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No meds for a week

jlrfryejjlrfrye ohioPosts: 1,110
edited 06/11/2012 - 7:35 AM in Chronic Pain
It will be a week tomorrow that my doc stopped my meds. The pain I am having is unacceptable. I do not know where to turn. I know my doctor will not prescribe (he believes in tough it out). He thinks because its been 2 months since surgery I should be healed. Surgeon says primary doc has to prescribe so here I sit in pain. I tried to find a new primary but so far no luck. I do not think I will be able to find a new doc that will take me on with all my problems. I am at my wits end. I have had 6 surgeries on my spine to date so it is not like I do not have any medical conditions to warrant medication. I need a referral to see PM because it has been almost a year since I saw him because my PCP took over my scripts. I have had the same PCP for over 20 years so I am pretty upset with him due to he knows exactly what my medical issues are. I have tried to talk to PCP and my response was "it will get better in time". I need some relief and do not know what to do. Just dealing with this is not working. I am not a drug seeker I am in true pain. I need some relief!
Susan
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Comments

  • That really sucks!!
    How I wish I could help.
    I understand your pain and flusteration.
    Sending you a hug.... >:D<
    I know it's no help to you but it's all I can do.
    Patsy W
  • doc not too brite. doesnt he know it can take up to a year before nerves calm down?
  • I felt ill just reading that story. Didn't your surgeon mention that you need to find another doctor well before he cut you off? It's normal for the surgeon to end his prescription giving but you usually are turned over to someone else, if you don't already have one then they refer you.

    Why don't you go to the ER and get a couple od days meds to get you by plus they may be able to refer you to a doctor from there. I know my ER can give up to 10 narcotic pain meds at a time. (1By prescription. (10 actual pills by prescription) I would at the least do that.

    Then of course there is always the chance and I hope this won't be true for you, of the pain never going away, like me and many others on here just because the surgery has healed.

    I rewally wish you the best of luck. Let us know what happens.
  • sunny1966ssunny1966 VIRGINIAPosts: 1,385
    I swear it makes me mad the way true pain patients are treated just because of those that are drug seekers. I hope you can get an appt with PM or at least another doctor who will help you. Please just try to take it easy and stay as calm as possible. I've found that the more aggitated I get the worse it hurts. Doctors. It's a shame, that's all I can say. Good luck.

    Debbie
  • jlrfryejjlrfrye ohioPosts: 1,110
    Thanks everyone. I do think I am going to go the ER. I have chronic lower back pain from 2 lumbar surgeries and recovering from 4th cervical surgery. My son will be over at noon and I am going to have him take me. I couldnt drive myself. I can barely stand up.I just cant believe my doctor did this to me, I could understand if I was abusing my medication but I was not. Matter of fact when I called for my last refill I was 4 days past due. I just do not understand why he did this and I cannot get an explanation from him other then he thinks I am taking too much. I took my meds as prescribed. Some days less.
    Susan
  • sunny1966ssunny1966 VIRGINIAPosts: 1,385
    I hope that the ER doctor will prescribe you something for the pain to at least hold you over until you can see someone else. Maybe they'll even help you get an appointment after you tell them how your doctor has treated you. I'm sorry you're going through this.

    Debbie
  • your doctor is barbaric in my opinion ..what have you had done? are you in the UK? if so i can give you info on how to make a formal complaint .this is ridiculous find another doctor if you are in genuine pain .and i am sure that after only 2 months post surgery you will be do something about it ..i am highly disgusted ..my doctor has kept me on meds for over 2 years as my pain is unbearable ..doctors are supposed to do not harm and prevent suffering its part of the hippocratic oath this man is a moron !!{i hope that i have not offended anyone i am just in a lot of pain myself and can sympathise more than normal with people in the same situation i know that if my doctor were to stop my meds i can honestly say i would not last the day !}
    STRAKER
  • I'm so sorry you are dealing with such pain and no help.
    He sounds like my dad who thinks I had surgery and should be healed.
    If my drs cut me off, like straker, I'd not make it through the day.
    It doesn't sound right that he's cut you off so soon knowing the recovery time could last a year or so. Even then there's no guarentee that you will be okay. Many of us here have been on meds for a longtime after surgery and probly will be for many years to come. That is just rediculous that they expect you to deal with it.
    I sure hope you get help and good luck at ER.
    So sorry to hear about your situation.
  • Hello - on the front of this site - I believe there is an arcticle - that talks about the causes of chronic pain, and this surgeon states, leaving patients in pain - "causes chronic pain". Treat the pain and decrease your chances of having more problems with your patients. It is peer reviewed!

    A quick search should pop it up, print it and take a copy with you -to your dr.

    I have found that using this resource has educated my dr - its slow- he wants to read it and check things for himself, but he normally comes around to me at least 1/2 way.



  • Best of luck to you at the ER. I prey they help you.
    Please let us know how things go for you at the ER.
    I will be keeping my fingers crossed.

    Centurion....
    I found your comment very informative and helpful to all of us here. That's a great idea. Thank you for sharing.

    Hugssssssssss
    Patsy W
  • Michael - LOL - I do like your attitude at times!

    When my Dr finally had a CT scan of my back done and after 25 years of heck, he looked at me and admitted that there was a effin good reason for the back pain. 90% compression -AT THE SPOT -I had been complaining about -to him for the last 10 years.

    I had been told for 8 years - that there was nothing wrong with me, well - my blood presure was through the roof, enough to warrent putting me on BP meds, except I kept pointing out the BP was cuased by the back pain.

    I had to go through a pain clinic and have a report back from them, before my PCP would start using ER meds.

    During this time - I looked at my Dr and told him that there were times that I wished what I have on him and would pay any price for him to live a day in my shoes. And then I looked him in the eye and told him that HE would suicide, given what I have, BECAUSE - I know how to LIVE with this pain, even when it is bad and he has no clue of how to live with this.

    Sheepishly - he just shut up and admitted that he did not know what it was like to live with this - and I was his only patient with this in all of his career.

    I guess I am rambling a lot - gotta get some work done - cheers all!
  • Well that just about said it. I'm really really happy to know you're going to the ER. You've waited so long and must be in such misery. I hope they give you a prescription to get you by and also a HUGE shot right away. And hopefully they will also refer you to another doctor who will give you the help that you need. Personally I feel this was your surgeons responsibilty to help set you up or at least prepare you before hand. To just cut you off without warning and no referrel is criminal.

    I hope your feeling better soon!
  • jlrfryejjlrfrye ohioPosts: 1,110
    I have gotten some relief but not much, but it will get me through tomorrow. Michael thanks for the laugh, I needed that. I would kick him but my back hurts too bad to lift my leg that high. You gave some sound advise on what to say to my doc and if you dont mind I am going to use it.How could he possibly argue with what you stated. I can promise this I will not leave his office tomorrow without meds or a referral to go back to pain management. Thanks everyone for all the support.
    Susan
  • jlrfryejjlrfrye ohioPosts: 1,110
    I have gotten some relief but not much, but it will get me through tomorrow. Michael thanks for the laugh, I needed that. I would kick him but my back hurts too bad to lift my leg that high. You gave some sound advise on what to say to my doc and if you dont mind I am going to use it.How could he possibly argue with what you stated. I can promise this I will not leave his office tomorrow without meds or a referral to go back to pain management. Thanks everyone for all the support.
    Susan
  • Dear Susan,

    What a relief! I am really glad to hear you have some relief right now. I sure hope it can get you through the night, until you see your doctor tomorrow.

    This topic has really been a rollercoaster of emotions to read. I just started reading it a few minutes ago and went from feeling very concerned and a bit worried... then you hit Michael's comment and laugh so hard... then the final result is good to hear, however, I wish you had more back-up relief until you see the doctor.

    Whew... again, I am glad you got help and I hope all is resolved during your visit tomorrow.

    I'll be really anxious to hear how it goes. If I were you... I would have Michael's phone number with you, in case you run into any unforseen problems with the doctor. LOL! (I'll never forget this advice from him... it's great!).

    Best wishes to you,

    Tammy

  • I am appalled by your doctor's reasoning. I remember how I was 2 months post op after a 2 level fusion. It's madness to be yanked off pain meds only after a couple months. It can take up to 2 years for the nerves to heal. The best case scenario for a complete recovery is 6 months or more. Ridiculous!

    I've never gotten off pain medications since having 2 spinal surgeries because of the chronic pain. I hope your doctor helps you and has more common sense than the other one. Take care
  • Glad you got some relief. My surgeon, imo, totally messed up my back but even he did not leave me high and dry when it came to pain relief. I told him I was seeing a PM doctor and I did not need his prescriptions. It is quite normal for a surgeon to not keep writing narcotics however, to just cut you off like that before you have a chance to see another doctor, that is WRONG>
  • j.howiejj.howie Brentwood, Ca., USAPosts: 1,732
    Your surgeon should have referred you to a Pain management specialist. Not your pcp. Neither surgeons or pcp's like to prescribe drugs for pain management for over 2 or 3 mos. it's not their job. It's a pain management Dr.'s job! To diagnose and prescribe for as long as he thinks is necessary.
    Do yourself a favor and do what ever it takes to get referred to a pain management Dr. If either one of your Dr.s have one once of compassion, they would gladly do it!
    Good luck, Jim
    Click my name to see my Medical history
    You get what you get, not what you deserve......I stole that from Susan (rip)
    Today is yours to embrace........ for tomorrow, who knows what might be starring you in the face!
  • done that! I love it when the docs just cut off your scripts after they've had you on narcs for 2 YEARS. Yep, my pm only gives written scripts, with no refills. I was due a visit to the doc and to get my scripts 2 weeks ago, and guess what? I got to his office, waited an hour, and was then told that the doc had to leave! I was given an appointment for two weeks hence, but not a script because you have to be SEEN by someone. Frye, honey, my L5S1 fusion was done three years ago and while the spine did fuse, my pain is still an annoying mockingbird that refuses to sleep. Why? SCAR TISSUE! Who all gets to deal with the fantasic travails of scar tissue? I'll bet there are more "yeas" than "nays" out there, huh? My advice to you is: find another doctor. You are in charge of your own care. Research the doctors in your area by going online and search patient polls. I am leaving my current pm and have found another one about an hour away. Honey, DO WHATEVER YOU CAN TO RELIEVE YOUR PAIN. WHATEVER! Try anything, you might be shocked by what's out there. If you already have swelling or scar tissue, stay away from heating pads, heat patches, etc. Go with ice. Sounds painful, I know. Just try it. Take care, sugar!
  • I hope you're doing a little better today, and also that you find another doctor to take better care of you.

    Noxgodss, sorry that you're being bumped around like that. My pain clinic is set up like that where you have to come in every month and be seen so that you get your scripts. Thankfully I'm never kept waiting long and they also have comfy couches and a tv. I know all too well about symptomatic scar tissue pain since I have it growing on a nerve root. Where did you hear about that info where heat isn't good to use for scar tissue? I'm very interested, and I do prefer ice packs on my back than heating pads. I will use heat if I'm having muscle spasms and my legs feel hard.

    Michael, I was laughing my a$$ off about your one legged butt kicking story (and the other one too). That's funny stuff man =))
  • Susan, as an alternative, if you're close you can borrow my cane. It's light and easy to deal out a few whacks if necessary. I'll just need it a little later today!

    Michael, I agree with everyone else, I had to laugh at your sound advice!
    Spiney hugs all >:D< >:D<
    Jay
  • Hi Susan :)

    How did the Drs. office visit go?

    Sure hope you got some relief...
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