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ok i will try and tell you guys the spine troubles does these make since?

chronic sufferchronic suffer Posts: 115
edited 06/11/2012 - 8:48 AM in Chronic Pain
ok i will try and tell you guys the spine troubles i have i have mild Scoliosis,i was diagnosied with Sacroilac joint dysfunction ,i might have arthritis in my back and my hips,knees,hands, i will know soon about the arthritis i want help what to do for all these things can i ask want troubles all you have? and about the Sacroilac joint dysfunction i hurt my back years and years ago i fell right on my tall bone and was told thats why i got the Sacroilac joint dysfunction and i really am trying to understand what it is i also have trouble with a pinched nerve in my neck and i don't know how to explan how it happened all i can say is my dog jerked me very very hard and i was told thats what done it i have had MRI'S on my back my knees i am sure i need more MRI'S THEN WHAT WAS DONE my dog is a lab mix with some chow and he is very strong i can't handle him very good when i walk him


  • CS if you search for Sacroiliac joint you will find a very good article that explains exactly what this is and what can be done. Have you tried the injections or PT for this? Sounds like there are some good treatments but not meds.

    Arthritis is something that we all have. Jst some have worse than others. You said you will know more about that soon..I'm curious about why you say that. Have you had some type of test? Often activity is recommended for arthritis so PT is usually good.

    As far as the pinched nerve.. is that causing symptoms like tingling or numbness somewhere? And which nerve is pinched and how is it pinched? THere are lots of us here that have dealt with cervical problems. Again have you tried any PT or injections for this? I have a friend who was pulled down by his German Shepard and ended up with rotator cuff surgery so I understand how silly things can turn into lots of pain.

    Now that we have an idea of what is going on I'd really like to hear what you have tried. There are lots of treatments that should be tried before relying on pain medication especially narcotics. You are way to young to be living in a fog of drugs.

  • i have tryed PT and also injections but they made the pain worse and i did have numb lift arm with the pinched nerve and i tryed PT for it and it makes it hurt worse i have tryed all the over conner pain kills and they don't touch my pain at all thats why i am on pain meds for because i have tryed everything nothing worked but the pain meds i hate being on them and hate the way they make me feel but atleast they help my pain
  • If the problem is a pinched nerve, has anyone suggested a medication for nerve pain? Opiates are not always very effective for nerve pain, but given that you have Fibro and nerve pain, I would think your doctor would have suggested a medication such as Lyrica (a medication approved for treatment of Fibromyalgia) and/or Cymbalta (also approved) before starting a lot of pain killers.

    Also, have you tried prescription strength NSAIDs?

    Where did you have the injections? Your shoulder or your neck? I'm confused about where all your pain is, you didn't mention your shoulder, and you focus more on your lower back than your upper back, but now your arm is going numb. Do you have any herniated disks or other issues?

  • HB has an excellent point. Fibro and a pinched nerve would respond well to the neuro drugs. It can take a lot of trial and error to find the right one. Neurontin is a common starting point. But many end up going to the anti-depressants (also good for nerve pain) and other neuro drugs.

    What types of specialist are treating you for these conditions? You mentioned a GP but hopefully you are working with a neurologist since so much of your problems are nerve related.

    Also what about a muscle relaxant? Alot of times the pain can trigger muscle spasms. It can be really hard to tell what is really causing the pain when this happens.

    Treating spine problems (and other problems) is not as simple as say a broken arm. When you break an arm they put you in a cast for 6 weeks and then you are healed. With spine problems its alot of trial and error. And then trying it all over again because it may not work the first time but does work the second or third time. Check out some of the posts about injections and you will find people who didn't have success until the third round. ANd PT is a long process. Usually it hurts more before it gets better.

    The most important thing that you need in order to feel better is a positive attitude. If you are convinced nothing will work then guess what..nothing will work. But if you truly want to feel good then you will keep your mind open to ideas and will do everything possible to feel better.
  • I am on Lyrica for fibro and its been helping a little but i am having to go off it because i am loseing my medacaid at the end of nov and i can't pay for it will cost to much and yes i have tryed prescription strength NSAIDs and they did not work for me and yes my shoulders hurt sorry i did not say that to and i got the injections in my back and they only made it hurt worse and the prescription strength NSAIDs was IBUPROFEN 800 MGs
  • now you really gave me a headache. you spent numerous posts explaining why you got dropped from your pain dr ie,meds that were stold, lost, misplaced, etc, then you wrote about getting a new pain dr etc, now you are giving us a history of your back problems. i do not know what the purpose of this last post is. i believe a lot of people see you as an abuser or a doctor shopper, and others see you as a person who is not making up stories, and others try to tell you it is this problem that makes it worse for us who adhere to our pain contracts. why do we need to know your history? is it to validate your reason for getting new meds? in my opinion, you need to stop posting these reasons. those who see you as an abuser will still see you as one, and those who give you the benefit of the doubt will still do so. you are not changing anyone's opinions of you. please go to a new topic and get off of this one. it seems like obsessive behavior now, at least to me. this one has run it's course. please try another topic. i think most feel as i do. you said you were seeing a counselor for help. please stay on that course.
    good luck
    I have 4 fusions from L5-3, the latest last May '12 where they fixed my disc that broke.They went through my side this time. I take 40 mg of oxycontin 4x a day and 4 fenatyl lollipops 300 micro gms 4x a day.
  • i also have a diease called endometriosis and its very painful i go to a doctor for that and about maybe 5 or 6 other doctors for all thats wrong with me i hate going to the doctors i have had 2 surgerys for the endometriosis and it has 4 stages i am stage 3 almost stage 4 and endometriosis is almost like cancer it don't matter how many times they remove it it grows up and i may not be able to have kids because of it now some of muscle relaxants seem to help me a little and i do keep a positive attitude about treatments i try but like i said i have tryed everything and the only things that help is pain meds and muscle relaxants some times
  • because i was asked from some the members here what all i have
  • There were several members who asked her what her specific spine problems are, so that we, as a community, might be better able to help.
    APROUD CANADIANveteranButNOTa doctor, my thoughts are my own
  • Where in your back did you get the injections? And do you know what type they were?
    APROUD CANADIANveteranButNOTa doctor, my thoughts are my own
  • So what reason did the 8-9 pain management doctors who would not help you give for not prescribing pain medications, when you have such obviously qualifying disorders? Did they have your medical records?
  • There are many Endometriosis support groups on the net if you decide to talk to people who will understand exactly what you are going through with that issue,and I understand that it can be quite painful,but I don't think that comparing it to cancer would be a good idea and might even be taken as disrespectful to some people.

    Some things that may help your pain include;

    -Hot bath/showers
    -TENs unit
    -OTC pain medication to help stretch your Rx pain relievers.
    -Massage Therapy
    -Counseling (sometimes it helps to talk to a therapist)
    -Stretching/mild excercises
    -Research~it can be empowering!!

    I do all of those except the acupuncture,which I have never tried.Why is your medicaid being dropped at the end of Nov.? That's terrible as you mentioned that you are disabled and not working..I'm wondering how they can drop you,but so many changes with Health care lately that not much surprises me.
  • I'll add heating pad to that list! I'm never far away from mine! And as someone else mentioned earlier, even, hot baths stave off the pain for at least a little while, and do help with muscle spasms as well. Not much help with the neck area, especially if you're tall like me and don't quite fit in a regular sized bathtub, lol, but it does help with lower back pain. Actually, once I'm done soaking in the bath, I turn on the shower to let the hot water run on my neck, but not with too much pressure, as the muscles are very tender around my shoulders and lower neck area.
    APROUD CANADIANveteranButNOTa doctor, my thoughts are my own
  • I live with my heating pad! In fact, I'm going to go lay down with it right now!
  • the more i read the more i have questions, pinched nerve, arthritis, tail bone pain caused by your dog, endometriotis,(sp) back pain, tooth infections, why do you need more than one mri. dr's usually prescribe once a year and they are very expensive. how do injections make the pain worse. they either don't work or help the pain. i have had many, one last week, and never had the pain get worse. sacriolic pain,scollosis,pinched nerve in the neck. this seems a little excesive. this is a lot of pain areas. did you explain this to your pain dr? what did he say about all of this? i hope you have evidence of all of this for your dr. ie mri, x-rays, cat scan, nerve tests, disography, etc. if you have evidence and pictures with reports then your dr should have no problem with you but it seems like you have been to a lot of pain doctors. i have a feeling after hearing your myriad of complaints that they had problems with you especially with someone as young as you. wow bigger headaches. i only have slipped dis with 4 back surgeries, 2 fusion, 1 laminectomy, and one taking out the hardware. i have copies of all my tests and reports, but i only see one pain dr and one neurosurgeon. i am 63 but i don't have all the problems you have. what does your family think about all of your complaints and meds. did you say they had a problem with both? no wonder. how is the therapy doing?
    i'm going to take an aspirin now for my heart and my headache
    please be careful with all of this
    I have 4 fusions from L5-3, the latest last May '12 where they fixed my disc that broke.They went through my side this time. I take 40 mg of oxycontin 4x a day and 4 fenatyl lollipops 300 micro gms 4x a day.
  • My best friends are my soft ice pack (bag) my hubby got me, my soft heating pad (padded in cloth), and my TENS. I have a belt now with the electrodes on it, so I don't have to try and twist to put them on! Works great! Oh, and my buddy...Lyrica! :-)

    PCTF C4 - T2, Laminectomies C5, C6 & C7. Severe Palsy left arm/hand.
  • lol, my TENS unit is on the side table right beside my couch!! My heating pad goes up to bed with me, and comes down with me during the day. I can't stand ice though, funny how we're all different with heat/ice therapy.
    I tried Lyrica, it was wonderful except for the fact it made me gain 20 lbs in less than a month!! So, back to the Neurontin for me, which works okay, but not the same as Lyrica did... made me sad, but having to go out and buy all new bigger clothes made me sadder, lol.
    APROUD CANADIANveteranButNOTa doctor, my thoughts are my own
  • Kelly,

    I gained over 45lbs on Lyrica, and now finally it is slowly coming down. My nerve pain had gotten so bad I was either curled up in a ball, or tossing... I gladly took the weight gain over that ridiculous unforgiving pain! :)

    You're right about temps. I find that for me, I get more relief from cold (ice) vs heat. I've seen that a lot on here too, so yeah it is odd!

    Chronic Suffer: If you are still reading, granted some of us digressed into small exchanges, you can see by our 'chats', there are a lot of ways we can knock some of the pain down. All of it, pain free, heh... I pretty well know (for me), that day will never come, same for most on here. Instead of tons of drugs, or laying around, we do other things. Massage, hot/cold therapy, stretches, hot baths, showers etc.

    PCTF C4 - T2, Laminectomies C5, C6 & C7. Severe Palsy left arm/hand.
  • Jon,

    I don't know if 'age' is a criterion in so far medical issues. I am glad that at 63 you're doing pretty good given the circumstances. I do agree it is the "amount" of issues that has many of us going "Hummmm..."

    Most come on here (I know, not all) and will say "I have a herniated disk at L4/5", or "I may have Fibro" or well, you know. I guess specific diagnosis is missing along with that, I can see why all the PMs.

    Endometriosis is a very painful condition. My sister had it - checked me (same girlie doc), clear. I many times came home when my sister and I were in High School and she was in intractable pain. I fully get that. Chronic, the rest of your "medical issues" to many of us, are way to vague. So for some of us, it tends to give us a lot of doubt as to the veracity of some of your postings. Add to that you now (and I think in one other post) state that you have had so many PMs because your neighborhood is a druggie neighborhood? See?

    PCTF C4 - T2, Laminectomies C5, C6 & C7. Severe Palsy left arm/hand.
  • Chronic I'm going to make what will probably seem like a crazy suggestion. Ask your mother in law to help you get all this straightened out. Before you say no please re-read all of the posts that have been made here. I am guessing that your MIL suspects as we do that you are exagerating your problems and looking for drugs as a quick fix.

    You need someone who can get all of the records from your doctors. It's your right. Then they need to be looked at to see if you did what they prescribed and what happened. Then you can try to figure out what to do next.

    Again my guess is that your MIL wants her son to be happy and that mean making you better. Every mother wants that. So if you and your husband talk to her and his father I think you will find the help you need. Put yourself in her hands.

    There is a great wisdom that I try to live by:

    If one person says something it's their opinion.
    If two people say something listen carefully.
    If three or more people say the same thing it is probably true.

    Please listen to what has been said here and by your family. You need help finding answers to your medical problems. There is no magic pill but until you understand that you will never find relief.

  • Hi, Just read Your post Kelly, and I too gained too much weight in a short time from Lyrica. My doctor made me stop taking it,said weight gain that quickly was a serious side effect. I wish I could continue as it did work.When i tried phys. Therapy last year before PLIF surgery on 8.25.2010, i used and loved the Tens Unit. Can you provide information to me so I can access that and help my muscle spasms & twitching which has worsened post-op..I also lived with my ice rectangle pad pre-op, & yesterday I had to start using again. It helps since it numbs area, but the tens unit would break up my knotted muscles and felt heavenly!Let me know when you get a chance,I would surely appreciate that. Thank You~ Julie D.
  • I can get having many problems being so young I have a whole list of crap wrong with me as well and I'm only 23. I think I know what she means by the injections making it worse.

    When I get injections, excluding the SI joint injection that one didn't cause extra pain, they cause horrible pain the can last for up to a week. The first ESI I had such horrible pain for four days I had to use my Cain the whole time, then I got some relief for about two weeks, second ESI same thing. Third ESI pain lasted longer and then it never helped at all. Facet injection bad freaking deal it was much worse than the ESI's and I was crying every time I moved or someone bumped into my chair, it was horrid. When that went away it took a long time to get back to my normal pain. So while they either don't work or do they can cause really bad pain, but if you pay close attention when that pain goes away it may have helped

    If you read the information on the paperwork it does say can cause your pain to get worse but it will taper down. I would suggest getting an injection your pmd thinks will help you most and pay very good attention to what happens in the following weeks. Just because it causes pain doesn't mean it won't help.

    You haven't said which injections you've had so I do find myself wondering how many different ones have been tried because there are several. Also trying acupuncture may help and it isn't too horribly expensive. I'm sorry your insurance is going away, I too would like to know why, but you can try something other than lyrica. Just ask to try something that has a generic form and it won't be as much as the lyrica. That stuff is crazy expensive.

    I would also take the advice of all the things others are using to help their pain. Sometimes my rice pack (homemade heating pad) works wonders and I'm feeling pretty good after using it, sometimes it doesn't help at all. But I always try it. The hot bath, feels good while I'm in there as long as I'm not putting too much pressure on my hips and that like the rice pack sometimes works great. Hot shower the same. So there are plenty of things that can help your pain other than pills you just have to give them a chance to work, and I mean every time not just once and say but it doesn't work.
  • i don't think some of you got the jest of my post. it is not the age that i was writing about, it is the amazing number of disorders she has. i would like to know what tests she has had and has she taken the results and pictures to her doctors. to have this many disorders, she must have had a number of tests to diagnosis them. if not, then there is something wrong here. one can't just say i have this and this without mri's cat scans x-rays, bood tests etc. did she take all of these to her dr's? and if not why? this is my main concern. if i came into a doctor's office with 20 different complaints, i believe the dr would want to see all of the tests. this goes especially true with pain dr's. they won't dispense meds without a lot of tests. now the latest one is her pre- cancer diagnosis. all of this sounds fishy to me. i don't know about others.
    I have 4 fusions from L5-3, the latest last May '12 where they fixed my disc that broke.They went through my side this time. I take 40 mg of oxycontin 4x a day and 4 fenatyl lollipops 300 micro gms 4x a day.
  • I guess my take on all of this is that CS has mentioned endometriosis in only one of her posts. I just read a ton of information about the disease on endo-resolved.com and endometriosis can cause a massive amount of pain throughout the body, including the pelvic area and lower back, and can effect a woman's everyday life including being unable to work. It also lends the body to inherit other problems that most of us wouldn't normally be subject to. So having multiple issues when having endo is not uncommon.

    However, the issue for me is that I can understand if CS has a lot of pain issues due to endo, but that has only been mentioned once. I also read that the treatment for endo is laparoscopy surgery and hormonal medications - not once does it mention pain medications for endo. There are medications that can be taken to help with endo pain, but like I said they're either hormonal or anti-inflamatories.

    CS, I hope you're taking all of these posts and listening to the suggestions, getting information and gleaning what help you need. It's often been said here, and I'll say it again, when you have over 11,000 member on one forum, you'll get all sorts of responses. What you need to do is take what you need from each one of them or some of them, and leave the rest. People here will be honest in their opinions, offer reasonable suggestions and try their best to help you - that's what we do here, support each other, even if it's sometime hard to read and difficult to digest.

  • To be fair, the endometriosis has been in her sig line since she joined, as well as fibro.

  • you mentioned before that you don't work. are you on disability? you said you have a learning disability. i teach high school students with learning disabilities i am an rsp teacher and i have been doing it for 24 years. i am not sure if your learning disability is keeping you from working because i have never heard of this. a physical disability yes but learning disability, no. there are all sorts of programs, ie workability to help disabled students with jobs, college,etc. but once again, are you on workman's comp or any other type of disability or do you just not work. i still work even with 4 back surgeries and chronic pain. i can't even walk for short distances but i have accommodations from my dr to help. so now we can add learning disability to your complaints. no wonder many on this site have trouble believing you and because of this they are reluctant to help. most of us here deal with chronic pain issues and i for one don't let it affect my life. i live with it and work with it and do family things with it and travel with it, you get my point. so if you really have these issues the best way is to learn to deal with it and not let it rule your life. my family, my work my friends, and my church know of it and the meds i take. i don't hide it from any one and i don't let it rule me. once again, are you going to therapy. do you have insurance to cover all of these issues? i hope so because it must cost you a fortune.
    I have 4 fusions from L5-3, the latest last May '12 where they fixed my disc that broke.They went through my side this time. I take 40 mg of oxycontin 4x a day and 4 fenatyl lollipops 300 micro gms 4x a day.
  • Jon,

    There are many people who have multiple (read: many) medical problems besides their spinal issues. I'm one of them, but I don't list all of my ailments here because that would not be constructive or serve any purpose. Whether or not CS has all of the medical problems she says, or not, the fact that she's listing every single thing that could potentially cause pain just reinforces that she's seeking narcotics to handle her collective pain. I'm guessing that's one reason she's not getting the drugs she wants when she goes to a new PM doctor. They're not looking for a laundry list of every little thing that might make a person hurt.

    2009 Foraminotomy C6-72010 PLIF L4-S1Multi RFA's, cervical inj, lumbar injLaminectomy L3-4 and fusion w/internal fixation T10-L4 July 17Fusion C2-C5 yet to be scheduled
  • yes i was on disability SSI but they took it from me because they say my husband makes to much and i am going to have to have to find a job and yes my learning disabilities can cause me not to be able to work at some places sorry i should have said that i have brain damage from when i was little i had a very very high fever and my mom and my dad could not get it down and by the time they took me to a er it was to late i suffer some brain damage because my fever was so high i can't count money because of the brain damage so that leaves out alot of jobs and having chronic pain has disabled me to but i am going to still try to find a job and i might even get a job at a day care close where me and my husband live i know its going to be hard to work with my chronic pain and jon you can believe what i am saying or not believe it
  • I think Inchworm made an important point. When you have multiple issues, you need to be careful not to make it seem like you're looking for relief from "overall aches and pains." That isn't what pain management is really about, nor is that what chronic opiate therapy is for.

    Chronic opiate therapy is for diagnosed disorders that cause moderate-severe pain every day. So you really need to pick those things which are severe enough to warrant the treatment and focus on them.

    Yes, an injection will make the pain in your neck worse for a week or two. Then it should get better over time. If it doesn't help there are other things a PM can do other than chronic opiate therapy, but he'll need to know exactly what the problem is with your neck before he can do them.

  • For the tens unit, maybe start with asking your doctor about it? I'm afraid I can't be of much help, as in the military we are covered 100% for all things medical. I have seen them on E-bay for quite cheap though, if you're not covered. My mom was lucky, she picked one up at a yard sale for $5!!
    APROUD CANADIANveteranButNOTa doctor, my thoughts are my own
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