Friday, 17 April 2009
I also posted this under "Depression" in the regular forum because I am very depressed about this, and very frustrated!
I may be jumping the gun here, but I can't get anyone to look at my MRI, or give me a report.
Yesterday at noon I had a one hour MRI. The first 45 minutes were without dye, the last 15 minutes were with dye. The MRI was looking at L4-L5 and L5-S1 that showed damage/compression/arthritis in an X-ray from about one week ago. I have ALL symptoms of Cauda Equina Syndrome, and nothing is getting better. The symptoms started about 3 months ago. 6 months ago I had bi-lateral TKR (Total knee replacement) and recovered beautifully. The nerve pain started about three months after my surgery, and both knees on the outside are totally numb. My left leg is the worst, with pain in the calf and foot. It is not the sciatic nerve; I have suffered from Sciatica since the mid 70's, and know all too well what Sciatica feels like.
They did blood cultures to see if I had any infection in my blood that could be leading to the swelling in the knees. The results of the blood tests are back, but I have no idea what they are.
My regular doctor's appointment secretary phoned today to tell me that he would go over the results of my MRI on Monday, 20 April 2009 and he had not looked at the MRI/blood results yet. I told her this was unacceptable.
I phoned my orthopedic surgeon who I originally went to for the potential CES. He is not only out of the office with the rest of his staff, the front office told me that he could not do anything because my regular doctor ordered the MRI. I explained to them that the MRI people told me that the MRI is on the computer for anyone to look at, and since it is potential CES, they made sure to post it immediately.
How do I get someone to pay attention to this? I have left complaints with both my regular physician's office and orthopedics' office. Do I just wait until Monday at 2:00PM when my regular physician (who is not a neurologist) gets around to reviewing the MRI? Do I assume "No news is good news?" This has me very depressed because I have been told CES can be dangerous.
Plus, the nurses, MRI people and even my doctor's assistants keep asking me who my Neurologist is! I don't have one!
I live in southern Oregon, and everyone except the MRI staff at the hospital has not heard of CES.
PS...This system never tells me when I get messages, so I will check back.
Duplicate post deleted... Ron DiLauro , Spine-Health Administrator 04/17/09