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Spinal Cord Stimulator a TOTAL failure

AnonymousUserAAnonymousUser Posts: 49,662
edited 06/11/2012 - 8:32 AM in Back Surgery and Neck Surgery
What an awful day.

My close friend of 30 years had a Spinal Cord Stimulator surgically implanted into her back early yesterday morning.

It (the Stimulator) had to be removed last evening because my friend is in a state of paralysis below her breasts and without use of her left arm.

The doctors are stating that it was (1)unexpected swelling in the spinal cord tissue that was the major cause. Also, that (2)several weeks of intense therapy are going to be required if any motor functions return.

We, meaning friends and family, were expecting the couple to return home today, 150 miles, and continue with recovery.

Now everyone is lost and do not know what to do.

Any advice on what to do or where to go is appreciated. I am considering suggesting John Hopkins in
Baltimore or Harvard at Massachusetts General in Boston for in-depth assistance with this for my friend.

Thanks so very much.


  • I am so sorry for your friend. I know a lot of people have these things implanted and do very well, but when I was offered one, I said NO THANKS! You couldn't get me to agree to have something implanted next to my spinal cord like that for all the tea in China.


    3 level spinal fusion, L3/4, L4/5, L5/S1, November 2008. Stiff, but I can walk.
  • I hope she recovers fully. I know many people who have them with no complications at all.

    Let's pray they figure out what caused it and it clears up soon.
  • Hi everyone. Today has been going much better for my friend. She has some feeling and movement is returning. We are a little relieved that there has been an improvement.
  • glad she is improving. My trial and placement procedures were very difficult to my major scar tissue from 3 surgeries, but I didn't have anything go wrong. Is it possible the doctor hit the spinal cord or nerves? It would be very easy to do. Has she had a lot of surgeries? Scar tissue really can make it difficult.

    Was she having percutaneous leads threaded up her back or was it paddles leads, which are sewn after the doctor removes some bone?

    And finally, did her trial SCS go well?

    I hope she continues to get better. So sorry this happened.

  • My pain conultant tried to implant a spinal cord stimulator on the 20th July this year, he tried put in place percuntaneous leads which he managed to get into my left side but couldn't get the second lead in because of complications from scar tissue from previous spinal surgery. I have had several surgeries and from L1 to L5 are now fused and I have had laminectomy, decompression and instumentation to the 5 vertebrae. Unfortunately my stenosis is now in T9, T10 and I also have three trapped nerve roots (L4 on my left and L3, L4 on my right).
    Has anyone any knowledge as to how the Neuro Surgeon decides where to place the paddles to give the best effective control to cover the areas of pain and spascisity. When they use the leads you are sedated but awake so you can say where the placement of the lead works best, but they use G A when operating to place the paddles. I would really appreciate any comments - my heads in a spin

  • major issues from L1 down and the dr plans on inserting mine at T10. i believe they try to place it in an area thats in good shape...no surgeries.
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