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Newbie-unresolved back issues

mummy22007mmummy22007 Posts: 11
edited 06/11/2012 - 8:41 AM in New Member Introductions
Im new to the board so give you a little history.
Im Donna 30, mum of 2 aged 6 and 2.5yrs.
Im after some advice regarding what to do next.
I have had a history of back pain on and off for years, i had a fall when 26wks pregnant with my firstborn on the stairs (good old furniture polish and wodden stairs!)
though at the time i was not aware of major damage.
On and off over the following years i had experienced pain in the lower back and prescribed Voltrol almost for 2 yrs solid (got addicted so had to wean off)
The doctor assumed the pain i was getting in the lower back was due to the epidural i had following the birth of my son.
As us women do i just got on with life getting pain and using deep heat and paracetamol.
In Septemeber 2009 my back went into spasm i could not walk, or stand straight and went to the out of hours surgery to be told i have siacitca and to take paracetamol and ibupfen to relive the pain.
I went home feeling deflated, so decided to see my GP and explained the pain.
I had NO examination at all and was sent away with a prescription for co-dyramol and dicoflenac to take in hope of easing the discomfort.
I waited a few days and was still in pain so returned to the surgery crying, begging them to do something.
The locum doctor reffered me for phyiso and finally i felt like i was getting somewhere.
The phyiso have discovered that i have shunted my pelvis on one side forwards (right) and on the oppersite side upwards the scacro joint is tilted backwards the pubic bones were not aligned.
They advised i was a complex case and a chronic pain suffer so having to refer to text books about the manual handling.
This all as a result of the fall i had when pregnant.(could aslo be the reason my second son was transverse limbs to my back so c-sectioned)
I have been getting phyiso but feel that there is little progress, i can barely walk and get dressed, spend biggest part of the day crying.
The phyiso treatment is like me taking a paracetamol it helps slightly but theres a constant ache in my back and right hip i also walk like an OAP.
Im feeling so down a depressed, i would rather be missing a limb as then you can phyiscally see something is wrong with me.
I returned to the GP today after a long tearful session on the phone to my mum, as im getting to the point where im thinking is it in my head?
Why are they not helpng me? and he has reffered me at last for an xray of the pelvis and scrolittic joints(sp) though can take a week to get results.
He has also given a prescription for Amitriptyline tablets to take each evening.
I was advised by a friend that i may be able to claim DLA for the chronic pain, though im not sure thats correct its like SPD i guess though on and off for 6yrs
I have no fight left, tired of no sleep, having to lasso my knickers on each morning and scared of falling downstairs.
What do i do now?
Tired of being given tablets to try and told they can increase them if needed.
Its NO fun.

I have copeid this from another board i use.
Updated- Xray on pelvis/spine and scaro joints all normal.
Feel delaflated as pains bad docs now referred me back to hospital to decide on MRI he said as pains isolated to one area he could not make that call.
So here i am today still waiting answers and going no where fast.
Dla claim form completed ready to go- just wish this pain would go too.


  • Are you going to be able to have the MRI? That will show much more than the X-Ray. Particularly you can better see any soft tissue or nerve damage. You will also be able to see if there is a spondylolisthesis, which is a slippage of one vertebra over the top of the adjacent one. In your case it would probably be at the L5-S1 level and could account for the pelvis being out of alignment.

    Just the fact that your pelvis is out of alignment could be causing all kinds of problems. There are so many ligaments and nerves running through that area and attaching to the back at that point that can get stretched, or pinched and they can cause a great deal of pain. Even pelvic floor dysfunction resulting from childbirth can create pain that mimics that of pain caused by a lumbar disc problem. These things should show up on MRI, if they do the pelvic region in addition to the lower back.

    You cannot give up without being given a diagnosis for your problems. You know things are not right. It may be something that can be fixed with proper physical therapy targeted at the right structure. I don't know the ins and outs of your health system, but do what you can to insist you are seen by a spine specialist. The SI joints are complicated. A general practioner will not know how to deal with issues pertaining to the SI area.

    Please read through the following article:


    It will provide some useful information on SI joint dysfunction.

  • Thanks for replying.
    I dont know yet if an MRI will be offered,the GP i saw was asking me what i think they should do?that really annoyed me as HES the one calling the shots.
    The pain i esperience is far from normal and often causes me to cry.
    I felt like the GP(not my regular one)thought i was making up the pain! i by no means would suffer the pain of attempting to manipulate bones into a better postion each week for nothing.
    Its been 5 physio sessions and no improvement if anything the pain is worse.
    I have to now wait to hear from the hospital directly which unfortunatly can take weeks.
    The Dr stated that he could not request MRI as pain is isolated in one main area hence being passed onto hospital,also its expensive.
    Have now posted y DLA form,hopefully by the time i get an answer i may have a real dignose for the cause of the problems.
    Heres Hoping
  • and welcome to the site.
    You will find a lot of wonderful and caring people here, so please visit regularly, look around and read other peoples story. You are not alone.
    I am a mum to two girls 4 and 6 and have had a failed L5/S1 fusion, so I know what it's like for you.
    When you are trying to get a diagnosis it can be very frustrating, just hang in there and don't take no for an answer. Whatever it takes get that MRI, then you will have a clearer picture.
    Lots of hugs and PM me if ever you need to vent.
  • hi and welcome to the forum! :H we are here to offer you support and answer what questions we can. good luck on getting your MRI. =D> hang in there until you do. a good picture is so important. stop by anytime. take good care of yourself in the meantime. :D i hope you are feeling better soon. :D Jenny :)
  • Welcome!

    I know how frustrating it is but, as others have said, you just have to keep pushing forward. See as many doctors as you need to. Sometimes it takes doctors a while to figure it out - especially when it's not as obvious. You certainly should not have to just settle for increasing doses of pills.

    I have went through this to some extent myself. I just have "simple" herniated discs and a possible conjoined nerve root. I have seen a LOT of doctors about my pain and am just now being taken seriously.

    Sorry I can't be more help.

    Good luck and stay strong ;)
  • If you're Dr. is wondering what to do you should ask for an MRI. I had to ask mine also. I also asked for an EMG test since I was having numbness in my foot and leg and concerned about nerve damage. I hope they start moving in on your cause of pain and the treatment will be able to start once they know what's going on. Wishing you positive thoughts and hope you have less pain soon. Take care. Charry
    DDD of lumbar spine with sciatica to left hip,leg and foot. L4-L5 posterior disc bulge with prominent facets, L5-S1 prominent facets with a posterior osteocartilaginous bar. Mild bilateral foraminal narrowing c-spine c4-c7 RN
  • thanks for your message,so kind
  • Thanks for reply its justawaitig game ow,hopefully be seen soon.
    will update if MRI offerred,just want things to get better.
  • Im not giving up yet!!!!
    but itsfrustratig not knowing why im in pain.
  • Im not giving up yet!!!!
    but itsfrustratig not knowing why im in pain.
  • Im not giving up yet!!!!
    but itsfrustratig not knowing why im in pain.
  • Hi
    I did ask for MRI,just feel the GP disbelieved how much pain im in.
    Im certinatly not stopping here with NO answers im determined to know whats going on.
  • Hi
    I did ask for MRI,just feel the GP disbelieved how much pain im in.
    Im certinatly not stopping here with NO answers im determined to know whats going on.
  • Hi and welcome! I am so sorry you are going through this! Hang in there, we are all here for you. It seems to take sooo long to get the right diagnosis. I had to have a pyschological eval before insurance would approve my lumbar fusion, despite having the MRI which showed severe damage. If possible, try to have your MRI with and without contrast as it will helps show soft tissue. Best of luck! We are here for you!
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