So I know that everyone has their own continuing saga, I like hearing how folks are doing and reading their updates. So here's my update:
I know that I've mentioned in the past that my PM doc (who is actually a physiatrist) has decided that since injections and procedures aren't working, there's no point in doing them. He is in "meds management" mode while I continue to look at other things. I just had an appointment with him yesterday and he believes my meds are just about right. I do get decent relief from them. From all my testing and MRI's, etc, etc, ad nauseum, we can find no reason in my spine to be causing symptoms.
But, (isn't there always a "but"?) I've still been progressively worsening with new symptoms. Eye pain, decrease in balance, occasional headaches and whatnot. When it domes down to it, my PCP, PM doc and others all believe I have MS. (Gosh, does this mean I'm on the wrong forum???
) I start with testing next week at our MS institute here in town. With our research, I believe I have the "primary progressive" type, my PCP agrees. My PM yesterday said he is confident they will give me this very same diagnosis. I'm excited that I may actually get a diagnosis because to date there has not been one for me. I wife was able to ask a lot of questions and I think that helped her a lot -- she is having a harder time than I am right now. We are so ready to be able to treat a problem rather than mask symptoms with a bunch of pain meds.
So that's it for now, things should get interesting in the next couple weeks and once I know more I'll update again.
Hope everyone has a great weekend!
Spiney hugs >:D< >:D<