hello i am patricia, new to all this forum stuff! no time usually as i work for NHS here in england. i am asking for specific questions about outcomes following axiaLiF and wallace ligament.
these procedures are fairly new in england to the masses anyway.
i was a nurse and got first back injury 20 yrs ago, after 3 week traction yes it was still around in those days) i made a full recovery after L5/S1 herniation. Over the years i have had flare ups some worse than others, but recently the gap between was getting shorter and flare ups more painful, but i did everything, the exercises, etc and got better never really taking a day off although i can work at home.
however on celebrating being in the final for a top health service award in UK, i toook my team to London for the final dinner and results show. thats when it all went wrong and i fell down a tiny step in high heels whilst going to the toilets, i wasnt drunk, but must have done another disk at L4/L5. it all went down hill from there and i went through hell with pain finally conceeding that i couldnt work anymore after 2 months of very bad pain.
look i know i work in NHS and i can get access to what i want when ever but you do still have to need it and pass the entry criteria. MY MRI scan showed the extent of damamge to spine- the first one ever. still i thought it would pass and i would be back at work within weeks.
after a vist to spine surgeon in local hospital he offered surgery as my only hope now and he would do some new procedures . i didnt dissagree with the surgical options, but wanted to check out if there was a better surgeon who had some published outcomes. It was after the second visit to accident & emergency in 999 ambulance following severe uncontrollable pain that i realised that my friend and colleagues at the local hospital cared so much about me that the choice of going elsewhere was not an issue, after all i was a commissioner of health services in my area and they certainly wouldnt let anything bad happen to me, how would they ever face me over the negotiating table again!
i went through 3 months of hell with pain( i wont go into details as its so boring now, but suffice to say 4 visits to surgeon, 2 visits to A&E,( ER) 2 999 ambulance rides,2 epidurals & facet joint injections, almost daily conversations with local general practitioner( family dr for you lot in USA) and 2 x use of 24hr doctor service and carrier bags full of every drug that i had been offered.
29th april - 6hr surgery for axiaLiF and Wallace ligament and bone grafting. thats 2 procedures done after each other.
a few problems in operating theatre, again too boring to go into now, but those guys must have been sweating ( i am an ex operating theatre manager so know the stress when things dont go quite to plan.
anyway woke up with no pain and that has pretty much continued for last 3 weeks. i get a few niggles if i sit too long, or walk too much, but just take a couple of minor analgesia tablets per day.
has a miracle happened?
what can i expect for the future?
will it be this good for ever?
these procedures are new in UK and there is no published UK data at all.
what do you all think, , what experiences do you have, i want to try and put some patient experiences together ( not just clinical)
i have read and i know that spine surgery is not always very successful, which is why we dont do much of it in UK and why new stuff is not funded and also i want it kept in centres of excellence where the experts, teach and learn .
i would be greatful for some information, papers that you might point me to and any personal experiences and if there are any UK patients there perhaps we can look at forum like this in UK.
many many thanks to anyone reading this.