Welcome, Friend!

It looks like you're new here. If you want to get involved, click one of these buttons!

Veritas-Health LLC has recently released patient forums to our Arthritis-Health web site.

Please visit http://www.arthritis-health.com/forum

There are several patient story videos on Spine-Health that talk about Arthritis. Search on Patient stories
Protect anonymity
We strongly suggest that members do not include their email addresses. Once that is published , your email address is available to anyone on the internet , including hackers.

All discussions and comments that contain an external URL will be automatically moved to the spam queue. No external URL pointing to a medical web site is permitted. Forum rules also indicate that you need prior moderator approval. If you are going to post an external URL, contact one of the moderators to get their approval.
Attention New Members
Your initial discussion or comment automatically is sent to a moderator's approval queue before it can be published.
There are no medical professionals on this forum side of the site. Therefore, no one is capable or permitted to provide any type of medical advice.
This includes any analysis, interpretation, or advice based on any diagnostic test

Update, need opinions plz

iowarobiniiowarobin Posts: 1,268
edited 06/11/2012 - 8:43 AM in Back Surgery and Neck Surgery
I know this isn't quite the right spot for this, but with all my surgies I kind of just hang out here. Anyway, Iowa City called and have me scheduled to meet with the team of Drs on Monday am at 9:30 for the angiogram of my head. Then at 11 they will do the surgery which will take 1-2 hours. Then I have to lay flat for 6 hours. The nurse told me that they have reserved an O.R. for Tuesday if I need to have any corrective action taken, after they find out what it is.
I guess I was really ok with the procedure, since I have had one on my heart, until she said they reserved an O.R. for the next day. I don't know what I was thinking, just not that it would be so quick if something is there.
So, all my spiney friends, please say a prayer for me on Monday, as now I am more scared than with any back surgery. I guess, I just knew what was there going in, this time it will be so quick if they find something, that I am kind of thinking, whats next. Hopefully, it is nothing. But I know that you all have been so supportive and having all those prayers have to help the end results. I will post on Tuesday when I can, or if you dont hear from me, you know they kept me. And I will let you all know asap.
Thanks to all of you, and just knowing you will be thinking of me, means alot. Love, Robin


  • I'll be praying for you, for peace of mind now and for safety on Monday. Also for your medical team.
    Place yourself in God's hands and trust Him to look after you.

    You are so strong Robin - you can do this.
    Wishing you a blessed Easter.
    You have so many spiney friends who care for you ans will be prayng for you.
  • Wow! This is happening fast. I'm sure it is just routine to have an OR available, just in case, so you don't have to return. I know they do they with certain heart procedures....

    So all your friends on the board will hold you in their thoughts and prayers as you face this additional challenge. I always think of that line from "Fiddler on the Roof" which I cannot quote directly...but pertaining to all the hardships of the Jews..."Why are WE the chosen people?" You must feel that way too. Why have you been chosen to have all these somewhat obscure medical problems that do not seem to have any easy answers...

    You do always seem very strong, but I'm sure you are putting on a brave front. Anyone would be scared facing what all you have been through recently.

    I will think positively and pray that this is just a little bump in the road to recovering your health.

    Hang in there, Robin. You are strong and will get through this.

  • My prayers are with you and I wish you a speedy and painfree recovery.

  • This sure happened quickly!


    I guess we can look at it as being a good thing, in that you won't have to wait much longer to have this procedure done?

    I will say prayers that all goes well and nothing weird shows up. You know I say "weird", as I still remember your eye socket tumor very well. That's a hard one to forget! But look... you survived that ordeal so well. You are indeed... one heck of a trouper!

    I hope you have a nice Easter Sunday. You'll be on my mind, that's for sure.

    Try your best not to stress. I know that's easier said that done, but you have a wonderful medical team that will be giving you excellent care.

    Hugs and love to you,

    Tammy >:D<

  • Prayers for you for Monday as you requested and hope everything is normal but know you're under good care of a team of Specialist Surgeons who do that surgery often. Robin you've been through so much already with the other surgery in your eye socket. I pray that there will be Angels that encamp around you and keep you safe through the whole procedure. May you feel His peace as you go forward. Take care. >:D< gentle hug if you want. Charry
    DDD of lumbar spine with sciatica to left hip,leg and foot. L4-L5 posterior disc bulge with prominent facets, L5-S1 prominent facets with a posterior osteocartilaginous bar. Mild bilateral foraminal narrowing c-spine c4-c7 RN
  • >:D< >:D< Good luck on Monday. I'm sure the docs will take the best care of you. MY prayers are with you.

    Lots of hugs >:D< Marsha
  • My thoughts are with you,it sounds like they are taking great care of you---let us know-Jeannie
  • I'm here for you too and praying that Monday's surgery is a success. I don't know how you do it, I admire your strength, fortitude, and the compassion that you have for all of us. Here's a big hug from your spiney buddy >:D< Get well soon sweetie.
  • j.howiejj.howie Brentwood, Ca., USAPosts: 1,730
    I've already said a prayer for you. Just to make sure I don't forget. You know how we are!
    Good luck, Jim
    Click my name to see my Medical history
    You get what you get, not what you deserve......I stole that from Susan (rip)
    Today is yours to embrace........ for tomorrow, who knows what might be starring you in the face!
  • I will say a prayer for you tonight and again on Monday. It seems pretty typical that they reserve a room and your surgical team seems to have everything lined up so you don't have to worry about the what if's.

    We'll all be here to worry for you so that you can try to get peace of mind before Monday.

  • to all of you. I am nervous. But it wont be long and I will be through it. I am really thinking its ok. So thats what I am going for. Love you all,.Robin
  • You're in my prayers. I hope all will go well and you'll be coming home instead of heading into the OR on Tuesday.

    3 level spinal fusion, L3/4, L4/5, L5/S1, November 2008. Stiff, but I can walk.
  • Robin,

    Everything will be fine. I was a lil scared for my first surgery. I know this is not your first. You are in good hands, and all will be great. You definatly are in mine, and I can see many others here. Our prayers...

  • Robin,

    I will keep you in my thoughts and prayers. You have had a heck of a go in the last few years. Hang in there :) My sister is also named Robin. So I can think fondly of you, as well.

  • Have I missed something? Why are you having this procedure done? I'm so sorry you have been having such a rough time. You will be in my thoughts and prayers.

    Best wishes,

  • Hoping all goes well for you on Monday.

    Sending you >:D< >:D<


    XLIF L2-4 20.8.15
    ALIF L4/5 2009
    Laminectomy/discectomy L4/5 2008
  • O:) O:) O:) O:)
    I'm with Marianne -- what did I miss? Why are you having this procedure? Have you been having symptoms other than your back? I went back and checked your postings in my buddy file and couldn't find anything.

    OMG, I'm sending you the biggest cyber HUG!! I'm in a bible study right now that focuses on the Israelites hanging out in the wilderness for 40 years before making it to the promised land. God took them on the craziest route from Egypt to Canaan instead of taking them on the most direct route.

    His purpose was to make the Israelites focus on him and trust that He would provide what they needed for the journey.

    His hand was on my friend's husband two weeks ago when he lay in ICU with a massive clot sitting at the top of his heart -- one wrong move and he would have been dead. This man is coming to my house tomorrow to celebrate Easter.

    Robin, I'm already praying for a successful outcome to the procedure. Believe in God for miracles and know that He is with you and will see you through this next pit stop in the wilderness.

    When your Promised Land comes, it will be glorious!

    We'll all be waiting in this "Cyber Waiting Room" to hear how you're doing.

    Here's my army of O:) O:) O:) O:) to watch over you.

    Have a happy Easter!

  • robin
    i wish you the best monday and recovery..
    you will be in my prayers and thoughts
    pls keep us updated
    neck,bone spurs pain started 04, back issues and fusion l4,l5 06~hardware removed.
    good few yrs. 09 pain sharp, numbness feet,legs, diagnosed fibro, neurop. legs.lung issues.
    daily goal do good thing for someone.
  • I guess I should explain what happened. In Jan I started having these temple pain. Kind of throbbing, and my head felt like it had pressure on the top. It was late January. In Feb, I emailed my Surgeon from Iowa City that had done the one last fall. He said to give it a few weeks and see if it kept up, that he couldn't figure out anything that would cause that from surgery. If it didn't get better to email him.
    So in Mid March I called his office and talked to his nurse as they were getting worse. They didn't call me back, and after a week I went to my GP and he did a CT Scan. Nothing showed up, but with all my history he wanted me to see a Neuro in Iowa City, so he made a appointment a week later.
    During that week, the otolaryngologist that did the surgery last fall called and had a appointment for me the same day along with a opthamologist and a MRI.
    I went to the Neuro appt first and he added a MRA to the MRI appt. Saw the opthamologist and had the MRI and MRA and went home, as he said he would call with results. A week ago Fri night at 6 pm he called and told me that I had a cluster or clumping of veins in the right side of my head, and that radiologist didn't know what it was.GO FIGURE, story of my life, and so Neuro said he wanted me to have the angiogram of my head. I didn't even know they did them of head. So I said I would talk to hubby and then I had a Ortho appt in MN on Monday and would call him back.
    Well he called Mon and asked if I was having it, and since my back is on exercise mode for the moment I said that I would go ahead and get it over with. So the Neuro said the team would call and get it set up as soon as they could. They called me Thurs and we discussed options as I have to meet with the team first and then have the angiogram and then lay flat for six hours. They wanted to do it over two days, but with a three hour drive I asked to do it in one day. The supervisor said she would talk to the Dr's and see if we could do it, although it would be a long day. They called back and said be there Mon at 9:30 for meeting the team, and have it at 11:oo, and that lay for 6 hours. They also reserved and O.R. for Tuesday if I have to have surgery.
    So the surgery part hadn't really entered my mind, and that is what really made me scared. SO Once again, I turn to all of you for your thoughts. I Know that it makes me feel better. So there you have it in a nutshell. I have something on the right side of my brain, a clumping of veins that they don't understand. So We will See. Thanks all, I will update as soon as I get home,. Love, Robin
  • j.howiejj.howie Brentwood, Ca., USAPosts: 1,730
    I haven't forgot. I'm still saying prayers for you.
    Good luck,Jim
    Click my name to see my Medical history
    You get what you get, not what you deserve......I stole that from Susan (rip)
    Today is yours to embrace........ for tomorrow, who knows what might be starring you in the face!
  • Wishing you every ouce of luck that you can handle for tomorrow. Know that we are all praying for you and hope to hear great news as soon as you can post. >:D< >:D< >:D< Marsha
  • Robin
    I hope that you have had a good Easter day today and that you have a restful night tonight.

    I'll be thinking and praying for you tomorrow (and Tuesday if we don't hear from you)

    Take care and keep your strong positive attitude
  • Robin, sending prayers for peace, comfort and complete healing to you and your family. Also, sending prayers for your medical team.

    Hang in there and know that we are all here, cheering you and and looking forward to hearing from you!

    Safe travels! gentle hugs ~ Shari
  • Everyone has already said it so well.

    Sending a big hug for support and a restful night.

    I ended up not going to Texas with my husband. I am home alone with nothing on my schedule, so you are at the top of my list. Iowa City won't know what hit them when a big rush of positive prayers and thoughts come blowing in from your Spiney friends from all over the world!! ;)

    Be strong ~ and at peace ~

  • An Angel will be holding your hand, Robin. You will be safe. :)

    Post when you can.

    All the best!


  • Right now I am finishing off some choc chip cookies, a can of sierra mist and watching my favorite old show, MASH. Had a good restful day, and spent it with my daugher, son in law and Hubby. Was a great day, and had lots of phone calls and a few visitors stopping in to say they are thinking of me. Sooooo,
    I hope I can sleep. I am really quite comfortable with the procedure, and especially the Dr's at Iowa City. They are world renowed for this type of things so i can't be in a better place. With all of you thinking and praying, I know that the Big Guy will take care of me and I have faith that I am too ornery for him to deal with yet. SO Thanks from the bottom of my heart. You all seems like life long friends to me, I feel such a closeness with all of you. Happy dreams to all of you, and hopefully by this time tommorow night, I will be back and telling you how much rest I got from the versed. #:S Love you all, Robin
  • All good thoughts your way on Monday. And Tuesday if necessary.

  • We were at Iowa City at 9:30, met with the main team and took blood for bleeding times. I was suppose to have test at 11. As we were talking to the main Dr he told us that there was a stroke person coming in, and he didnt know if my test would be on time, but would take me up to the place they did the angiogram.
    So we went up there, and then after a few minutes they took us back where I got into the gown etc. Then we found out that my test was gonna be delayed. They asked if we wanted pagers to go somewhere, but not being able to eat or drink, I opted to stay there and get some rest. So we waited and waited. And waited some more. Finally at 5:00 they took me back, and I was back to the room around 7.
    Good news is, the didn't find the avm they thought that was there. They did find a small anueysm, that they said they wouldnt operate on, only have to go there every year to have a MRA to watch it. At that point it was 7 and I had to lay flat for 6 hours, so they decided to admit me and my husband could go home. So much for the plans to get it done in one trip. He went home, and I had an absolutely terrible night. My back hurt so bad, laying flat, and it started spasming, which was also unpleasant.
    My hubby came and got me at 9:30 this morning, and we set off for home. I hadnt had anything to eat since Sunday evening. They forgot to give me breakfast or anything after the procedure. So I got a cup of coffee and we arrived home around 1:30.
    The whole experience was awful for a backie, and I am glad it is over, and also that they didnt find anything that required surgery. Now I just have to have a test once a year on the small anuerysm. But that is better that it could have been.
    Thanks to all of you for your thoughts and prayers. As Dorothy said, There is no place like home!
  • iowarobin said:
    As Dorothy said, There is no place like home!
    Ain't that the truth. Glad your done with it and home.

  • sweet home! Robin good you don't need surgery. Prayers things will be alright with the follow up tests in a year. Charry
    DDD of lumbar spine with sciatica to left hip,leg and foot. L4-L5 posterior disc bulge with prominent facets, L5-S1 prominent facets with a posterior osteocartilaginous bar. Mild bilateral foraminal narrowing c-spine c4-c7 RN
Sign In or Register to comment.