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I can't believe this has happened

rolltiderrolltide Posts: 6
edited 06/11/2012 - 8:43 AM in Chronic Pain
Here's my story-and I'm really just looking for others who are in the same boat....

I have had 5 back surgeries in the last 6 years-I'm relatively young (40s)-and am as healthy as a horse. I walk 6-9 miles a day because it is good for me...I have developed such pain in my back and legs it is now a daily event-I am off work for an "undetermined" amount of time-which means that I will not return to a job that I have worked my whole career to achieve....

My surgeries have been a microdisctomy, two fusions (different levels at different times) and this past August I had hardware removal and bone shaving that lead to a dura tear-

I have felt fantastic after each surgery and would not under any circumstances have changed a thing-I just am at a loss that now my pain is just managed....

My family sort of understands...but I have days that I can't get out of bed...

is there anyone else like this?? I'm so sorry to sound negative...



  • Don't feel bad about sharing. This forum is truly tolerant. We are all in the same boat in some way or another, or we wouldn't be here.

    As you can see from my history I have had several surgeries, procedures and what not. I use these terms loosely.

    I can't really add anything except I am feeling as you are now, but my pain is not being managed. It is fairly out of control right now and I am just waiting to see a pain mgt specialist. I really look forward to being managed. Maybe that will get over this bump of constant pain that began 15 weeks post op single level fusion.

    What steps have been made in your pain mgt? How long ago were your fusions? I know this is a long recovery. Does your Dr offer any hope of more than just "management"?

    I am reading and trying to understand everyone's experiences, to help me better understand my own.

    Best Wishes,

    P.S. I am a UT fan, don't hold it against me LOL
  • Sorry, your userid just got me going! I'm a Bama girl too!

    I am somewhat in the same boat as you. I've had two lumbar surgeries and 3 cervical surgeries. Been thru 3 surgeons---2 Neuros and my current surgeon is an ortho spine surgeon. I just had a posterior fusion C4-6 3 weeks ago to stabilize those levels that hadn't fused on their own. All of mine have been in the last two years. I am soo tired of going thru recovery after recovery. My meds don't work since I've been on so many and so often. My last two surgeries, they had a hard time getting my pain under control in postop recovery. I hated that so much. I was hyperventilating cause I'm not vocal about my pain and was trying to handle it and couldn't. I kinda felt partly aggravated and partly humilated. It's not my fault. I'm 45 and seem to be falling apart. Arthritis runs in my mom's side of the family and my knees, shoulders, spine, hands are all painful aching.

    I have two kids, 16 yr old daughter and an 11 year old son. I was a programmer/systems analyst in a govt job making very good wages and have had to go on LTD and just now filed for my retirement. I don't see any way to continue working on the computer everyday in the office. I was also the team lead, so stress was a major factor too. I'm one of those personalities that carries everything on my shoulders, I worry and cover every detail. It's hurt to give up my job. My family seems to accept my physical downfall, but they don't bend over backwards to help. I have to ask, direct, beg, you know how it goes. My husband was laid off last July and is working on starting his own business. He needs a lot of help and I just can't help right now, not sure if I'll ever be able to. I try to cook some and do laundry, light cleaning. I use a lot of quick wipes...stuff like that.

    I rest a lot and I make myself leave things alone. It's so hard to to do this over and over.
  • Hi there,
    I just wanted to say you aren't sounding negative at all. It seems as if you are frustrated which is where many of us have been. It's tough at any age to feel things being taken away but in your 40's, it seems that much more difficult.

    Gentle hugs!
  • My stats are very similar- 41year old, out with no real hope of returning to my work, microdiscectomy, Fusion, etc etc
    Pain management is percocet every 4-6 hrs, it only works for the first hour or so...so, lots of ice (heat doesnt work for me) and continued attempts to keep my sanity.
    It sucks- especially since the brief times when Ive felt better somewhat, my family is happy/well, but as soon as it comes back, they all have a really bad reaction and I cant help but feel responsible..I dont want to mess the kids up.
    Alot to stress about, isnt it?
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