Welcome, Friend!

It looks like you're new here. If you want to get involved, click one of these buttons!

Veritas-Health LLC has recently released patient forums to our Arthritis-Health web site.

Please visit http://www.arthritis-health.com/forum

There are several patient story videos on Spine-Health that talk about Arthritis. Search on Patient stories
Protect anonymity
We strongly suggest that members do not include their email addresses. Once that is published , your email address is available to anyone on the internet , including hackers.

All discussions and comments that contain an external URL will be automatically moved to the spam queue. No external URL pointing to a medical web site is permitted. Forum rules also indicate that you need prior moderator approval. If you are going to post an external URL, contact one of the moderators to get their approval.
Attention New Members
Your initial discussion or comment automatically is sent to a moderator's approval queue before it can be published.
There are no medical professionals on this forum side of the site. Therefore, no one is capable or permitted to provide any type of medical advice.
This includes any analysis, interpretation, or advice based on any diagnostic test

I regret having surgery

AnonymousUserAAnonymousUser Posts: 49,671
edited 06/11/2012 - 8:39 AM in Lower Back Pain
Hi All
5 yrs ago I was suffering from back pain, for three yrs I tried things from therapy to injections nothing work. 2 yrs ago I had L3,L4 and L5 fusion and I had disc replacement. I swore I would never go through it ever again. But in my recovery, I was in the hospital for 4 days I talked to 3 people that had at least 1 more surgery they called it exploratory surgery just away saying they screwed up and getting away with it. What the doctors don't tell you is the success rate of this surgery. It is ofter misdiagnosis ed 3 months later I was in having that 2nd surgery. I had right leg pain, and numbness from the knee to the ankle after the first surgery they told me it would go away after the 2 surgery healed. In the mean time my right leg kept giving out on me, falling several times. A yr after my last back surgery, I had knee surgery for torn meniscus. My pain level before surgery was a constant 5, now a 8 to a 9. So if your contemplating surgery please check out your doctor and know really what the % of success rate is....Do I regret it ..yes.


  • Hi Chouston & welcome to the spinal boards :)

    I so very sorry this has happened to you. Sadly there are many people who the same thing has happened to :(

    As for the knee I too was told I needed knee surgery for torn meniscus. That was last year and finally according to my Drs I wore the meniscus off and did not need surgery - now this year it is my other knee. I am holding out as long as I can before I give into surgery for it.

    I held off on back surgery at first as of situations like yours - now about 6 yrs later the Drs don't want me lol ;)

    None of us can remove your pain, however I hope you hang our around the boards and make friends with some of us other spines. I have found a lot of information here and a TON of support ! :)
    L1 - S2 "gone" useless in 1 way or another. DDD. RA. Bone Spurs. Tons of nerve damage/issues. Stenosis. Both knees replaced. 50 yrs old. I had a great fall (hence my user name) at age 41 and it has been a domino effect every since.
  • I am so sorry to hear that you are yet another member here with failed back surgery. I hope that you are able to get some type of relief from your pain soon. Good luck to you and please keep us posted.
  • I also am very sorry to hear that you fall into our "failed surgery" category. I will tell you that you will find great suggestions and support here. I know I have. Do you have a pain management doctor or anything at this point or are you still dealing with the surgeon for your pain management? If you are still dealing with the surgeon at this point, you may want to look into an actual pain management specialist. For me at least, the surgeon only "dealt" with me for so long before he told me there was nothing else he could do for me and that is not where you want to be if you are not prepared. How long has the pain been at an 8-9? Lauren.
  • i am truly sorry for your pain and i am feeling like like there is someone trying to tell me something about ADR surgery {not to have it} there was another member on here the other day with a cautionary tale of ADR he was ok for a year then bingo back to square one ..and there's no much that can be done for replacement /replacement surgery IE to replace a replaced disc is very hard work both for the surgeon and patient.what are you going to do??
  • Interesting posts. I, too, feel like I've been stabbed in the back by a medical system that favors hugely expensive, invasive and painful surgeries that have a very low success rate. The surgeons don't tell you the truth about how low their success rates are. They might even lie. My pain management doctor says he's seen 5,000 fusion patients with an average recovery of two years. And yet the surgeons keep telling you you'll be back to work with greatly reduced pain in two to three months.
    There's a new book out called Stabbed in the Back. It may be very interesting; haven't read it but it discusses the medicalization of a societal epidemic (back pain).
    I hope we all get better despite the insanity we've been put through.
  • he thought that i was going to let him do the ADR on me ..he took grate pride in informing me that /quote /..i have only done 4 of these operations ..it would be good practice for me !!end quote ...at this point i turned to my wife and said we find a more experience surgeon ..again an example of the surgeon want to perform expensive operations just for personal gain and very little thought for the poor patient ..i have found that when you go back to see the surgeon with a problem ..they are less than helpful and blame you for the surgery not working! its ok for them they don't have to live with the consequences .ie the constant pain and disability .
  • :H all

    I have had lower back problems for about 3 years now i have herniated disks i have gone form physio to spinal injections for pain A/Z of meds and had 2 Discectomies was on the list for my 3rd at a 50% of working and now my GP is saying i was a perfect candidate for the Spinal fusion because of all the problems with pain and my back i had a MRI on the 5th October 09 after i complained i was still in a lot of pain and something doesn't feel right to this they said that i only had my 2nd op on the 20th May 09 and i have to give it time is all in my head ~X( I think NOT after the MRI they found i have significantly large disk prolapse at L5/S1 AGAIN

    And this is the 3rd time this has happened i am so up for the fusion because it was a end to it all
    i just want my life back no meds be happy with my children and husband not a monster because of the constant pain in my left leg and lower back
    i have pins and needles my leg keeps giving way :(

    anyway my surgeon called me today
    after myself and my GP sent him a letter asking about the fusion now
    He said i am now off the list for the 3rd Discectomy and were discussing the fusion on the 26th Nov 09 great i thought until................
    i stared reading up on it and finding in to detail what some people have gone though and the problems that have happened to
    i am starting to doubt it now

    i just don't know what else to do please help
    am i doing the right thing ??????? :?
  • It is always difficult to understand that if the second surgery was less than successful the next one would carry that potential of consecutive disappointment, the decision you made at the time was a brave one and for those for whom it did not work we could all look back and reflect that the decision we made was the wrong one. We all enter surgery with the same hope and expectation of improvement and it is upsetting when the outcome of progress does not even address our lowest of expectations.

    Even the knowing of what this procedure has been lest than successful would not now make that underlying pain go away, if you had carried on as you wee without invasive surgery you may well have only been prolonging the inevitable of having surgery later, you went into surgery with a pre-existing condition and the remnants of previous surgery, that took some gut to make that decision even though with hindsight you feel it has not turned our as one might have hoped, even expected.

    True failure is in not living your life now, we all wish things had been different or better and no retrospective investigation or reflection will help you move towards the future, I have had my own failed fusion 20 years, I am trying to live my life with what is left and keep that understandable sadness contained so that it does not influence or impact of how I behave or look to the future. Wishing will not make things better and we have to be proactive in finding a life through all this continuing angst, it is not easy simple or fair.

    No amount of research would guarantee you surgical success and why some fail has yet to be addressed or explained. In making that decision to have consecutive surgery you could have not endure doing nothing at the time, your 4/5 level may well have become worse and you exchanged that for the chance of improvement, every failure has a story to tell and you are surviving, it is not always comforting to know that others are in similar positions, only that together we do understanding what living this existence can be and the need to survive.

    I would never discourage anyone from having that chance of improvement based on my own circumstance and as said, those successful stories are not always acknowledged here, we all have to work with what we have now, however disappointing that is.

    Take care… John
  • I am responding if I were in your situation and based upon other threads I have read it seems that people who go down the path of multiple surgeries always seem to me to have one thing in common.

    They seem to always be going back to the same surgeon.

    IMHO I would go to other doctors at this time and get more opinions. I really do not know the amount of pain you are in but I would deal with it if only to get more opinions from experts outside my area also.

    There was a great thread by someone here who flew all the way to CA to have his surgery done the way he wants it. I really sense from most who are having bad luck at surgery are really not in control as much as the doctors are simply putting them through the system.

    I know it is easy to talk from where I am as I have no surgeries and hope for none but I think you should at minimum get several opinions going forward.

    Btw, I do agree with the poster who said we only see the bad reports here as the good surgeries go on to other places and no longer want to carry this baggage. But I would say in also that surgery should always be the last option and not the first and it should be more than one doctor telling you that you must have it.

  • I also regret my surgery. I am so depressed. I wake up every morning wishing it was different. Wishing I have the strenght to move on, to love life again, to be able to be happy or useful, to be able to give classes, to give a hug, to sit down for a while, to speak and enjoy a conversation, to enjoy a movie, music, a good read... I perceive everything so different. Even thinking of a good breakfast... a coffee, a walk in the beach... This changed everything... is so strange. I have looked for help. I swear I am trying. Wish I could be as strong as many in here.
  • I found that as long as I focused on what I could not do, then I stumbled in my recovery. When I focused on what I could do no matter how mundane it seems to others, like brushing my teeth or changing out the toilet paper when it's empty... I started compiling a list and daily it grew until I realized that there's so much I can do. My mental outlook improved, my recovery improved and in time I found that I can do much of what I thought that I would never be able to ever again.

  • Thank you hanglandc. I feel so alone in this journey. He told me I will be an 80 percent better and I feel an 80 percent worst :(. Little a knew that even though I had pain it was bearable, I was functional. And now is intolerable... I have to fold my cloth, it was such an easy task before surgery...
    Thanks again.
  • zig I don't know you but I am SO very sorry you are suffering :(

    Was your surgery a long time ago?

    Can you not get more help for your pain?

    Is there anything else that can be done to help you?

    I am not being noisy ;)

    I do care & am just trying to understand more :hug:

    L1 - S2 "gone" useless in 1 way or another. DDD. RA. Bone Spurs. Tons of nerve damage/issues. Stenosis. Both knees replaced. 50 yrs old. I had a great fall (hence my user name) at age 41 and it has been a domino effect every since.
  • i am referring to my ALIF ,big mistake .i know its early .but theres too much damage been done in the operation and i still feel lousy .check up in 3 weeks .
    1997 laminectomy
    2007 repeat laminectomy and discectomy L4/L5
    2011 ALIF {L4/L5/S1}
    2012 ? bowel problems .still under investigation
    2014 bladder operation may 19th 2014
This discussion has been closed.
Sign In or Register to comment.