basically I have been on here for a year and two months. Right ahead of my 2 level PLIF. Most of you know me, for those that dont, I have had serious back pain for 3 1/2 years. It took over 2 years and 8 or 9 Drs,Nueros, Orthos, and every test imaginable, plus the bonus of having 2 discograms, and fighting with insurance company and going as far as appealing it at the state level to get the PLIF approved.
I had my 2 level PLIF L4-S-1 December 11,2008. I had my hardware taken out Sept 4,2009. DUring the last 2 years I have had another 7 surgeries. Knee, Hysterectomy, shoulder, frozen shoulder, carpal tunnel, tumor in sacrum, tumor behind eye socket.
That being said, I am still taking high doses of pain meds. 100 mcg Fentanyl patch, 30mg Oxycodone every 4 hours, Flexaril for spasms as needed. My pain level at 3 hours after taking bt is around a 7. If I get in car to go uptown and do errands, it flares up. If I ride more than 1 hour, it can put me down on my back for a day. I have tried treadmill, and within the first 1.5 minutes, I have a severe flare. Going to my Otho, is 2 hours, there and 2 back. It will give me a flare for a couple days. Even laying down most of the way.
I had MRI and Ct the end of Dec. Saw Ortho Jan 5. He couldnt see anything on MRI or CT that was a problem. I had the original surgery for torn discs. I had three of them, Two were bad, one not so much. So MRI and CT didnt show any problems back then either. My Ortho wants to wait until May and see if resting helps. I have been doing basically nothing now for two months. I live on pain meds and rest. Nothing has changed. Oh, and I started PT in November, and it sent me to ER just having the minimal Pt.
I am really getting frustrated, putting it mildly. I am 14 months out, completely fused, and still in as much pain as prior to the fusion. Mentally, I am so drained. I am taking antidepressants. I see a pain dr. I go again next Tues, and he had put me on Baclofen for tight muscles. You start on it and up the dose after a week. After three weeks, I had to decrease the dose as it was making me hurt more than helping. I am going to discuss with Pain Dr about switching to different meds, as I have been on them over a year and feel I should not have to take BT so often,
Anyway,,, I am so down. I feel the fusion has done nothing for the back pain, or at least very little. I dont want to keep waiting to see if it gets better, I simply think my Ortho did a great job, and he did a 1 level on my friend that had back pain for 5 years and she is off all meds and doing great. So its not that I dont think that he did anything wrong, but dont know how to tell him I am sick and tired of hurting.
I have read so many posts of people that have thought about ending it all because of pain. I have been down that path alot lately. Not that I would, just feel so completely worthless. I have tried to be positive. To look for the good, yada yada. I am sick of not being able to do things cause of the conseqences of doing it. I hate being on pain meds, so much. You know, go to kitchen, cant remember why. I have thought about going to another different Ortho with my last discogram and surgery reports and see what he/she says. But past experience with other Drs has been disappointing. I am just pissed. Pissed that I endured a surgery and wasted a whole year plus waiting to feel better! I am pissed that I am still on pain meds , Its just not fair. Is it because it took me 2 years to find a Dr that could diagnose torn discs? Is it too late, has the disc fluid eroded my back and it will never feel better.. I need some kind of hope. Answers please.....Thanks,Robin