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Movement Disorder

AnonymousUserAAnonymousUser Posts: 49,671
edited 06/11/2012 - 8:29 AM in Chronic Pain
For months I have had muscle spasms & twitches on a daily basis. The worst is when my body locks up in spasm and I can't move. It looks like a seizure, but I am completely awake. I saw a neurologist and they said I have a movement disorder that has developed as a result of changes to my brain chemistry from chronic pain.

Has anyone had simular experiences or heard of this happening? I'd appreciate any feedback as this does not make sense to me...


  • I guess I should have given some history with my origonal post. I have had back/leg pain for 6 years. Last April I had a IDET on the L5-S1 disk. My diagnosis was torn disks L5-S1 (large tears) & L5-L4 (small tears). Post IDET, I have increased pain and muscle spasms. Repeat MRI shows nothing (negative), PM Doc does not know what is causing the pain.
  • I hope your doctors have ruled out medicines? Some of the nerve medicines they give for pain have this as a possible side effect. I have been on several over the years that caused minor twitching around my eyes and lips, very annoying.

    I hope they have a plan to investigate your condition and help you!

  • I asked if meds could cause this and they said no. I am still not convinced they have the right diagnosis, but I am sick of fighting with doctors. Amrix 30mg helps some. I also take Oxycontin 30mg. Percocet 10mg and Mobic 7.5mg
  • Some times you have to take a breath before you resume the battle. We often are our only assets when it comes to our own war on pain and problems. It is wonderful when someone helps or we find that perfect doctor, yet that is not always the way it goes.

    You may have to keep fighting! Sometimes the battles seem long, listen to me, eh, read my signature, I'm still fighting.
    yes it is indeed tiring. The choice to stop would be painful forever.

    Please, know you are not alone.
  • I know I have to keep fighting the battle, though it is very fustrating sometimes. That is why I come here and read the posting. It reminds me that I do not suffer alone, and that helps alot. I am looking for a second opinion, and see what they say.

    Thanks for your words of encouragement!!
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