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New and need info

AnonymousUserAAnonymousUser Posts: 49,662
edited 06/11/2012 - 8:31 AM in New Member Introductions
Hi new here and can't seem to find the info i'm looking for hoping someone can help point me in the right direction. I was born with a defect of the l5 and s1 fused. all I can seem to find is info on this being done through sugery and not a defect. I have been suffering non stop for 3 years now. I have had x-rays, cat scans and bone scans and this is all they can find that "may cause the pain". so what they are really saying its either that or she is crazy. I have seen a specailist and waiting to see another the only thing they keep telling me is I should go to phyiso but thats not an option anymore. after going to phyiso it got worse. I have pain in my lower back and feels like pressure on my tail bone. the pain goes through my but and into my leg. I know i'm not crazy and my doctor knows i'm not but getting pain meds is a real hassel. the strongest she will give me is tyneol 3s and they are not enough. I only get enough for 2 a day. I'm a stay at home mom and have 2 kids one being a toddler it makes things difficult when they say well you just have to accept your limitations. ?? are they kidding? I have a toddler and another that goes to school. despite how I feel they still need to be taken care of and fed ect. I would really like to understand whats going on I didn't even know I had this defect and went through many years just fine and now this? sorry so long but I have no one who understands that I can really talk to my husband is not so understanding and thinks that I just don't deal with pain well despite last year when I had a hysterctomy and was up and going full force the next day.grrrrrr frusterated!


  • Thanks hope to hear from them and their experinces and see if anything they have found to help can help me to as of yet I got nothing. sometimes I feel like a experiment by doctors. another occurance seems to be that when I'm in pain the muscle above my knee twitches. very anoying and has lasted for 3 days straight!
  • hi and welcome to the forum! :H we are here to offer you support and answer what questions we can. you do sound frustrated and i think you have every reason to be. :? remember, you know the pain is real.. many times doctors will try that one when they can't figure out what is wrong. don't let them make you feel anything but like a pain patient trying to get help. and not getting any meds is really sorrowful. :''( it might make your day so much better to have adequate pain medication. =D> have you tried another pm? good luck and i hope you find the info you need. :D Jenny
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