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back after a break, Gwennie how are you?

mommatialuvmmommatialuv Posts: 269
edited 06/11/2012 - 7:42 AM in Back Surgery and Neck Surgery
Hello all,
sorry I haven't been on in a while, I was trying to sort some things out.
Gwennie, I know you were scheduled for another surgery this month, is it done, either way, how are you holding up. I have been thinking of you often.
All of my other spiney friends, please let me know how you are.
A few weeks ago I called my surgeon regarding stronger pain meds after starting PT (which has been making me a bit stronger,finally, thank God, but the pain is relentless). I was told they didn't script for anything stronger and referred me to pain management. I had that appt and an appt with my urologist today.
The PM doc started me on a Fentnyl patch, and told me to continue using the Norco for breakthrough pain. He also gave me muscle relaxers to use up to 3 times daily as needed. He is going to switch me to Lyrica, but wants to wait a couple weeks so we can watch for side effects and make sure we know what is causing them. He also scheduled me for a l4/5 nerve block on Tuesday 3/9. I am a little nervous about that.
We are hoping to get me back to sleeping in my bed, at this point I cannot because I cannot get out of bed after laying down for 5 minutes.
I see my surgeon on Wednesday 3/10, I think he is going to do another ct myelogram, but maybe not since the PT is helping, slowly, we'll see.
My disability lawyer has sent paperwork to SS and SS has already begun contacting my physicians, my PCP told me at an appt last Monday. My anemia blood work was much better, but I need to have an EGD for severe GERD that requires prescription strength Prilosec, just a precaution. :)
My urologist did a test today and wants me to schedule the next on, it needs a pre-cert. He thinks it is from "spasicity of the bladder"?? the next test should confirm, if it is, there is medication for it. Woo Hoo no surgery.
I found some Girl Scout cookies for sale today and stocked up, love the somoas and tag-a-longs, yum yum yum.
I hope you all are improving,
God Bless and keep you,
Shirley
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Comments

  • we haven't met but I thought you might like to read about Gwennie on this link
    http://www.spine-health.com/forum/back-surgery-and-neck-surgery/3-level-fusion-scheduled-tomorrow-denied?
    She'd probably love to hear from you.
    Kylie
  • i just want evryone to be very careful of the lyrica please'' i was perscribed it for my back pain and i have lupas 2nd week of it i lost my eyesight everything was blurry, i freaked out couldnt drive couldnt watch t.v. i went for an eye exam and i needed glasses for the first time in my life.
    its been 4 months and still my vision is not much improved if you read side effects its the #1 thing and on the lyrica forums, evryone talking about thier eyesight going from it. i stopped it withhin the 2nd week, so be very careful. i also wrote the company and told them of my experience.
  • I will check out Gwennie.
    Deebra, I will be very careful to watch for the side effects, thanks for the warning, I am headed to look find the side effects now. Thanks again and good luck with your eyes.
    God bless and keep you,
    Shirley
  • I was just thinking about you, and that I hadn't seen your name on the boards lately. If you had a chance to look at my thread, I go to within seventeen hours of leaving for the hospital when word came that coverage for my fusion was being denied. Needless to say, this was inconvenient for a number of people. I was really annoyed, upset, angry, etc. and took a couple days to try to absorb what was going on...but I'm back on the board and back trying to move forward again with the surgery.

    I have two chances to appeal this decision, one to the insurance company and second, to an outside appeals board. Right now the part that is unbearable is all the waiting and the uncertainty. I have requested all records from various "second opinion" specialists, an updated radiology report from the positional MRI I had taken in Minneapolis, reports from EMGS...really anything I could think of that will support my surgeon's reports and findings.

    What the company hired to review the request for surgery has on its side is the stalling factor...not giving me what I request in a timely fashion...not returning phone calls until you've called ten times in two days...you know, those sorts of games designed to make mere mortals give up or throw up their hands in despair. Perhaps they don't have many people like me who have nothing but time on my hands...I can put up with all this nonsense...and I can get out bigger guns if the time comes for that.

    Now about you: I am glad to hear you are taking steps to move forward, and it sounds like you have people who are trying to help you get to the bottom of your pain. There are answers out there -- sometimes we just have to keep plugging away.

    That is what is so ironic about my denial. The whole reason I've had to keep digging for over a year is because the source of my pain (instability) is not OBVIOUS on a MRI. Then the physician hired to review my case looks at the MRI and denies my surgery!!

    Anyway, it's great to see you back on the board. I missed you and wondered what you were up to and how you were getting along. I hope this combination of new trips to the specialists, new pain medications, PT, etc. will all combined, provide the relief you need!!

    Hugs,
    Gwennie
  • Wow!! You have had your share havn't you?
    I just wanted to add to Deedra's comment about Lyrica.
    My Neuro wanted me to start taking Lyrica and gave me a huge supply of samples. I took ONE pill and my vision blurred so bad I could not see, my balance was way off, I could not get up out of my chair and my speech was slurred. My ears roared also. I never took another one. Not everyone has such bad side effects and are helped greatly by this drug.
    If you do try it and your vision blurs just a tiny bit do not take another one. It may cause permanent damage. Please keep us updated.
    Best of luck to you dear
    Patsy W :H
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