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Update on Discogram

iowarobiniiowarobin Posts: 1,268
edited 06/11/2012 - 8:42 AM in Back Surgery and Neck Surgery
and need everyones prayers. yes, it hurts, and yes I am concerned, but I want to get better, so I hope they find something to fix. I know it sounds weird to hope to find something, but at least they will know what to do. So please think of me. I just want my life back! Love, Robin


  • I know exactly what you mean about hoping they find something. I felt the same way when I went to Minneapolis for a "positional" MRI.

    Good luck tomorrow. I've managed to avoid a discogram thus far, but I know they are not something one wants to do unless there is a remote chance it will show something.

    I'm going to be very busy praying tomorrow. Jellyhall has her fusion tomorrow as well. She's in England so I'll have to figure out all the times so I get my thoughts going at the right time. ;)

    Tomorrow feels like a really lucky day. I will be eager to hear what they find for you, Robin.

    Wishing you traveling mercies,
  • j.howiejj.howie Brentwood, Ca., USAPosts: 1,730
    No one likes to get those. But if it will show whats hurting you. It is worth it! And I'll say a prayer for you.
    Good luck, Jim :)))

    Click my name to see my Medical history
    You get what you get, not what you deserve......I stole that from Susan (rip)
    Today is yours to embrace........ for tomorrow, who knows what might be starring you in the face!
  • I had a discogram done in January and I was glad they found what is wrong with my back. For a year my PCP told me I had pulled muscles and finally he ordered an MRI and sent me to a pain specialist. I was scared to have it done because I knew alot of people that had it done and they said it hurt real bad...and it did. But I am glad I had it done and April 2nd I will be having an ALIF on L5-S1. Good luck with the discogram and I hope they can give you some answers when it's done.

  • Hi,
    I hope everything goes well tomorrow, and that the pain is manageable. One more step closer to a resolution. Boy, do I understand wanting your life back. It has become my daily mantra. I will be thinking of you and wishing for the best. Sending you gentle hugs.
  • Best wishes for tomorrow. I'll say a prayer for you that they find out what's going on and hope they sedate you fast when they find the disc causing so much trouble. Charry
    DDD of lumbar spine with sciatica to left hip,leg and foot. L4-L5 posterior disc bulge with prominent facets, L5-S1 prominent facets with a posterior osteocartilaginous bar. Mild bilateral foraminal narrowing c-spine c4-c7 RN
  • Robin, My prayers & thoughts are and will remain with you ♥
    L1 - S2 "gone" useless in 1 way or another. DDD. RA. Bone Spurs. Tons of nerve damage/issues. Stenosis. Both knees replaced. 50 yrs old. I had a great fall (hence my user name) at age 41 and it has been a domino effect every since.
  • i myself need one .so i would welcome your findings when you are feeling well enough to report them
  • Praying for you. Hope they find something and can put you on the road for recovery..
  • Wishing you well, after the discogram is done.

    Hang in there, sweety.

    Tammy >:D<
  • Keeping you in my thoughts and prayers. We are so much stronger than we think we are and when we need help God is right there to carry us through! I have confidence that this will be the key to what is causing your pain!

    Hang in there my dear! We are praying for you!

    Gentle hugs! Shari
  • i was hoping you'd post. I was thinking about you all day. Did you have to go to Minneapolis for the test?

    The wait will be hard. I always want to know immediately! And you will be disappointed if the test doesn't show anything...but if that is the case, you can check it off the list and prepare to move on to the next thing.

    I suppose you will be sore tomorrow from all the trauma and drama of the trip. At least we're not getting the 7" of snow that had been predicted....how about you?

    I'm having more pain now, too...and can't quite figure out why. I finally got my diagnosis from the doctor in Chicago, so I can move ahead with my appeal. Of course my surgeon is leaving on vacation in the morning...but I hope to get everything together fairly quickly after he gets back.

    Take good care, Robin.

  • I had it done at noon today(Friday). I had three levels tested, and two of them produced pain,only one didnt. Dr said the pictures during the dicogram looked ok, but had the CT after and that will show whats up. So I see my Ortho on the 29th to see what we do next. I am glad it is over with. Pain level was not very good on way home, was past my BT med time, but I layed in the back seat all the way and tried, ok, I fell a sleep. So the trip back wasnt bad.
    Got home, put on jammies and laying in bed. Glad it is over, hope it accomplishes something :SS 8> :?
  • Yes, It it will be hard to wait, but at least I know that something is up with 2 of them, and its not in my head. The last one, I had done a 1 1/2 years ago, the top of the three had fissures in it, so maybe it is the same with both and the dye wont show that. If so, I think he will do the fusion. I thought only one was bad.
    What did you find out in Chicago? We have a dusting of snow, maybe a inch. Its about time we got a break! I have been thinking of you too. You are such a good friend to be so positive for others when you are hurting inside, both emotionally and physically. You take care of you and don't over do. Thanks for being such a great friend! Have a good weekend, Robin
  • I would like to add something for others that may have to go through a Discogram in the future. Did the levels that produced pain reproduce the pain that you currently have at the same intensity? That's important. According to my research, micro tears are common yet do not produce any pain, yet during a Discogram the die will irritate the nerve roots as it leaks out of the disk.

    When I had my test 3 years ago, I had 4 bad discs out of 5 (need at least 1 control disc), yet only 1 (L5/S1) reproduced the pain that I felt. The L4/L5 disc was very painful during the test, yet it didn't reproduce anything that I had ever felt. I went on to have a 2 level fusion because the L4/L5 disc was pretty degenerated and unstable. My surgeon didn't believe it would hold up to the stress of its new found job.

  • I'm sorry to hear you're still having problems. I do hope they find something that is fixable. My biggest fear is injuring another disc. I am very careful and have finally begun to get my life back. I've learned good body mechanics from physical therapy and do my best to remain active but careful.

    3 level spinal fusion, L3/4, L4/5, L5/S1, November 2008. Stiff, but I can walk.
  • When I had my discogram I had one positive and one negative...the pain specialist that did mine told me in recovery what the CT Scan showed...L5-S1 was shredded and L4-L5 had a crack. They both produced unbearable pain. So I knew my results but still had my appointment that next week with my surgeon, but we already discussed surgery, but he wanted the discogram done to make sure which one he was going to be working on...But he is doing an ALIF on the L5-S1 on April 2nd. But my question is what about the L4-L5? We had talked about it, but paperwork just says he's doing the L5-S1. I am so new to the different surgeries and disc levels. Very confusing, but I will talk to him before surgery.

  • Generally speaking, particularly with fusion, surgeons try to do as little surgery as will accomplish what they set out to do. Each additional level lowers the rate for success. If there is a feeling that the disc above can heal on its own, or there is not an issue with instability, the surgeon will opt to not fuse.

    He probably is planning on a smaller procedure at L4-5 if he feels it is necessary.

    But make a list of your questions as you think of them in the days leading up to your appointment with your doctor. And, remember to take it with you!

    If you have additional questions for the board, start your own thread. That way, more people will see it and you'll get an assortment of "opinions." ;) Don't be shy. None of us knew much about the spine until we had to learn!!


    Did you buy a satin sheet yet for your bed?? You will find it very difficult to reposition yourself after surgery. Having a slippery bottom sheet really makes things a lot easier.
  • I haven't done much for when I get home yet...I have the satin sheet on my list when I get to the store. I have to get a toilet riser and stuff like that. Just trying to figure out where I am going to sleep when I get home since all of our rooms are 2 flights upstairs...So it will be the couch or bring a bed in...There is so much to do and very overwhelming. If I have any other concerns or questions I will start my own thread...Thanks!

  • Well I went to U of Iowa last Weds for the pain in my temples and vision blurring and head pressure. They did a MRI and a MRA, met with a Neuro and he called me with the results about 6 tonight. He said the MRA showed some bunching of the viens, arteries. The radiologist suggested that I have a angiogram of my head and neck. It is on the right side, and they are unsure of what it is or means. But did tell me that it is not life threatning like menningitis. So I have to discuss it with hubby and call him back next week. I told him about my back problems and I was seeing my Ortho Monday for discogram results. So I wanted to know where I stood there first.
    I quit saying whats next, but really I cant believe it. Something else to worry about. My knee that I had a scope on suddenly swelled up, and I have to go for that on Weds. I mean really, what the h*ll else? I just dont know how much more I can deal with at this time. I always thought I was a strong person, but this crap is really getting to me. I know I keep asking, but please keep me in your prayers, cause it looks like I really am gonna need them. Thanks, and I will post on Monday after I am back from Ortho on the Discogram results and whats gonna go on with that. Love u all, Robin :SS :O :W
  • Wouldn't it be nice if you could find one brilliant doctor who could treat all your parts??

    I am so sorry you are having yet another problem. This seems to be a day for bad news. I guess it will be hard for you to try to relax over the weekend...but try not to worry too much. As we all know only too well, it doesn't do anything to help the situation, and just causes more anxiety.

    I will keep you in my prayers.

    Take good care,
  • Oh Robin, I am happy to hear your discogram is over. Those are horrendous. But I am doubly sorry to hear what is going on with your blurry vision and pressure. That has to be icing on the cake. You have been so kind to me. Anytime you need a chat or anything PM me, please. This forum is really starting to become like a big spread out family. I hope you feel better over the weekend and don't stress too badly, it just makes pain worse.

  • It just doesn't seem fair - it's one thing after another for you. You are strong, but continual pain and other health problems will wear you down and it's good that you let us know so that we can give you support. Just wish we could do more.

    After the discogram, hope your Ortho can do more to help with your pain. Will be thinking of you on Monday.

    Hugs from Oz


    XLIF L2-4 20.8.15
    ALIF L4/5 2009
    Laminectomy/discectomy L4/5 2008
  • I'm so sorry that you are having so many problems.
    I'll be praying for you, for strength and peace while you cope with all this. Also for wisdom for your doctors.
    I really hope the on the horizon there is a better future for you.

    Take good care of yourself and know you have lots of people here who are rooting for you.
  • I just wanted to let you know I have been thinking of you and wishing for some relief for you. With all you have been through, you are a very strong person.

    Keep us posted on how you are doing. Vent all you want if it makes you feel a little better. If you don't want to "publicly" rant, I'm with Traci; please feel free to PM me. We are here to help and support one another.

    I hope better days are coming real soon,
    Take care, Lisa
  • i had taken a copy of CT with me, and they had sent picture of the discogram. I had 2 discs positive for pain, and one that was normal. But, the CT didn't show anything wrong with the disc. He said that the discogram pictures they sent were not very clear as to where the needle went in and such. He doesnt know what it is now, and is kind of shaking his head. I have some arthritis in my SI joint and some degeneration on my facet joints. So the plan is for me to start walking three times a day and start building up distance and see if that makes any kind of improvement. Also pool therapy once a week. If I get worse I am suppose to call otherwise see him again in 6 weeks. If there is any kind of improvement in 6 weeks, then he knows it is just a matter of time. If not, he will look at SI joint injection. So, right now it is a hold pattern.
    I don't quite know what to think of the painful discs and nothing on CT. I do remember the prior discogram where they found the tears, and how bad the pain during that discogram was, and this last one was a different type of pain. I dont know if that makes sense, but it was a very very sharp pain in the worst one, and more like the pain I had during this one for the rest that were bad. I guess time will tell.
    I got a call from the Neuro at U of I, last night wanting to set up the angiogram. So, I said ok, and they have a team that sets them up and performs them. So they are to call me today or tomorrow. Then he said my husband is suppose to call him the day of surgery to let him know what time it is so he can be there when they do it. Not real sure how much fun this one is gonna be. The thought of something going through the veins in my head doesn't sound like fun. But oh well, I guess I will get a good nap out of it. And I will be able to make sure there isn't anything major going on. So, such is my life.
    Hope everyone is having a good week and talk to you soon. Love, Robin
  • So the CT scan didn't show leaking dye? Would you consider doing it over? I know that sounds terrible, but we spinys have been poked and prodded so much we are pretty well used to it. It might be worth it.

  • In some ways I was hoping the discogram would show up the cause of all your pain, and disappointing that the pictures weren't clear. In the meantime, the walking and pool therapy could strengthen you and maybe lessen some of the pain. All you can do is go with it and hope it will help.

    Hope all goes well when you get the angiogram done.

    >:D< >:D<


    XLIF L2-4 20.8.15
    ALIF L4/5 2009
    Laminectomy/discectomy L4/5 2008
  • I don't really understand why the test was poitive for pain in 2, but couldn't find anything on CT. It is dissapointing. I started walking and will go that route for now. At 15 months I am getting pretty frustrated. The pain wakes me at night, so I know that something isn't right. I have SI joint arthritis, so maybe that is a factor. I just need to put on my big girl panties and deal with it for now. I have to have the angiogram of the head, so that will keep my mind off it. And I am going to the pain Dr in a week to see about changing some stuff. I know the meds are not working as well.
    We will give it a good six week try and see. I am thankful for all my friends that keep rooting me on through all of this. It has been a long journey. Take care, Robin
  • Sorry things didn't work out as well as we'd hoped.
    You are amazing how positive you still are.
    Keep that up, and get this head angiogram done.
    I'll keep praying for you :-)
    gentle hug
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