I don't post often anymore, so first I want to say hello to all the members. I read the posts all the time, and once in a while I feel like I can contribute something and will post a comment. But usually I stay quietly in the background, hoping that all of you continue with your recovery. For anyone with neck problems, please know that you can PM me any time for support. I think I've been through about as much as anyone on these boards when it comes to our necks.
That leads me to my question. For those who have had posterior surgery on your neck:
1--Do you have a problem holding your head up without something to lean against? For instance when sitting with no back support, how long before your neck tires out.
2--Do you spasm in your shoulders and neck?
3--Do you have difficulty holding your shoulders back for good posture?
I am now 2 years post op for my ACDF revision, anterior and posterior, with major reconstruction. I still struggle. My biggest complaint is the inability to hold my head up. Everything I do, everywhere I go, I always make sure there is something to lean my head against when sitting. Otherwise my neck stiffens even more, I get intense pain at different trigger points, and then it will lead to a headache and I have to lay down and get my shoulders flat before I can get any relief.
I don't think this is normal, and I'm tired of the same old story of "This is just the way it is. You'll have ups and downs. There isn't anything we can do." bla bla bla.
When massaging my neck, the muscles feel more like ligaments, and they roll under my fingers. They seem to snap and crackle, just feel different than previously. My physical therapist (new) just told me he has never seen a neck like mine and that it is not normal. He said the muscles have basically stopped working and he doesn't know if we can build them back up. He has seen how my neck responds when it gets tired and he said "something's not right".
Well duh, that's what I've been telling my docs for 2 years. But no one seems to know what to do.
So my question is do any of you have problems like this? I'd love to hear your story.
Surviving chronic pain one day at a time, praying for a reprieve because living another 40 years like this doesn't sound too fun!