Since my surgery in January 2009 (removal of L4-S1 discs and both levels fused) I have been experiencing a lot more pain. My feet and toes go numb, burn, and tingle on top of straight out hurting. The numbness, burning, and tingling will spread up into my ankles, and legs; it's really bad when it gets up to my hips. Originally the sensations in my feet would spread to my ankles sporadically. Over the last few months, it is pretty consistent for these sensations to go almost half way up my calves and shins. Not fun. My neurosurgeon has no idea; PMs just keep shoving more pills my way; and everyone says that it's too early to know if this is permanent nerve damage or not.
In the process of dealing with pretty significant pain on top of the migrating sensations in my lower extremities; I have been unable to work since October 2008 and have had to leave college. Realizing that I am not able to fulfill my dream of becoming an elementary teacher has been difficult for me; I only had one year left.
In the last month, I began experiencing extreme stiffness (only word I can think of) in my fingers, knees, feet, toes, etc. Every joint of my body below my chin. My knees have begun hurting as the right one did in the past which resulted in arthoscopic surgery twice; the other knee has never bothered my like this. I have burning sensations from my shoulders to the ends of my fingers, numbness, and tingling as well. It's not consistent; one minute it's my right forearm, wrist, hand, and fingers along with my left elbow and shoulder.
I'm also having what I think are severe muscle spasms in my shoulder. My neck and upper T area hurt; sometimes I can't do a simple head roll when I'm trying to do mild stretching to work the stiffness out of my neck. And I hurt in these areas too.
The other night my husband noticed my thumb and ring finger doing a type of twitching in my sleep. He said it wasn't a normal twitch that it looked more like an electrical impulse. I'm exhausted pretty much all the time. I tend to fall asleep every afternoon even though I really can't do much of anything.
I saw my PCP the other day to talk about what's going on. He ordered a ton of blood work to rule things out. And he wants to have a MRI of my entire spine done. He referred me to a neurologist (not surgeon). He said that he would trust this neuro with his life. Funny part of that is I was about to ask him who he would see if he needed a neuro.
I dread the thought of telling my PM about what's going on. If I show any signs of being upset or stressed about all of this, she starts in on me that she's worried about my depression. I'm not depressed. I'm frustrated, tired of hurting, etc. But I get up every morning, shower, dress, take care of my kids, etc I rarely cry about all of this (never in front of the kids) but it does suck that my entire life is screwed right now and I have no idea what's wrong or if I will ever get better. Have been close to going to the ER several times.
I see the neurologist on the 25th. I'm praying that she will be as great as my PCP claimed she is and that she can tell me something soon.
Sorry for the long post. I haven't been on the boards much lately. It seems like I get nothing accomplished but the day is gone or I fall asleep when I pickup my laptop. Thanks for reading.