I'm happy to report that I'm getting stronger physically and mentally every day. I'm getting the help of a good PT and learning tons from some great books I found on Spine health as well as some others I've found while getting those books.
I realize each case is different and each surgeon is different but by my experience and a lot of those I read the surgeons are falling short of their Post surgery care. I know mine has.
I believe post surgery care is every bit as important as the surgery. Had I not been so stubborn and so actively learning about my post surgery needs I'd be a mess by now.
I was referred to a PT by my surgeon for post care but obviously the surgeon never bothered to tell the PT limits for post ACDF patients and the PT was twisting and pulling on my head which caused a lot of pain. I was stubborn enough to follow thru and learn that twisting and pulling on my head was not what my surgeon wanted post ACDF surgery.
The surgeon should have either put that info on my script or known that the PT he referred to was aware of that limitation.
It would be wonderful if we could go to any PT and know that what they are doing is going to help us. I believe if our surgeons were more involved with post care things would go more smoothly.
Even having the great orthopedic PT I have now reading the books and knowing why I'm doing what she has me doing is very helpful. She can't cover it all and I can't remember it all. Having the books is so helpful.
I learned that the way I was sleeping was adding to a lot of my pain. I'm a side sleeper and didn't know that by getting in the fetal position I was pushing the disc matter to the back of my spine. I have bulging discs so I would wake up hurting. Now I do what the books tell me and I have no pain.
I didn't know just how important it was to develop the different muscles of the neck and shoulder for supporting my neck. I thought I knew which ones to work but learned I didn't.
I didn't know that if my core body was weak my upper traps would try to hold my hold together.
I could go on and on.
As a spiney I know I will have to be better at body mechanics or go in for a lot more surgeries. I may have to any way due to DDD but I stand a much better chance of escaping that.
I know it will take hard work and lots of learning but the alternative is ugly.
I don't know if I can write the list of books I got but I'm going to try. They can take this list off if need be. Most came from spine health so I hope I don't get in trouble. I just so want to help others on this path and give back to those that have given so much to me.
Working with your doctor and your PT is so important but having the knowledge to know what to ask about is what these books have done for me.
Overcoming Back and Neck Pain by Lisa Morrone PT
What to do For a Pain in the neck by Jerome Schofferman MD
The Back Pain Book by Mike Hage MS PT
Hope this helps others as much as it has helped me.
Knowledge is Power!