Has anyone had relief from Occipital Neuralgia with a SCS - and if so, was it apparent during the trial, or later with the permanent? How high were the permanent leads placed?
My husband is in the middle of a cervical SCS trial. The leads were inserted up to around C-2. He has had years of debilitating neck(C6-7), shoulder, arm, and hand pain. However in the last year he has also developed occipital neuralgia that is sometimes severe migraine-type nauseating pain, and other times just occipital pain and constant headache.
He thinks the SCS may be helping the shoulders, arms, hands some - but the occipital pain is still so bad, it's hard to think of anything else. It's overiding all the other pains.
The PM said they may be able to go higher with the leads with a surgical implant by neurosurgeon & possibly help the ON - But of course no way to assess during the trial, and that is the problem with making the permanent decision.
His basic feel for the device is that if it's turned up enough to feel any effect, it zaps him constantly every time he moves at all - even an arm or hand.
The rep reprogrammed yesterday, so that the neck region is receiving more stimulation, and my husband is able to do a lot of adjusting - the width, rate, and amplitude of signal. However, there is still not much neck coverage.
Leads have to come out Friday morning. I've tried to go back and read relevant posts, but I'm sure I've missed things.
Thanks for any and all input,