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urinary retention after surgery for caudal equine syndrome
Hi everyone, I am new to this forum. I would love to get some advice from anyone who has a similar experience to me.
I have experienced mild-moderate buttock/back pain on and off for over a year. It was nothing woth going to the docs about although i did go to a sports physio, who diagnosed periformis/sciatic nerve problems.
9 days ago i woke in the night to wee (I am 14 weeks pregnant, so weeing in the night at the moment is normal! When I tried to wee, a little came out but not much and it felt numb and odd. I knew something was very wrong. That night my back pain was much worse than ever before and I could not find a pain-free position, i also noticed that my bum and saddle area were very numb.
In the morning i went to the doctor, who (after some pressure from me) referred me to A and E with a letter to the spinal unit headed "suspected Caudal Equine syndrome".
Once assessed in A and E I was sent for an MRI scan and the results showed a large slipped disc at the bottom of my spine, which had broken off and was compressing my nerves.
They operated straight away and I had to have a general despite the risk to my baby.
I had a catheter in after the op but it was removed 2 days later and I still had as much bladder retention as before the op. I am still numb along the crack of my bum cheeks and down the inside of one thigh. I was given a second MRI scan which the doctors reviewed and said that i had "post operative nerve inflammation" and that my bladder would improve overtime. I was told this could take up to 2 years but worse case scenario might never.
I have been sent home with a catheter and told to wait for an outpaitents urology appointment, which i haven't got yet. My bumis still numb but i have no idea whether my bladder is any better.
I am only 32 and the prospect of living with a catheter forever scares the hell out of me.
I would love to speak to anyone who has had similar experiences to me, with good or bad outcomes. I would also like to here from anyone who has dealt with long-term bladder retention and what method/treatment they have been offered. Thanks for reading this.