I feel like I have hit the jackpot with this website and these forums. I've been lurking for the past few days. Just came back from my neurologist and felt the need to go ahead and register and introduce myself.
I'm 46; married 25 years; two kids - DS18 and DD14.
In June 1994 at the age of 29, I had a ACDF on C4-5 due to herniated disc. Was very young and naive then, but was told that surgery was necessary as part of disc was nearly torn off.(????) Had horrible pains in right arm for two months. Once I had surgery, I was pain free! Wore soft collar for a while. Went back to work in 6 weeks; all good!
Fastforward to Oct. 99; whole right side went numb at work after weeks/months of hands and feet getting numb. Dozens of MRIs, EMGs, other tests to rule out MS, etc., was told I had fibromyalgia. Yet cervical MRIs showed continuing degenerative disc disease, spinal stenosis, osteophytes, lateral recess impingements, etc.
Company put me on LTD; got approved for SSD. I also have Crohn's disease, along with all the above!! (Getting SSD was a blessing from God. I can't explain it any other way.)
Over the past five years, I've done fairly well. I just have to rest after too much exertion and make sure I get good sleep.
The last two to three months, I've noticed increased numbness, tingling in both right and left arms, hands, and particularly ring and little fingers. I also noticed tingling sensations down both arms when I cough!! This scared me so I went to my neurologist. He initially thought it was just an ulnar nerve issue. We did an EMG today and now he's scheduled an MRI because he things its more than ulnar nerve. He said he things it's spinal; C8/T1 related.
I'm waiting to schedule my MRI and I have to go back to neuro in two weeks for results.
I know there's nothing I can do until we get the results of the MRI....but I'm scared that I'll need surgery again or worse that I'll become completely immobile or something. But, I've read many of your stories and feel reassured by your them and by your courage!!
Thanks for the reassurance. I'll keep checking things out and will post updates when I know more!!