At my last appointment, my PM doc has put on the table "Stiff Man Syndrome". After reading about what this neurological, muscle auto immune disease, I am really hoping that is not what is my problem. My PM stated that I fit the profile, the only exception is my EMG only shows carpet tunnel (which i agrue with - perhaps they are mistaking that for the SMS). For the first time, he wanted to up my meds, which I refused. Lastly - two doctors (him and my RA doc) confirm that my spine has been completely straighten by my muscle spasms. I no longer have a curve, cervical, thoracic or lower.
Question - anyone here have that diagnosis, or gone down this path? Just looking for personal experiences.