Welcome, Friend!

It looks like you're new here. If you want to get involved, click one of these buttons!

Veritas-Health LLC has recently released patient forums to our Arthritis-Health web site.

Please visit http://www.arthritis-health.com/forum

There are several patient story videos on Spine-Health that talk about Arthritis. Search on Patient stories
Protect anonymity
We strongly suggest that members do not include their email addresses. Once that is published , your email address is available to anyone on the internet , including hackers.

All discussions and comments that contain an external URL will be automatically moved to the spam queue. No external URL pointing to a medical web site is permitted. Forum rules also indicate that you need prior moderator approval. If you are going to post an external URL, contact one of the moderators to get their approval.
Attention New Members
Your initial discussion or comment automatically is sent to a moderator's approval queue before it can be published.
There are no medical professionals on this forum side of the site. Therefore, no one is capable or permitted to provide any type of medical advice.
This includes any analysis, interpretation, or advice based on any diagnostic test

I Need Some Advice. Or, At Least, Some Support

dharvellddharvell Posts: 98
edited 06/11/2012 - 8:38 AM in Neck Pain: Cervical
I'm still fighting through the string of so-called "specialists" to figure out what we're going to do with my chronic neck pain. The last "specialist" I visited prescribed a migraine medication to fight the cervicogenic headaches. The problem is, the medication prescribed has a history of interactions with other medications I take that could be fatal.

Today, I visited my PCP to try to find a new "specialist". While at his office, I mentioned that the headaches are getting worse and last longer than ever before. I am also experiencing increased twitching. These twitches are often accompanied with an electric shock sensation. Very unnerving!

After explaining these symptoms to my PCP... he wants to set up a... wait for it... SLEEP STUDY. A sleep study?!?!?

I feel like I'm in a bad dream that I can't wake up from. I am really close to dropping my PCP. He obviously does not understand. I just have no idea what to do, at this point...



  • Have you worked with a Neurologist or NS?

    When was your last MRI? What test have you had and when?

    I completely understand your frustrations. This can be a slow process. But a sleep study? Heck I don't know many of us Spineys who sleep.

    Maybe you can ask your local friends and business contacts about who they see? That is how I found my PCP and my NS (both are pretty easy to talk with).

    Hang in there,

  • Did your doctor say why a sleep study? If he had a patient like you who it helped, maybe. On the other hand, my migraines get worse if I do not get some decent sleep regularly. Do you feel better if you can nap? Maybe that is his thinking?

    But I'd be very frustrated if I were you! We try everything to feel better, but do not want to grasp at weak straws to attempt to kill the pain.

  • Find a great neuro who is not afraid to send you to another doc if that is necessary. Great thing about a neuro is they don't do surgery so you don't have to worry about a knife happy doc.

    My guess based on your spine issues is that the nerve roots are being effected. A neuro would do an EMG to see what is going on. This could cause the headaches, shocks, tingling, etc.

    You may need a neurosurgeon but I like starting with a neurologist because they look for other treatments first.

    Remember the docs are going by what you describe and looking for something they can do to fix your problems.
  • Keep on doctor shopping until you find a doctor who really listens to you and you feel confident in his abilities. I had diffuse pain in my shoulders, arms, neck, hips, legs, and doctor after doctor told me I had fibromyalgia. None of them really listened to what I was saying and none of them did a through exam that included actually touching me. Finally I hit on a competent doctor. MRIs revealed disc problems in both the lumbar and cervical spine. Bottom line; if your sixth sense is telling you this isn't right, listen!
  • Thanks for the replies, all.

    I have seen a Neurologist, but didn't get very far, with them. The first Neuro I saw kicked me out of his office before even seeing me, because I was "too young to have the symptoms, described". So, I went to a Neuro in a clinic about 150 miles away. This guy seemed pretty decent. He referred me to a NS at the same clinic. The NS simply referred me to the pain management clinic. That resulted in being prescribed that medication that interacted with another of my meds. I decided to stop going to that clinic, as there was a LOT of evidence that inter-office communication did not exist (resulting in potentially dangerous prescriptions, etc).

    That brings us to this most recent PCP visit, where a sleep study was recommended.

    With all of the miscommunication, noncommunication, and grasping seemingly random straws, I'm very close to transferring to a completely different medical group. At the end of the day, I'm still in pain and no closer to a possible resolution.

    I feel for everybody on this forum. Chronic pain is NOT fun...
  • DEALINGWITHIT - That's probably my best option. Over the 5 years I have had the displeasure of deteriorating discs, I have seen two PCPs. The first PCP only lasted 6 months. I've been with my current PCP, since.

    At first, things seemed to be getting done. Over the years, it seems that my health care has deteriorated with my neck!

    So, I think it boils down to that... Let the shopping begin!
  • You appear very young to have all of this degeneration and resulting symptoms. This isn't to say you don't have them, just that something must be way out of wack. All of the drugs you are on are eventually going to be diluted in your system and this may be why you feel more pain. You have IVF ( interveterbralforamen) narrowing which is a result of the degeneration and or a disrupted curve. Do you also have mid back, low back, hip or knee pain?


    Standards agreement and posting rules
    Please note that Spine-Health reserves the right to edit any messages posted or submitted or e-mailed to the Company and use them for content on the website or in other company materials. No e-mail solicitation or advertising of other companies, products, services, or web sites is permitted in the Spine-Health.com forums.

    Edited by moderator paulgla

Sign In or Register to comment.