I discovered this site while scanning the web,looking for answers. 10 mins after reading some of the posts here,I believe I'm in the right place
I'm 50, mom of 3, for the most part a happy/lucky woman. I was diagnosed with scoliosis and spondylothesis(sp)when I was 14. Despite concerns about pregnancy being too much stress on my back-I had 3 near 10 lb babies and was great! I've been carrying around 75 extra lbs for years without much prob until 2 years ago.
Pain started in back slowly, then down legs, into hips, then numbness down to right toes. By summer 2009 couldn't walk more than 3-4 mins. Got epidural-didn't really work. Tried Tens unit-nada. Neurosurgon did MRI and said I needed a grocery list of things-rods, screws, disc removal, wire cage, bone graft, fusion at L5-S1. Surgery was 6-28-10. I was naive and expected to rally within a couple weeks, like I usually do after surgeries, etc. It took a lot longer, but doc told me I was doing really well.
Problem: About 2 months after surgery, I went to turn in bed one night and had horrible pain out of the blue. From that point on I haven't been able to turn in bed or rotate my hips without scream-out loud pain! It's hard to get out of bed, too. Because of this I haven't slept much. They did get me a hospital bed to see if it would help, but no.
I'm over 3 months of this and getting worse. My pain doc said she thought it was my sacroiliac joints-so we did a medrol pack-(nothing)-then a month ago she sent me for injections into sacroliliac joints-(nothing). Yesterday was my 6 mo appt with neurosurgeon. He said fusion looks good. He seemed stumped on my pain and decided to put me on MS Contin, so I'll be drugged 24/7. I read about MS Contin(morphine) and frankly it sounds scary, addictive and a band-aid fix. I'm freaking out a little because I feel doomed... No one seems to really know or care to delve deeper to find out what's wrong. I just can't keep going like this and don't want to fill the MS Contin prescription. Anyone else have a similar experience or have any idea what is wrong with me?
Thanks in advance.