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SCS for Sacrum/Coccyx pain

LittlesurferLLittlesurfer Posts: 92
edited 06/11/2012 - 8:37 AM in Pain Management
Has anyone had any success with a SCS implanted for sacrum/coccyx pain. I had a coccygectomy several years ago and my pain has kept increasing since. My pain is localized in the sacrum area and I have so much pain sitting and lying down. Have tried just about every treatment, including a trial for a Peripheral Nerve Stimulator (leads are placed over the area of pain vs. a SCS, where the leads are placed into the epidural space). I didn't receive any relief and the leads were pulled. After that, I had radiofrequency, with no relief. My condition seems to be rather unique and there aren't very many doctors who have treated patients for this type of pain. My pain management dr has suggested trying a SCS, which would be inserted into the epidural space at the very lowest part of the spine, which would be at the top of the sacrum (I think). I actually had an appt for next Tuesday to have the trial, but I got cold feet and postponed it. The more research I do on this topic, the more concerned I am that there are a lot of problems with the SCS...so much can go wrong.



  • I can only tell you my experience. I have the SCS and it is placed on the nerve root in the Coccyx. I also have leads sub q (under the skin) across the pelvic bone. It works for me. My pain was in very low in my back almost in my butt...sorry for that no other way to explain where the pain was...and across the pelvic bone in the front. This was due to an accident in track when I was young. I separated the pelvis, rotated it and it all jammed back together in an odd way. I hope this helps. After all it is a trial so if it doesn't work, you don't have to go forward. As for the problems you have researched...is that a brand, or the entire system?
  • Is your stimulator a SCS or a PNS? My trial was for the PNS, where the leads were placed directly over my area of pain.(I didn't get any pain relief) If you have the SCS, where did they place the leads? Did they go into the spinal canal and then down to the coccyx?
  • I have the SCS. I have two lead in the nerve root in the coccyx, and two laying under the skin on the pelvic bone. I hope I am explaining this right. This is the nerve root at the very bottom of the spine. They tried to put it in the spinal canal and it didn't get the right area covered so they used the nerve root at the bottom of the spine. I wish you could draw on here so I could make myself clear. I will look it up and see if it has a name, other than pain. LOL
  • As far as I can tell it is the sacral nerve root. It is the lowest nerve root. Sorry i can't be of more help.
  • I have two implanted spinal cord stims. However, mine are not for the area of pain that you have. I can tell you that the trial is no big deal. That
    is the only way for you to know if the SCS can help you. The pain from the trial is very minimal. The SCS probably will not take away all your pain but it could help you a great deal. You are being offered the opportunity to test a very unique method of pain control. I say go for it!!
  • I started my trial period this morning. As a matter of fact, just got home. My leads are placed around T10/11 and I'm getting stimulation from butt to my toes. Give a shot, the worst that can happen is it does nothing.

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