long acting meds to make sure that I rest through the night. History of using them for 3 years, lets me know that I will take them at a certain time and wake at a certain time. If I have to take anything extra, history also allows me to know when I must take them, so they have passed from my system by morning. I know that I need to get as good a sleep as I can, so I can be my best -the next day.

    C45
  • went to bed at 11pm last night .up with raging back ache at 2am back to bed at 4 am {then my wife was telling me this morning i was moaning and close to crying again and my hands were buried in my back scratching }evident by the blood under my finger nails and the blood on the bedding this morning .o the joy of having intractable pain then this morning iam ratty and knackered you just carnt win ..then i am worried about this ADR thingy do i or don't i?? big question why carnt life be simple??
    STRAKER
  • hmm, lay down, toss, turn, ughh, toss turn ughhhh, you get the picture. get up go outside, find the dang purrrouwing feline, give said kitty the treatment, ears, butt, chin, then long petting. reward? a furiously vibrating kittehh! the long term effects of sleep deprivation are rough, dont add to quality of life one bit, ambien...i forget
    try to clear my head of the daily residue, go all zen/mantra and stuff. play my x-box,read, music, then get up to face whats left of the world at 5 am every day. good luck to you!
  • obtain sleep by all means i know .including spending a fortune on expensive beds and recently expensive extra memory foam toppers and mattress protector etc but i have wasted my money !! no one can tell me why i can go to bed almost out of pain and ready to sleep but after three {at the most} i am up with evil back ache..my wife on the other hand could sleep on a washing line with a hurricane blowing!!.we just have to face the fact that we can't sleep ..what i do is grab my memory foam pillows and come down stairs ..take pain killers..put acticare on ..have a cup of tea and get on my recliner and try to get some sleep ..
    STRAKER
  • Oh what I would do to have even 3 hours sleep. Have tried all the usual but not some of the drugs mentioned. Will ask doc. if there is a chance to have an occasional few hours of "good" sleep.That rotten pain is the culprit to waking me -yeah with the moaning and ugly crying with it. Make myself get out of bed and move, hoping to escape the evil monkey on my back. Take a hike to the bathroom and re-heat the heat-pack, usually accampanied by my version of "singing" (whining, moaning and crying). Lucky my hubby is a heavy sleeper (separate bedrooms now) or is on nightshift. Then to my trusty recliner and use my TENS and try to get comfortable. Thank you for making me realise I could do better for myself with getting better rest. Shall discuss this issue with the doc. Feel empowered now to "do better". Thank you- Hugs n' Loves - Paula
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