Welcome, Friend!

It looks like you're new here. If you want to get involved, click one of these buttons!

Veritas-Health LLC has recently released patient forums to our Arthritis-Health web site.

Please visit http://www.arthritis-health.com/forum

There are several patient story videos on Spine-Health that talk about Arthritis. Search on Patient stories
Protect anonymity
We strongly suggest that members do not include their email addresses. Once that is published , your email address is available to anyone on the internet , including hackers.

All discussions and comments that contain an external URL will be automatically moved to the spam queue. No external URL pointing to a medical web site is permitted. Forum rules also indicate that you need prior moderator approval. If you are going to post an external URL, contact one of the moderators to get their approval.
Attention New Members
Your initial discussion or comment automatically is sent to a moderator's approval queue before it can be published.
There are no medical professionals on this forum side of the site. Therefore, no one is capable or permitted to provide any type of medical advice.
This includes any analysis, interpretation, or advice based on any diagnostic test

More bad news

Hey everybody,

As some of you know I'm 20, in college, and have severe back and leg pain I went to an ortho doctor for a few months and had many tests and treatments done (anti inflammatory pills, pain pills, xyrays, MRIs, CT scans, back braces, epidural spinal injections) until he said there was nothing he could see that he could fix and referred me to a neurologist. I had a bad experience there and the only thing he said to do was wear better shoes and not to sleep on my stomach. I demanded to have an EMG done but he said they wouldn't find anything. I had the test and he was right, they didn't find anything. I've also gone to the ER twice but all they did was drug me up and send me home.

I was out of hope until my mom decided to call my regular doctor and asked him to request and appoint for me at the Mayo Clinic in Rochester MN. That was September 10 and they said we would here back from them in 7-10 days. I was excited because I really thought I was headed in the right direction.

Well, after weeks of waiting I finally got a letter from them today (October 7) that said they could not accept me as a patient because they receive more requests than they can take.

Obviously I'm devastated. I missed class this morning because of my back but kept my head up because I knew I would be hearing from Mayo any day. Then I got that letter and now I feel like no one wants to see me and help me get better.

My mom is going to call a Neurosurgeon and get me an appointment because we don't really know what else to do.

I've heard that standing MRIs have helped some people to find things that weren't on the regular MRI. Can anyone tell me what facilities have a standing MRI because the hospital I go to doesn't have one.

Any advice would be so very appreciated. I need help, my pain is ruining my life and I'm sick of taking pain medicines.



  • The key thing to keep in mind, is that there are several other really great hospitals that can possibly help. I know many people go to The Cleveland Clinic. So don't give up!!!

  • Was the ortho you saw a fellowship-trained orthopedic spinal specialist or a regular orthopedic surgeon?

    I sent you a PM with a little information.

    All I can say is that you need to keep looking until you find a spinal surgeon who takes your complaints to heart. You might want to try going to a physiatrist. This is a doctor of Physical Medicine and Rehabilitation. This is often a good place to begin a diagnosis. This specialty helps people work through an injury or disease to return to normal function. They work with physical therapists, and prescribe pain meds, give the steroid injections, etc. Here is a bit about the specialty:


    They treat back pain, sciatic pain, neck pain, etc.
    Maybe this would be a good place for you to start.

    Try not to be too disappointed about the Mayo Clinic. You will find out what is causing your pain. It may just take awhile to find just the right specialist.

    Take good care,
  • I was just thinking of you the other day. Sorry things are not going well. If you haven't had a discogram that may be your next step. Its not a "fun" procedure but it gives definite answers as to what, if any discs are causing the problem. Just a suggestion.

    Keep us posted on how you are doing, Lisa
  • I guess all you can do is keep looking for a doctor that can help you. Luckily there are many good fellowship-trained spinal surgeons out there, both neurosurgeons and orthopedic spinal surgeons. Just be sure you are going to someone whose practice is devoted to issues of the neck and back.

    You might want to look into a spine center at a big teaching hospital or at a university. Oh, you said you're in college...if you're at a big university that has a medical school, you could start there.

    Or have your mom find and call a Doctor of Physical Medicine and Rehabilitation...also called a physiatrist. They are often good at diagnosing problems. They deal with musculoskeletal injuries, pain syndromes and sports injuries. They supervise physical therapy, and do pain management, among other things, but they are not surgeons, so you would be given a conservative approach to handling your issues.

    Don't give up. You will find someone to listen to you and to help you. It may just take awhile.

Sign In or Register to comment.