Just wondering from others experiences when is the point that you get the epidural fibrosis "taken care of" and stop just medicating for comfort. See my sig for details of surgery/issues.
PM wants to do either the Rhyzotomy, then move on to the SCS trial. However, over the last few weeks things have seemed to get worse. I needed a wheelchair today at work since my leg just completely stopped going, after about 10 minutes of leaning over the nurses desk I was just in moderate pain but could finally walk again with minimal foot drop. Then while driving home, I couldnt lift up my leg to apply the breaks with my right foot. Dont yell, I know that is very serious. I pulled over and called my husband to pick me up. After about 30 minutes it went back to just pain and tingling.
I have tried Lyrica, Neurontin and Topomax all with horrid side effects. But these things wont help prevent continued deterioration or furthur nerve damage anyway. Maybe if I was at home I could work through a couple weeks of side effects to see if I could adjust, but working full time I just couldnt do it. People thought I was nuts, or drunk, I am not sure.
I am just very confused since the extreme weakness/pain/immobility and tingling comes and goes. Dont get me wrong, I ALWAYS have absent ankle reflexes, pain and tingling that effects my functioning throughout the entire day, but is it OK to have the extreme symptoms as long as they are temporary? Fentynal, Fentora and deep breathing are no longer getting me through these episodes.
Is this typical of how epidural fibrosis works? On MRI one year ago mine said extensive epidural fibrosis encasing S1, surgery site and pressing on the central canal. Who knows now, new insurance limits MRI's unless I do 12 visist of PT at $100 per visit.
Any suggestions or comments would be appreciated.