In 2006, I had a L5-S1 Lumbar laminotomy & discectomy because of a very large herniation and disk fragmentation. Since then, an orthopedic surgeon looked at my MRI and diagnosed me as needing a fusion. But two PM's and a neurosurgeon from Cleveland Clinic have since diagnosed me with epidural fibrosis and the significant amount of scar tissue at L5-S1 was the reason for my pain and were both sure that a fusion would not help and recommended a SCS trial.
I recently did the SCS trial to mixed results. I believe that I got relief but I also don't think it was in the correct place. Unfortunately, I listened to the programmer who said to get it close and she would program it and do the rest. On a normal day I am in bed right now about 18 hours so I was unable to do much in the trial as I needed for fear of more damage.
I know that everyone said to stabilize the spine first but how do you know what dr to believe? They were all going according to Mri's, no other tests, and the fact that I have pain down my legs and feet and not back pain. The Dr. from Cleveland Clinic also said that if it was caused from nerve impingement at L5 I would have more back pain.
Can they put the spine stimulator in such a way that they would not have to relocate the stimulator if the fusion is needed at a later date? It just seems to me that if I had such a large herniation and had so much disk removed that even if I don't need it now that at some point in my future I would.
I am really scared to make the wrong decision. I am just so tired of being in pain and not knowing what to do and having to ask people to help me.