Okay, i am about to have my third spinal fusion surgery.
My first surgery, was a major operation. I was told it was the longest operation in children hospital history of milwaukee. I have a basketball size tumor in my sarcum/pelvis area it was called MPNST. The spinal fusion was s1 s2 l4 l5.
The surgery left bad nerve damage in my back and left foot/leg. I have burning/tingling/electric shocks all the time in my left food if i dont take my meds.
My second surgery was to replace the whole fusion. They replaced it.
I have now come to find out, that the second surgery has done more damage. It left my back curved because the spinal fusion failed. Has this happend to anyone else. Where it left your back curved. They told me that it is going to put more and more pressure on back/fusion and will cause me more pain. My doc told me I can decide when to have the surgery or if to have it at all and just to tough out the pain. I think I should have it. But he said that they will need to move the spinal fusion up, because the back is curved. So I assuming its going to be a l3 l4 l5 s1 s2 surgery.
That to me sounds very very big and complicated.
The first two times my docs didn't want to use BMP, because of my cancer history. However since it has been 3.5 years, they are saying they can its up to me. I have done research online and it said that 5/175 people got it, and they developed bone cancer. My cancer came from NF. So i think i am in the clear for that.
I am just so worried that my spinal fusion will keep on failing and failing, and that it will never fully fuse. Because of the damage that was done during the first cancer removal operation. Are there any new techniques that are being discussed.
Did any of you ever have your back get worse from a spinal fusion where the back curved?
I know its a long post, I hope I did not confuse you!